There is considerable debate regarding the most appropriate and effective ways of supporting the learning of children and young people on the autism spectrum. This international review provides a synthesis of empirical research and expert evidence (dated 2002-2008) to identify best practice in educational provision for these children. Five bibliographic databases were systematically searched using clearly defined keywords, and abstracts assessed according to explicit inclusion and exclusion criteria; 92 research papers that focused on children and young people were included. Expert evidence was drawn from policy documents and government strategies, or research reports, from the UK and Ireland. Findings show that there is insufficiently strong evidence regarding the effectiveness of one type of intervention approach compared with another. A range of educational provision should be maintained in order to cater appropriately for a wide diversity of needs. Interventions most often researched were those involving intensive behavioural techniques and some studies showed these can be successful in teaching specific skills to some children. There was limited evidence regarding the needs of older children as well as consideration of educational provision more widely, including the effects of type of setting (as distinct from a specific type of intervention or learning approach). More research is needed on other types of educational interventions currently used by parents and in schools as well as greater collaboration between researchers and practitioners to establish what works best for children and young people on the autism spectrum.
This article explores the views of six higher education students with autism/Asperger syndrome. The research draws upon social identity theory to explore how participants made meaning of their label. There was consensus that information given at the point of diagnosis generally did not reflect their individual experiences. First‐hand accounts tended to be perceived as more personally relevant. The ‘Asperger’ identity was generally framed as fragile and inconsistent, leading some individuals to distance themselves from it. This may be problematic for a group that is already disadvantaged and isolated. However, participants conveyed strong self‐images regardless of how and whether they identified with their diagnosis, which was attributed to their relative privilege in achieving higher education and therefore experiencing success and achievement related to their personal strengths. In this article, Andrea MacLeod, Ann Lewis and Christopher Robertson, from the University of Birmingham, call for researchers and relevant services to involve autistic individuals directly in fostering a constructive ‘autism identity’.
This qualitative study used Interpretative Phenomenological Analysis to consult with sixteen autistic UK higher education (HE) students about their experiences of success. An in-depth participatory approach encouraged participants to become coanalysts of their data. Participants offered counter-narratives to deficit-based interpretations of autism, giving accounts of making themselves 'extra-visible' as autistic in order to assert their rights. The autism diagnosis was perceived both as an aid to selfunderstanding and a cause of additional barriers. In raising awareness of their own needs, participants contributed to broader understandings of autism within their academic communities, inadvertently becoming educators and role models. The research highlights the extra effort required by autistic students to thrive within higher education and the barriers imposed by current requirements to both pursue formal diagnosis, and to disclose it in order to receive adjustments. The research was novel in its approach and in its focus on success, revealing original findings in relation to the challenges and barriers faced by high-achieving autistic students, and the implications for a more inclusive higher education curriculum and environment are considered.
Interpretative phenomenological analysis is distinctive in foregrounding participants' interpretations. As such, it is potentially useful for gaining an insight into the lived experience of autistic individuals and aligns well with participatory approaches. This paper provides the first systematic review of IPA studies that have employed a participatory approach and considers their contribution to Critical Autism Studies. Method Four electronic databases were searched to identify peer-reviewed empirical research articles which employed a participatory IPA approach to consult with autistic individuals. Thirteen studies from four countries, published 2008-2018, met the inclusion criteria. These were examined to identify details of the methodology, findings and recommendations in order to consider each in relation to the underpinning philosophies of IPA and participatory research respectively, and their relationship to the stated aims of Critical Autism Studies. Results A range of participatory approaches were employed and their use extended the depth and validity of findings. There was evidence of disruption to power relations in process and outcomes. Making sense of the autism diagnosis was a frequent point of discussion, even when this was not the focus of the study, and across studies, strong commonalities emerged, capturing a multidimensionality of 'autistic identities'. Conclusion Interpretative Phenomenological Analysis (IPA) as a tool for participatory research within Critical Autism Studies: A systematic review 3 This review provides evidence of the usefulness of IPA as a research approach to consult with autistic individuals. It lends itself to a range of participatory techniques and there is scope for these to be used with diverse autistic populations, in order to extend the opportunities for autistic individuals to be represented, and represent themselves, within autism research.
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