Background Maintaining caregivers' quality of life (QoL) is critical to sustaining the care needed for cancer patients. One of the interventions applied to cancer patients' caregivers is early palliative care (EPC). Aims This systematic review synthesized the implementation of EPC on the QoL of caregivers of cancer patients. Methods The search was undertaken using seven electronic databases: Medline, Embase, CINAHL, CENTRAL, Web of Science, Scopus, and ProQuest Dissertation & Theses (PQDT). The search strategy integrated relevant terms of early palliative care, caregivers, cancer, and quality of life and was conducted until March 14, 2022. The thematic data analysis approach was used to integrate the results. Results Using advanced search features, 4193 studies were obtained on the initial search. After screening and quality assessment, eight studies were included. Eight studies depicted that EPC interventions were delivered for caregivers of patients with advanced cancer, that is, those with a life expectancy of at least 4–24 months or considered intermediate to poor prognosis. One study provided the intervention for caregivers of patients newly diagnosed with cancer. None of the studies had the same protocol or content in delivering EPC for caregivers. Four studies gave similar details on addressing the strategies for caregivers in several aspects, including physical, psychological, social, and spiritual. There was no difference in the QoL between caregivers with cancer patients who received EPC compared with usual care. EPC was noted to influence other factors, such as caregivers' psychological distress and burden. Linking evidence to action The data on EPC interventions portray no beneficial effects on the QoL of caregivers with cancer patients. Further studies on developing standard protocols of EPC, multidisciplinary team, and how early it should be given to caregivers are strongly recommended.
Purpose: The purpose of this study was to investigate the effect of family-centered interventions on improving health outcomes in children and adolescents with type 1 diabetes mellitus (T1DM).Methods: A literature search was conducted according to the PRISMA guidelines, using six electronic databases: EMBASE, CINAHL, Medline, CENTRAL, Scopus, and Web of Science. The inclusion criteria encompassed studies with populations of children and adolescents (age <18 years) and at least one parent/caregiver, or only parents/caregivers if the children were very young, and studies that investigated the health outcomes of children and parents/caregivers diagnosed with T1DM.Results: From 2,746 published studies, only nine studies met the inclusion criteria. The key interventions were non-technology-based interventions (n=4), technology-based interventions (n=2), and combined technology- and non-technologybased interventions (n=3). The interventions had effects on glycated hemoglobin, adherence to diabetes management, diabetes self-management behaviors, and parentchild teamwork in diabetes management. Other essential effects were children's quality of life, children's problem-solving skills, parents' quality of life, and parents' coping and depression.Conclusion: Family-centered interventions can effectively improve health outcomes in children and adolescents with T1DM. In the future, family-centered interventions integrated with other approaches, theories, and models should be developed to achieve the best possible outcomes.
ABSTRAKPrediksi tingkat depresi pada remaja menunjukkan tidak depresi, yang dimungkinkan dipengaruhi oleh lama terdiagnosa, kunjungan rutin untuk berobat, penggunaan obat, dan lingkungan sekolah. Penelitian ini bertujuan untuk memprediksi tingkat depresi pada remaja dengan IDDM di Ikatan Diabetesi Anak dan Remaja (IKADAR) Kota Malang. Penelitian ini menggunakan metode deskriptif dengan teknik pengambilan sampel total sampling pada 24 orang tua remaja usia 10-19 tahun di IKADAR Kota Malang. Penelitian ini dilakukan pada bulan Juni-Juli 2017. Instrumen yang digunakan Center for Epidemiological Studies Depression Scale for Children (CES-DC) yang memiliki 20 item dengan rentang nilai keseluruhan 0 – 60, dengan nilai cut point < 15 tidak depresi dan > 15 ada depresi. Sebelum instrumen digunakan untuk mengambil data dilakukan uji validitas dengan Product Momen Pearson Correlation dengan r hitung 1,00 > r tabel 0,549 dan reliabilitas Alpha Chronbach’s 0,911 > r tabel dengan df=(10-2). Sehingga disimpulkan instrument valid dan reliable. Setelah data terkumpul akan dilakukan pengolahan data dengan tahap editing, coding, tabulating dan analisis statistik. Hasil analisis univariat diasajikan dalam bentuk deskriptif. Hasil analisis menunjukkan mean empirik skor tingkat depresi 13,79 atau tidak depresi. Sehingga disarankan bagi remaja untuk terus mencari lingkungan yang adaptif sehingga dapat mencegah depresi.Kata Kunci: Depresi, Remaja, Insulin Dependent Diabetes Mellitus (IDDM)ABSTRACTPredicted levels of depression in adolescents show no depression. Possible affected by long diagnoses, regular visits to treatment, drug use, and school environment. This study aims to predict depression rates in adolescents with IDDM in the Association of Child and Rehabilitation Diabetesi (IKADAR) Malang. This research uses descriptive method with sampling technique of total sampling in 24 parents aged 10-19 years old in IKADAR Malang. The study was conducted in June-July 2017. The instrument used was the Center for Epidemiological Studies Depression Scale for Children (CES-DC) which had 20 items with an overall value range of 0-60, with a cut-point value <15 not depressed and> 15 depression. Before the instrument is used to retrieve the data tested the validity with Pearson Correlation Moment Product with r count 1.00> r table 0,549 and reliability Alpha Chronbach's 0.911> r table with df = (10-2). So concluded the instrument valid and reliable. After the data collected will be done data processing with the stage of editing, coding, tabulating and statistical analysis. The results of univariate analysis were presented in descriptive form. The analysis results showed the empirical mean score of depression level 13,79 or not depression. So it is advisable for adolescents to continue looking for an adaptive environment so as to prevent depression.Keywords: Depression, Adolescent, Insulin Dependent Diabetes Mellitus (IDDM)
Type 1 diabetes is the type of diabetes that most occurs in childhood. The complexity of management of type 1 diabetes requires a large role from the family in monitoring and managing diabetes owned by children. The purpose of this study was to determine the pattern of family response in the diabetes management in children with type 1 diabetes in IKADAR Malang. This research was a descriptive study. The populations were all children with their parents in IKADAR Malang. The respondents of this study were 19 children and 19 parents in IKADAR Malang taken by purposive sampling. The variable was the pattern of family response measured by using the Diabetes Family Responsibility Questionnaire (DFRQ) questionnaire. It was found that the pattern of family response in diabetes management is the perfect agreement pattern of 10.1 ± 3.2, the overlap pattern of 6.7 ± 3.3 and the pattern of no responsibility that is equal to 0.2 ± 0, 4 which can be interpreted that almost all (82.3%) diabetes management tasks have been fulfilled and only a small portion (17.7%) tasks have not been fulfilled. It can be expected that nurses can assist the family so that the diabetes management is fully achieved and help children begin to learn to manage diabetes independently with the supervision of a team of health workers and parents. Keywords: The Pattern of Family Response, Diabetes Management, Children, Type 1 Diabetes Abstrak : Diabetes tipe 1 merupakan tipe diabetes yang paling banyak terjadi di masa anak-anak. Kompleksitas manajemen diabetes tipe 1 ini membutuhkan peran besar dari keluarga dalam mengawasi dan mengelola diabetes yang dimiliki oleh anak. Tujuan penelitian ini adalah untuk mengetahui pola respon keluarga dalam manajemen diabetes anak dengan diabetes tipe 1 di Ikatan Diabetesi Anak dan Remaja (IKADAR) Kota Malang. Penelitian ini adalah penelitian deskriptif. Populasi dalam penelitian ini adalah seluruh anak beserta orang tuanya yang tergabung dalam IKADAR Kota Malang. Sampel penelitian ini sebanyak 19 anak dan 19 orang tuanya yang tergabung di IKADAR (Kota Malang yang diambil secara purposive sampling. Variabel penelitian adalah pola respon keluarga yang diukur dengan menggunakan kuisioner Diabetes Family Responsibility Questionnaire (DFRQ). Didapatkan hasil bahwa pola respon keluarga dalam manajemen diabetes yaitu pola persetujuan sempurna sebesar 10,1 ± 3,2, pola overlap sebesar 6,7 ± 3,3 dan pola tidak ada yang bertanggung jawab yaitu sebesar 0,2 ± 0,4 yang dapat diartikan bahwa hampir seluruhnya (82,3%) tugas manajemen diabetes telah terpenuhi dan hanya sebagian kecil (17,7%) tugas yang belum terpenuhi. Diharapkan perawat dapat mendampingi keluarga agar manajemen diabetes anak tercapai penuh serta membantu anak agar mulai belajar mengelola diabetesnya secara mandiri dengan tetap dalam pengawasan tim tenaga kesehatan dan orang tua. Kata kunci: Pola Respon Keluarga, Manajemen Diabetes, Anak, Diabetes Tipe 1
In 2019, Children's Health Screening was held because there is volunteers from universities in Malang City. This volunteers motivation needs to be concerned because it is requires a lot of energy and time. The study was to determine the motivation of volunteers for School Children's Health Screening at Puskesmas Ciptomulyo and Mulyorejo. Respondents are volunteers for health screening at Puskesmas Ciptomulyo and Mulyorejo with total respondents are 34 respondents. Data was collected using “The Volunteer Functions Inventory” instrument. Data presented in descriptive and then used the unpaired t-test for analysis. The result is most of them (97.1%) of respondents had high motivation and the rest of them (2.9%) had moderate motivation. The factor of motivation that affect volunteers as following: understanding, career development, self-enrichment, personal value, self-protection and social factors. In addition, there is no difference in the motivation of volunteers based on the years of college education. Based on the results of this study, we suggest that academic institution prepare students to improve their clinical skills and motivate students to take part in volunteer activities in the community. Keywords: Motivation, Volunteers, School Children’s Health Screening
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