SummaryBackgroundHealth information systems (HIS) are one of the most important areas for biomedical and health informatics. In order to professionally deal with HIS well-educated informaticians are needed. Because of these reasons, in 2001 an international course has been established: The Frank – van Swieten Lectures on Strategic Information Management of Health Information Systems.ObjectivesReporting about the Frank – van Swieten Lectures and about our students‘ feedback on this course during the last 16 years. Summarizing our lessons learned and making recommendations for such international courses on HIS.MethodsThe basic concept of the Frank – van Swieten lectures is to teach the theoretical background in local lectures, to organize practical exercises on modelling sub-information systems of the respective local HIS and finally to conduct Joint Three Days as an international meeting were the resulting models are introduced and compared.ResultsDuring the last 16 years, the Universities of Amsterdam, Braunschweig, Heidelberg/Heilbronn, Leipzig as well as UMIT were involved in running this course. Overall, 517 students from these universities participated. Our students‘ feedback was clearly positive. The Joint Three Days of the Frank – van Swieten Lectures, where at the end of the course all students can meet, turned out to be an important component of this course. Based on the last 16 years, we recommend common teaching materials, agreement on equivalent clinical areas for the exercises, support of group building of international student groups, motivation of using a collaboration platform, ensuring quality management of the course, addressing different levels of knowledge of the students, and ensuring sufficient funding for joint activities.ConclusionsAlthough associated with considerable additional efforts, we can clearly recommend establishing such international courses on HIS, such as the Frank – van Swieten Lectures.
Summary Objectives: To introduce a formal definition of data availability as a contribution to trustworthiness of health information systems and to automatically detect respective weaknesses and propose solutions. Method: Specifying an ontology, based on enterprise functions and application systems of (health) information systems and closely linked to the Three-Layer Graph-Based Meta Model (3LGM2). Deriving appropriate measures and algorithms. Results: A formal definition for data availability is introduced and elucidated by an example. This concept is used e.g. to disclose missing communication links and to suggest solutions. Conclusions: Data availability is a necessary but not sufficient condition for trustworthiness of health information systems. If information management has a thorough description of the information system at its disposal, e.g. by using 3LGM2, the calculation of data availability does not need further efforts.
The presented approach enables the representation and analysis of dependencies between information processes and communication paths. With it, the HIS architecture is directly associated with the business needs. This is an important condition for the systematic planning of hospital information systems.
Objectives The TMF (Technology, Methods, and Infrastructure for Networked Medical Research) Data Protection Guide (TMF-DP) makes path-breaking recommendations on the subject of data protection in research projects. It includes comprehensive requirements for applications such as patient lists, pseudonymisation services and consent management services. Nevertheless, it lacks a structured, categorised list of requirements for simplified application in research projects and systematic evaluation. The DFG-founded 3LGM2IHE project ("Three-layer Graph-based meta model – Integrating the Healthcare Enterprise (IHE)") aims to define modeling paradigms and implement modeling tools for planning healthcare information systems. In addition, one of the goals is to create and publish 3LGM² information system architecture design patterns (short “design patterns”) for the community as design models in terms of a framework. A structured list of data protection-related requirements based depicted from the TMF-DP is a precondition to integrate functions (3LGM² Domain Layer) and building blocks (3LGM² Logical Tool Layer) in 3LGM² design patterns. Methods In order to structure the continuous text of the TMF-DP, requirement types were defined in a first step. In a second step dependencies and delineations of the definitions were identified. In a third step, the requirements from the TMF-DP were systematically extracted. Based on the identified lists of requirements, a fourth step included the comparison of the identified requirements with exemplary open source tools as provided by the "Independent Trusted Third Party of the University Medicine Greifswald" (TTP tools). Results As a result, four lists of requirements were created, which contain requirements for the 'patient list', the 'pseudonymisation service' and the 'consent management', as well as cross-component requirements from the TMF-DP chapter 6 in a structured form. Further to requirements (A), possible variants (B) of implementations (to fulfill a single requirement) and recommendations (C) were identified. A comparison of the requirements lists with the functional scopes of the open source tools E-PIX (record linkage), gPAS (pseudonym management) and gICS (consent management) has shown that these fulfill more than 80% of the requirements. Conclusions A structured set of data protection-related requirements facilitates a systematic evaluation of implementations with respect to the fulfillment of the TMF-DP guidelines. These re-usable lists provide a decision aid for the selection of suitable tools for new research projects. As a result, these lists form the basis for the development of data protection-related 3LGM²-design patterns as part of the 3LGM2IHE-project.
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