Aim: This paper is a report of the comparison of perceptions of family-centred care by hospital staff (nurses, doctors and allied health staff) and parents of hospitalised children in two Australian tertiary paediatric hospitals.Background: Family-centred care is an accepted approach to caring for children and their families in hospital. Previous publications have been inconsistent, ranging from promoting its benefits and integration into practice, reporting operational difficulties and proposing that family-centred care may not be working at all. An evaluation of the model of care is long overdue. Method: A quantitative comparative cross-sectional survey was used to collect data in 2010 from a convenience sample of 309 parents of hospitalised children and 519 staff. Participants rated 20 items grouped into three subscales of respect, collaboration and support.Findings: Both parents and staff responses were positive and parents had significantly higher subscale scores for respect, collaboration and support (all p<0.0001). Parents’ responses for 19 of the 20 items were significantly higher than for staff. The item on which parents and staff did not differ was concerned with being able to question recommendations about the child’s treatment. Conclusion: Both parents and staff had positive perceptions of their family-centred care experiences. Parents’ perception of their experience was more positive than staff perceptions of their delivery of family-centred care in hospital. Whilst the positive experience by both consumers and healthcare providers is an important finding, reasons for differences, in particular in supporting parents, require further examination.
Objective: To assess the cross-cultural adaptation to Brazilian Portuguese of two instruments for the measurement of family-centered care, one for parents and one for healthcare professionals. Methods: Methodological study of cross-cultural adaptation following the phases of translation, backtranslation, analysis by experts, pre-test, test-retest and psychometric analysis after the application of the instrument to 100 parents of hospitalized children and 100 professionals from pediatric units of a teaching hospital. Results: The evaluation of experts in both instruments showed a Kappa of 0.85 and 0.93 respectively. At pretest, participants suggested no changes. Test-retest reliability was good for both stability indexes. Factor analysis explained 43.9% of the total variance in the parents instrument and 43.4% in the staff instrument. Cronbach's alpha coefficient was 0.723 for the parents instrument and 0.781 for the staff instrument. Conclusion: The instruments adapted to the Brazilian culture presented reliability, stability and good internal consistency, with potential to be used in the pediatric clinical practice. ResumoObjetivo: Realizar a adaptação transcultural para a língua portuguesa brasileira de dois instrumentos de medida do cuidado centrado na família, um para pais e outro para profissionais da equipe de saúde. Métodos: Estudo metodológico de adaptação transcultural seguindo as etapas de tradução, retrotradução, análise de especialistas, pré-teste, teste-reteste e análise psicométrica após aplicação do instrumento com 100 pais de crianças hospitalizadas e 100 profissionais de unidades pediátricas de um hospital universitário. Resultados: A avaliação por especialistas de ambos os instrumentos apresentaram Kappa de 0,85 e 0,93 respectivamente. No pré-teste, os participantes não sugeriram alterações. No teste-reteste houve bons índices de estabilidade em ambos. A análise fatorial explicou 43,9% da variância total no instrumento pais e 43,4% no instrumento equipe. O coeficiente Alpha de Cronbach foi 0,723 no instrumento pais e 0,781 no instrumento equipe. Conclusão: Os instrumentos adaptados para a cultura brasileira apresentaram confiabilidade, estabilidade e boa consistência interna com potencial para ser utilizado na pratica clinica pediátrica.
Funding to paediatric hospitals should include meals for parents, especially breastfeeding mothers. Access to staff canteens would afford parents the opportunity to eat proper meals. Parking for parents should be free.
F. Oral therapy with ketoconazole for dermatophyte infections unresponsive to griseofulvin. Reviews of Infectious Diseases 1980;2:578-81. 5 Razzouk C, Agazzi-Leonard E, Cumps J, Poncelet F, Mercier M, Roberfroid M. Induction and inhibition of rat liver microsomal benzo-(a)pyrene-hydroxylase :correlation with the S-9-mediated mutagenicity of benzo-(a)-pyrene. Biochem Biophys Res Commun 1978;85:1007-16.
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