BackgroundAcute Lymphoblastic Leukemia (ALL) is the most common childhood malignancy. Caring for children with ALL is challenging for parents. A mHealth supportive care intervention was developed to meet parents' needs.
ObjectivesTo evaluate the potential effectiveness of this mHealth supportive care intervention on emotional distress, social support, care burden, uncertainty, quality of life and knowledge.
MethodsA quasi-experimental pre-/post-design study was conducted form June 2015 to January 2016.In total, 101 parents were enrolled in the study, with 50 in the observation group and 51 in the intervention group. Parents in the observation group received the standard health education and were observed for 3 months. Parents in the intervention group received the mHealth supportive care intervention, in addition to the standard health education. The intervention consisted of two parts: an Android smartphone app "Care Assistant (CA)" and a WeChat Official Account. The CA with eight modules (Personal Information, Treatment Tracking, Family Care, Financial and Social Assistance, Knowledge Center, Self-Assessment Questionnaires, Interactive Platform, and Reminders) was the main intervention tool, while WeChat Official Account was the supplementary to update information and to realize interaction between parents and healthcare providers. Data of parents' social support, anxiety, depression, care burden, uncertainty in illness, quality of life, their existing knowledge of ALL and care, and knowledge need were collected before and after the 3-month study period in both groups. For the intervention group, parents' experience of receiving the intervention was also collected through individual interviews.
Results
Forty
P<.001).Qualitative results showed that parents were satisfied with the intervention and their role in the caregiving process.
ConclusionsThe mHealth intervention in supporting parents of children with ALL is effective. This study is informative for other future studies on providing mHealth supportive care for parents of children with cancer.
The results indicated that care burden in parents of children newly diagnosed with ALL is high. Parents with lower levels of care burden tend to have less daily care time, more co-caregivers, higher income, less anxiety, better general health, and social support. Strategies are needed to help reduce parents' care burden.
Background: Our study aimed to explore the anxiety levels and possible associated factors in the pediatric medical staff in Jiangsu province during an outbreak of Coronavirus Disease 2019 .Methods: Pediatric medical staff (n=534) from nine hospitals in Jiangsu province were enrolled. Their anxiety levels and quality of sleep were assessed using the online SAS and PSQI questionnaires.Results: The prevalence of anxiety was 14.0% among the medical staff. In children's hospital staff, anxiety levels in outpatient and emergency departments were significantly higher than those in inpatient departments, except for the intensive care unit. The SAS scores were significantly associated with educational background, professional title, lifestyle, and physical condition. Stepwise multiple linear regression showed that physical condition, lifestyle, attention to the epidemic, professional title, and educational background all had a linear relationship with the individual's anxiety levels. Pearson correlation analysis showed that sleep quality was moderately associated with anxiety levels.
Conclusions:The prevalence of anxiety was 14.0% in pediatric medical staff in Jiangsu province during an outbreak of COVID-19. Department, professional title, and educational background were associated with anxiety levels in these workers. More attention should be paid to staff who are in poor health, and this anxiety can also be accompanied by poor sleep quality. Peer support can assist with anxiety relief.
The experiences described in this study contribute to a better understanding of the needs of acute lymphoblastic leukaemia children undergoing lumbar puncture. They also provide valuable information to professional medical care staff that develops future nursing assessments.
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