Zarit Burden Interview--Screening Version

Bédard, Michel; Molloy, D. William; Squire, Larry R.; Dubois, Judith A.; Lever, Lever; O’Donnell, Martin J.

doi:10.1037/t35628-000

Cited by 424 publications

(626 citation statements)

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“…Perceived Caregiver Burden was measured using the 12-item Zarit Burden Interview (ZBI). 24 A score of 17 or above may be used as the cutoff point to identify high burden. 24 Cronbach's alpha was 0.89.…”

Section: Methodsmentioning

confidence: 99%

“…24 A score of 17 or above may be used as the cutoff point to identify high burden. 24 Cronbach's alpha was 0.89. Perceived Personal Control was measured using five questions about control over DBMD in general, daily symptoms, longterm course, medical care and treatment, and control by others (adapted from Lipinski and colleagues).…”

Section: Methodsmentioning

confidence: 99%

“…Table 1 presents means and standard deviations of mothers' perceptions of BDMD caregiving, personal attributes, coping selfefficacy, and adaptation at baseline, 1 year and 2 years later; and mean and median for child's functional status. Defining a high ZBI score as 17 or above, 24 48.2% of the mothers reported high caregiver burden at baseline, 55.1% at 1-year follow-up, and 52.8% of the mothers reported high burden at the two-year follow-up. Repeated measures ANOVA demonstrated significant reduction in perceived control (Wilks' Lambda = 0.83, F (2114) = 11.61, Po0.005) and a significant increase in coping self-efficacy (Wilks' Lambda = 0.90, F (2114) 6.26, P = 0.003) across the three survey time points.…”

Section: Samplementioning

confidence: 99%

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Mothers’ psychological adaptation to Duchenne/Becker muscular dystrophy

et al. 2015

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Duchenne and Becker muscular dystrophy (DBMD) cause significant emotional and care-related burden on caregivers, but no studies have evaluated predictors of positive caregiver outcomes, including disorder-specific psychological adaptation. Using a community-engaged approach focused on supporting mothers in positive aspects of caregiving, this prospective study aims to assess (i) the association between child's baseline functional status and mothers' illness perceptions, resilience, and coping selfefficacy; and (ii) predictors of mothers' psychological adaptation to caring for a child with DBMD. Biological mothers with at least one living child with DBMD completed a baseline survey (n = 205) with 1-year (n = 147) and 2-year (n = 144) follow-up surveys. Worse child's baseline function was associated not only with increased caregiver burden and reduced maternal resilience, but also with perception of positive disease impact on the family. At two follow-ups, increased psychological adaptation to DBMD was predicted by resilience (β = 0.264, P = 0.001) and perceived positive impact (β = 0.310, Po0.001), controlling for mother's age (β = − 0.305, Po0.001) and income (β = − 0.088, P = 0.245). Child's functional status and caregiver burden of DBMD did not predict DBMD-specific adaptation. Though clinicians caring for families with DBMD should anticipate increased caregiver burden as the disorder progresses, interventions focused on caregiver burden are not expected to influence mothers' psychosocial adaptation. Efforts to improve mothers' well-being should focus on fostering mothers' resilience and enhancing perceptions of positive disease impact (benefit finding). Results suggest that psychosocial interventions can highlight strengths and well-being rather than burden and deficit.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Samplementioning

confidence: 99%

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Mothers’ psychological adaptation to Duchenne/Becker muscular dystrophy

et al. 2015

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“…Beliefs about and barriers to screening (eg, 'I do not believe that screening applies to me') were assessed via 16 items, with response options ranging from 1 ('Strongly agree') to 5 ('Strongly disagree'). (6) Carer burden: Carers also completed the 12-item Carer Burden Scale, 18 with scores 417 indicating significant caregiving-related burden. 18 Internal consistency of the scale was 0.87.…”

Section: Data Collectionmentioning

confidence: 99%

Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel–Lindau disease

et al. 2014

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Despite well-established protocols for the medical management of Von Hippel-Lindau disease (VHL), families affected by this rare tumour syndrome continue to face numerous psychological, social, and practical challenges. To our knowledge, this is one of the first qualitative studies to explore the psychosocial difficulties experienced by families affected by VHL. A semi-structured interview was developed to explore patients' and carers' experiences of VHL along several life domains, including: self-identity and self-esteem, interpersonal relationships, education and career opportunities, family communication, physical health and emotional well-being, and supportive care needs. Quantitative measures were also used to examine the prevalence of anxiety, depression, and disease-specific distress in this sample. Participants were recruited via the Hereditary Cancer Clinic at the Prince of Wales Hospital in Sydney, Australia. A total of 23 individual telephone interviews were conducted (15 patients, 8 carers), yielding a response rate of 75%. A diverse range of experiences were reported, including: sustained uncertainty about future tumour development, frustration regarding the need for lifelong medical screening, strained family relationships, difficulties communicating with others about VHL, perceived social isolation and limited career opportunities, financial and care-giving burdens, complex decisions in relation to childbearing, and difficulties accessing expert medical and psychosocial care. Participants also provided examples of psychological growth and resilience, and voiced support for continued efforts to improve supportive care services. More sophisticated systems for connecting VHL patients and their families with holistic, empathic, and person-centred medical and psychosocial care are urgently needed.

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“…The Brazilian version of the Zarit Burden Interview (ZBI) was used to evaluate the burden of the caregiver 21,22 . It was originally developed to assess the caregivers of dependent older adults, but recent studies have used the questionnaire in children and verified good responsiveness and usability 23,24 .…”

Section: Burden Of Caregiversmentioning

confidence: 99%

Is functional dependence of Duchenne muscular dystrophy patients determinant of the quality of life and burden of their caregivers?

Moura

Wutzki

Voos

et al. 2015

Arq. Neuro-Psiquiatr.

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Objective:The relationship between functional dependence and quality of life (QOL) in Duchenne muscular dystrophy (DMD) patients and burden and QOL in caregivers is not clear. This study investigated possible relationships between functional dependence/QOL of DMD patients and QOL/burden of caregivers. Method: This study included 35 boys (6-17 years) and respective caregivers (above 21 years). Caregivers answered to World Health Organization Quality of Life and Zarit Burden Interview questionnaires. Patients were assessed with the Motor Function Measure and the Autoquestionnaire Qualité de vie Enfant Imagé. Spearman correlations and linear regressions were run to investigate relationships between the variables. Results: The occurrence of lower QOL and higher burden among the caregivers of patients with Duchenne muscular dystrophy was evidenced. The functional dependence of patients was not considered a determinant factor. Higher caregivers' burden was related to lower caregivers' QOL and to higher patients' ages.Keywords: Duchenne muscular dystrophy, behavior, quality of life, motor activity. RESUMOObjetivo: A relação entre qualidade de vida e função motora de pacientes com distrofia muscular de Duchenne (DMD) e sobrecarga e qualidade de vida (QV) dos cuidadores não está clara na literatura. Esse estudo investigou possíveis relações entre dependência funcional/ QV de pacientes e sobrecarga/QV dos cuidadores em 35 meninos (6-17 anos) com DMD e respectivos cuidadores (acima de 21 anos). Método: Cada cuidador respondeu ao questionário de QV da Organização Mundial de Saúde e de sobrecarga de Zarit e o paciente foi avaliado com a medida de função motora e o Autoquestionnaire Qualité de vie Enfant Imagé. Correlações de Spearman e regressões lineares investigaram possíveis relações entre as variáveis. Resultados: A ocorrência de menor QV e maior sobrecarga entre cuidadores foi evidenciada, enquanto a dependência funcional dos pacientes não foi considerada fator

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Zarit Burden Interview--Screening Version

Cited by 424 publications

References 0 publications

Mothers’ psychological adaptation to Duchenne/Becker muscular dystrophy

Mothers’ psychological adaptation to Duchenne/Becker muscular dystrophy

Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel–Lindau disease

Is functional dependence of Duchenne muscular dystrophy patients determinant of the quality of life and burden of their caregivers?

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