Thalassemia is a major genetic blood disorder that considered as a public health problem in Indonesia. Yet, little is known about affected individuals thalassemic children and parents overall experiences with and perceptions of thalassemia mayor in Indonesia. This study aimed to explore the concerns, beliefs, feelings and needs of mothers' who have a thalassemic child. A total of (N=24) mothers' were chosen as participants. Focus Group Discussion (FGD) was carried out to better elucidate the mothers' perceptions of their needs and concerns. A semi-structure focus group moderator's guide corresponding to the research questions was developed. To gain in-depth understanding, questions were divided in four major domains which were (i) Perceptions about child disease, (ii) Knowledge about thalassemia and its treatment, (iii) Thalassemia impact on child and family, and (iv) Needs and future concerns. Transcripts were thematically coded according to the research themes that emerged from the data, and the themes were further sorted into subthemes. The finding of this study indicates significant impact of thalassemic children on their families in terms of emotional well-being, financial burden and social impact. Mother's education level was very low about Thalassemia. Mother also expressed their needs for more information about thalassemia and its treatment, social, professional support, and financial support. Results of this study provided a portrait of the reality that thalassemia has a significant impact on children and their families. A holistic approach should be carried out while caring with thalassemic children and their families. Nurses and health care professionals should explore the feelings, concerns and needs of mothers' who have thalassemic children and eventually provide appropriate care plans that alleviate their suffering.

Background: Unrelieved post-operative pain in children continues to be a major clinical problem, despite advances in pain management in Indonesia. The significance of the study is to address the gap in nurses' knowledge of pain management may be having. The study aim was to examine nurses post-operative pain care in an Indonesian Hospital. Methods:A naturalistic, observational qualitative approach was undertaken to observe16 participating nurses who cared for 16 children post-surgery. Each participant was observed continuously during three to four shifts of 5 h each over a 2-month period. Content analysis was performed to interpret the results. Results:We found that, in general, the nurses did not routinely and comprehensively assess the extent to which the children were in pain post-surgery and that they rarely used non-pharmacological interventions. Such these interventions were often conducted by parents. However, the nurses readily provided analgesic drugs as needed to the children, especially during the first 48 h post-operative period. Our findings support those of previous studies that found the role of nurses in pain management is primarily administration of analgesic drugs. Moreover, such pain care did not conform to recommendations based on current evidence. Conclusions:Post-operative pain care by nurses in a pediatric surgical ward were still un-optimal. These findings increase our knowledge and understanding about the complexities of postoperative pain care of children in Indonesia. Post-operative pain management in pediatric patients could be improved by increasing cooperation among healthcare professionals and parents. Post-operative pain management should be always put as a priority

Cakupan deteksi dini tumbuh kembang anak balita tingkat Provinsi Jawa Barat masih jauh di bawah target yang ditetapkan yaitu 90%, termasuk untuk wilayah Kabupaten Sumedang, khususnya Desa Cileles Kecamatan Jatinangor, memiliki cakupan deteksi dini tumbuh kembang anak masih rendah. Stimulasi, deteksi, dan intervensi dini tumbuh kembang (SDIDTK) yang dilakukan di Posyandu tidak lengkap, hanya penimbangan dan pengukuran tinggi badan saja. Kader posyandu belum mampu melakukan deteksi dini dan intervensi dini penyimpangan tumbuh kembang balita secara komprehensif. Kegiatan Pengabdian Kepada Masyarakat (PKM) ini bertujuan untuk memberdayakan kader posyandu dalam melakukan SDIDTK pada anak usia 0 – 6 tahun. Khalayak sasaran pada kegiatan ini adalah kader posyandu di Desa Cileles. Luaran dari kegiatan PKM ini yaitu tersusunnya modul SDIDTK pada anak usia 0 – 6 tahun yang aplikatif dan handbook praktikum deteksi dini tumbuh kembang anak. Metode kegiatan dilakukan dengan beberapa metode yaitu panel expert untuk pembuatan modul SDIDTK dan pelatihan SDIDTK yang terdiri dari kegiatan penyuluhan, small group discussion, praktikum serta simulasi. Pelaksanaan kegiatan ini melibatkan mitra dari 5 buah posyandu di Desa Cileles yang diikuti oleh 25 kader posyandu. Evaluasi dilaksanakan dengan evaluasi kognitif dan psikomotor. Hasil kegiatan menunjukkan bahwa kader posyandu sangat antusias dalam mengikuti rangkaian kegiatan PKM ini. Sejumlah 25 orang kader lulus mengikuti semua tahapan dalam kegiatan PKM ini dengan indikator terdapat peningkatan pengetahuan tentang SDIDTK dan tumbuh kembang pada anak dari nilai rata-rata pretest 41,6 (SD = 18,9) menjadi nilai rata-rata posttest 65,6 (SD = 17,6), dengan rata-rata peningkatan skor 24,0 (SD = 18,3); dan kemampuan psikomotor peserta 100% lulus dalam kegiatan praktikum. Hasil kegiatan ini merekomendasikan agar pelaksanaan pelatihan SDIDTK pada kader posyandu ini perlu dilanjutkan secara berkesinambungan untuk meningkatkan kemampuan kader dalam melakukan stimulasi tumbuh kembang, deteksi dini tumbuh kembang, dan intervensi dini tumbuh kembang.Kata kunci: Anak usia 0-6 tahun, deteksi, intervensi dini, kader posyandu, stimulasi, tumbuh kembang

AbstrakGangguan tidur pasien kritis di ruang Intensive Care Unit dapat mengakibatkan terganggunya fungsi kekebalan tubuh, menurunkan kemampuan otot inspirasi pernafasan, terganggunya sistem metabolisme, terganggunya regulasi sistem saraf pusat dan kondisi psikologis pasien yang berdampak terhadap waktu perawatan berkepanjangan. Foot Massage merupakan salah satu terapi komplementer yang aman dan mudah diberikan dan mempunyai efek meningkatkan sirkulasi, mengeluarkan sisa metabolisme, meningkatkan rentang gerak sendi, mengurangi rasa sakit, merelaksasikan otot dan memberikan rasa nyaman pada pasien. Tujuan penelitian ini teridentifikasinya perbedaan pengaruh skor kualitas tidur pada kelompok kontrol dan perlakuan. Penelitian quasi eksperimental ini menggunakan kelompok kontrol dan kelompok perlakuan dengan masing-masing kelompok dilakukan penilaian pretest dan postest. Jumlah sampel sebanyak 24 pasien. Instrumen kualitas tidur menggunakan Richard Campbell Sleep Quationare (RCSQ). Data dianalisis dengan uji t berpasangan dan uji t tidak berpasangan. Hasil penelitian menunjukan pada kelompok kontrol tidak terdapat perbedaan yang bermakna rerata skor kualitas tidur (p = 0,150), sedangkan pada kelompok perlakuan, terdapat perbedaan yang bermakna rerata skor kualitas tidur (p=0,002). Adapun selisih skor kualitas tidur pada kelompok kontrol dan kelompok perlakuan terdapat perbedaan secara bermakna (p= 0,026). Simpulan penelitian ini skor kualitas tidur pada kelompok intervensi lebih tinggi daripada kelompok kontrol, sehingga disarankan foot massage dijadikan evidence based di rumah sakit sebagai salah satu terapi komplementer yang dapat dijadikan intervensi mandiri keperawatan untuk membantu mengatasi gangguan tidur pasien kritis.Kata kunci: Foot massage, ICU, kualitas tidur. The effect of Foot Massage on Sleep Quality of in ICU Rooms' Patients AbstractSleep disorders of critical patients in the Intensive Care Unit can result in impaired immune function, decrease respiratory muscle capacity, disruption of metabolic system, disruption of central nervous system regulation and psychological condition of patients impacting on long treatment period. Foot Massage is one of the complementary therapies that is considered safe and easy to administer and has the effect of improving circulation, removing the rest of the metabolism, increasing the range of motion of the joints, reducing the pain, relaxing muscles and providing comfort to the patient. The purpose of this study is to identify differences in the effect of sleep quality score on control and treatment groups. This quasi experimental study used a control group and a treatment group where each group performed a pretest and posttest assessment. The sample size was 24 patients. Sleep quality instrument used Richard Campbell Sleep Questionnaire (RCSQ). Data were analyzed by paired t test and unpaired t test. The results showed that there was no significant difference in sleep quality score (p = 0,150), while in the treatment group, showed that there was a significant differe...

Flood disaster conduced 2375 refugees and traumatic in adolescent with symptoms of Post Traumatic Stress Disorder as many as 15 people in Garut regency. The impact of PTSD on adolescents reduced brain volume, behavioral changed and short-term memory lost. The psychotherapy that proved to be effective overcome PTSD was Cognitive Behavioral Therapy (CBT) 12 sessions but the empirical evidence in Indonesia, the 12 session of CBT intervention was too long, tedious, and caused doubts to the therapist so that 5 session CBT intervention was considered more flexible and efficient. The purpose of this study was compare the effectiveness of PTSD scores pre and post intervention of CBT 5 sessions and 12 sessions toward of PTSD on post flood disaster in adolescent. This research used Quasi Experiment Design with Pre test and Post test approach Two Group Design. The first group was given CBT 5 sessions and the second group was given CBT 12 sessions with the total number of adolescent respondents were 38 people (aged 12-18). The sample was chosen by used Consecutive Sampling at two evacuation sites in Cilawu and Tarogong Kidul subdistrict, Garut regency, West Java, Indonesia. The results of this study pre and post intervention in both groups decreased of PTSD score which difference of median value of 6.00 on CBT 5 session and average difference of 7.58 on CBT 12 session with significancy (p-value < 0.01) and the result analysis test on the effectiveness of both interventions (p-value > 0.05) with significancy number 0.648. The conclusion was no significant difference between the effectiveness of the CBT group of 5 sessions and the CBT group of 12 sessions. There needs comparison of more than 5 sessions and less than 12 sessions for next research.

Thalassemia is an inherited blood disorder in which there is a chronic abnormality of red blood cells. When a child suffers from a severe illness, the family usually acts as caregivers, which put them at risk of experiencing a burden of care. This study aims to identify the level of charge perceived by parents caregivers of children with thalassemia. A quantitative approach was used in this research to obtain data by using a continuous sampling. The samples in this research consisted of 71 parents of children with thalassemia, who are either their biological father or mother who attended thalassemia center on August 30, 2017 - September 13, 2017. The instrument was used in this research was modified from a Caregiver Burden Scale instrument (developed by Elmstahl). The data obtained were analyzed using a descriptive statistical technique in which parents burden is categorized into three levels: mild, moderate, and severe levels of burden, and they are measured in percentage. The result showed that 36 respondents (50.7%) perceived a mild level of burden, 31 respondents (43.7%) perceived moderate level of burden, and four respondents (5.6%) saw the severe level of burden. This study concludes that most respondents perceived a mild and moderate level of burden, but in terms of responsibility, economy, expectation, and anxiety, they showed a severe degree of burden. Nurses are suggested to maintain or alleviate the burden by providing education, counseling, emotional support and adaptive coping mechanisms for parents of children with thalassemia.

ABSTRAKAnak yang mengalami talasemia harus menjalani tranfusi seumur hidupnya sehingga keluarga anak dengan talasemia harus dapat beradaptasi terhadap perubahan terkait dengan perjalanan penyakit pada anak dengan talasemia. Perubahan yang terjadi pada keluarga anak dengan talasemia diantaranya adalah perubahan kebutuhan supportive care yang mencakup kebutuhan praktis, spiritual, psikososial, informasi, emosional, dan fisik. Penelitian ini bertujuan untuk mengidentifikasi kebutuhan supportive care pada orang tua anak penderita talasemia. Penelitian ini merupakan penelitian deskriptif kuantitatif. Teknik pengambilan sampel menggunakan accidental sampling dengan pengumpulan data dilakukan dalam kurun waktu 1 bulan dan didapatkan jumlah sampel sebanyak 32 responden. Data dikumpulkan dengan menggunakan instrumen supportive care needs assessment tool. Data dianalisis menggunakan analisis statistik deskriptif. Hasil penelitian menunjukkan bahwa kebutuhan supportive care pada orang tua anak penderita talasemia mulai dari yang tertinggi memerlukan bantuan dalam pemenuhannya adalah kebutuhan informasi (96,8%), kebutuhan emosional (81,25%), kebutuhan fisik (78,13%), kebutuhan psikososial (78,13%), kebutuhan spiritual (75%), dan kebutuhan praktis (65,13%). Rekomendasi hasil penelitian bahwa petugas kesehatan dapat merancang suatu pendekatan intervensi untuk membantu orang tua memenuhi kebutuhan supportive care terutama kebutuhan informasi dan kebutuhan emosional misalnya melalui pemberian pemberian informasi secara umum dan secara khusus dengan pembentukan kelompok supportive pada orang tua. ABSTRACTChildren with thalassemia must undergo a lifelong transfusion so that the family of children with thalassemia should be able to adapt to changes associated with the course of the disease in children with thalassemia. Changes that occur in the family of children with thalassemia include a change in supportive care needs that consist of practical, spiritual, psychosocial, information, emotional, and physical

Latar belakang. Sibling rivalry terjadi pada anak usia balita yang memiliki saudara kandung, kecemburuan dan kebencian menyebabkan kompetisi untuk mendapatkan perhatian dari orangtua. Dampak sibling rivalry antara lain dapat menimbulkan risiko cedera fisik pada anak. Tujuan penelitian ini adalah untuk mengidentifikasi hubungan sibling rivalry dengan kejadian cedera pada anak usia balita di Desa Cipacing Kecamatan Jatinangor. Metode. Rancangan penelitian yang digunakan adalah deskriptif korelasi dengan pendekatan cross sectional. Sampel penelitian sebanyak 47 responden yang dipilih meggunakan teknik total sampling. Instrumen sibling rivalry dari penelitian Vevandi (2015). Instrumen cedera dikembangkan dari WHO. Data dianalisis menggunakan distribusi frekuensi dan ujia Spearman-Rank. Hasil. Hasil penelitian menunjukkan 31 responden (66%) memiliki anak yang mengalami sibling rivalry pada tingkat sedang dan 28 responden (59,6%) anak mengalami cedera ringan. Terdapat hubungan yang lemah antara sibling rivalry dengan cedera pada anak usia balita di Desa Cipacing Kecamatan Jatinangor (p-value=0,048; r-value=0,290). Kesimpulan. Hasil penelitian menyarankan diperlukannya edukasi tentang pencegahan kecelakaan pada anak (bimbingan antisipasi pada orangtua).