Approximately 1.6 million people in the United States have type 1 diabetes (T1D). 1 The incidence of T1D is increasing in the United States across all populations, most significantly among Hispanic and non-Hispanic Black (NHB) patients. 2,3 Unfortunately, widespread inequities exist in health outcomes among patients with T1D in the United States. [4][5][6][7] In 2016, the T1D Exchange Quality Improvement Collaborative (T1DX-QI) was established. 8 T1DX-QI is a learning health network 9 with over 40 centers across the United States. Participating centers use continuous quality improvement (QI) methods [10][11][12] and real-world electronic medical record (EMR) data 4,6 for T1D population health improvement.The T1DX-QI is coordinated by the T1D Exchange, a Boston-based nonprofit coordinating center. The goals of the T1DX-QI were described in a separate commentary. 13 The T1DX-QI has successfully used QI principles and implementation science to improve clinical processes, including increased use of continuous glucose monitors (CGM), insulin pumps, depression screening, improved access to care, and population-level glycemic outcomes. [9][10][11][12] In 2020, the T1DX-QI established its health equity program to address inequities systematically and comprehensively in T1D outcomes. 14 This commentary describes practical approaches being employed by the T1DX-QI to address health inequities. These approaches can be Robert Rapaport and Manmohan Kamboj are co-senior authors.
This article describes how the T1D Exchange Quality Improvement Collaborative leverages an innovative web platform, the QI Portal, to gather and store electronic medical record (EMR) data to promote benchmarking and population health improvement in a type 1 diabetes learning health system. The authors explain the value of the QI Portal, the process for mapping center-level data from EMRs using standardized data specifications, and the QI Portal’s unique features for advancing population health.
There are limited tools to address equity in diabetes research and clinical trials. The T1D Exchange has established a 10-step equity framework to advance equity in diabetes research. Herein, the authors outline this approach and expand on its practical application.
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<p>This article describes the evolution of the Type 1 Diabetes Exchange Quality Improvement Collaborative (T1DX-QI) provide insights into the development and growth of a successful type 1 diabetes quality improvement (QI) program. Since its inception 8 years ago, the collaborative has expanded to include centers across the United States with varying levels of QI experience, while simultaneously achieving many tangible improvements in type 1 diabetes care. These successes underscore the importance of learning health systems, data-sharing, benchmarking, and peer collaboration as drivers for continuous QI. Future efforts will include recruiting additional small- to medium-sized centers focused on adult care and underserved communities to further the goal of improving care and outcomes for all people living with type 1 diabetes. </p>
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<p>This article describes how the T1D Exchange Quality Improvement Collaborative leverages an innovative web platform, the QI Portal, to gather and store electronic medical record (EMR) data to promote benchmarking and population health improvement in a type 1 diabetes learning health system. The authors explain the value of the QI Portal, the process for mapping center-level data from EMRs using standardized data specifications, and the QI Portal’s unique features for advancing population health.</p>
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