advanced care planning, in particular in decisions regarding treatment limitations.Parents describe a reluctance to make specific decisions in advance and, if agreeing to treatment limitations only do so because they know that they can revoke the decision. Moreover, most parental values described above pull parents in the direction of prolonging life. Only actual (or expected) suffering leads parents to agree to treatment limitations. Consistent with this finding is that parents whose child experienced a prolonged PICU admission feel that not speaking about treatment limitations after their child recovered is a missed opportunity that could have prevented further intensive treatment.1Noddings N, Caring: A Relational Approach to Ethics & Moral Education (2013), http://site.ebrary.com/id/10745983. Conclusion Parental ethical decision making is contextual rather than based on principles. It is important to take this into account when engaging parents in discussions regarding treatment limitations.
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