Background The care of patients with Huntington's disease (HD) requires a multidisciplinary approach involving a wide range of services that can support the individual in each stage of HD as well as addressing the needs of those around him. A multidisciplinary approach to the family with HD comprises a variety of specialized services, such as neurology, psychiatry, neuropsychology, clinical genetics, physiotherapy, speech and language therapy, dietician, and dentistry. Social services are an integral part of the management of an HD family. Aims To share experiences from a social services perspective from a German HD clinic. Material and methods Summary of experiences from case management. Results/outcome HD patients require a lot of support from social services. They need advice on their welfare rights, insurances, and benefit from help with financial advisors, disability, employment advisors, peer support groups, housing support services, day-care services, personal care, occupational therapy services, and drivers' licensing authorities.Conclusions Social services are a key component of the care of an HD patient.Background There is little research on the specific nursing care needs of advanced HD patients residing in long term care facilities (LTCF), and therefore also little evidence of the efficacy of these interventions. Topaz Huntington Centre Overduin is a 70 beds LTCF for HD patients with over 20 years of experience, and is dedicated to help create evidence based practice for advanced HD patients in long term care. Aims An innovative project was started ('Topcare on Tour') to combine the existing experience with the best available evidence, and to explore what could and should be done to improve daily practice. Methods A five step method: (1) Focus groups meeting with nursing staff to explore which type of care needs is specific for HD; (2) Evaluate how these nursing care needs are met, based on experience, and describe this in experienced based protocols (EBP); (3) Search of both literature (including similar morbidities) and practice (from focus groups) on potential better alternatives; (4) Choose (small and larger) scale topics to evaluate both current and alternative practices; (5) Update the EBP to Experienced And Evidence Based protocols (E&EBP+). Results On three wards specific needs of HD patients and nursing care delivery were acknowledged (step1). Interestingly, nurses focused on the domains of patient autonomy and quality of life much more than on specific ADL needs. Specific care protocols and evidence in literature are mostly absent, and experience is transferred informally.