YouTube as a source of information for narcolepsy: A content‐quality and optimization analysis

Szmuda, Tomasz; Özdemir, Cathrine; Fedorow, Karolina; Ali, Shan; Słoniewski, Paweł

doi:10.1111/jsr.13053

Cited by 38 publications

(50 citation statements)

References 15 publications

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“…10,11 Previous articles regarding the quality of information online using the DISCERN instrument also did not discuss how to rate the videos beforehand. 1,3 In this way, the ratings were truly independent and are not influenced by external influence.…”

Section: Scoring Systemmentioning

confidence: 93%

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YouTube as a source of patient information for Coronavirus Disease (COVID‐19): A content‐quality and audience engagement analysis

Szmuda

Syed

Singh

et al. 2020

Reviews in Medical Virology

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Summary YouTube is the second most popular website in the world and is increasingly being used as a platform for disseminating health information. Our aim was to evaluate the content‐quality and audience engagement of YouTube videos pertaining to the SARS (severe acute respiratory syndrome)‐CoV‐2 virus which causes the Coronavirus Disease 2019 (COVID‐19), during the early phase of the pandemic. We chose the first 30 videos for seven different search phrases: “2019 nCoV,” “SARS CoV‐2,” “COVID‐19 virus,” “coronavirus treatment,” “coronavirus explained,” “what is the coronavirus” and “coronavirus information.” Video contents were evaluated by two independent medical students with more than 5 years of experience using the DISCERN instrument. Qualitative data, quantitative data and upload source for each video was noted for a quality and audience engagement analysis. Out of the total 210 videos, 137 met our inclusion criteria and were evaluated. The mean DISCERN score was 31.33 out of 75 possible points, which indicates that the quality of YouTube videos on COVID‐19 is currently poor. There was excellent reliability between the two raters (intraclass correlation coefficient = 0.96). 55% of the videos discussed prevention, 49% discussed symptoms and 46% discussed the spread of the virus. Most of the videos were uploaded by news channels (50%) and education channels (40%). The quality of YouTube videos on SARS‐CoV‐2 and COVID‐19 is poor, however, we have listed the top‐quality videos in our article as they may be effective tools for patient education during the pandemic.

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Section: Scoring Systemmentioning

confidence: 93%

“…Previous publications have also used this term in reference to these metrics. 1,3 From the descriptive statistics extracted, audience engagement met- 3 | RESULTS…”

Section: Audience Engagementmentioning

confidence: 99%

YouTube as a source of patient information for Coronavirus Disease (COVID‐19): A content‐quality and audience engagement analysis

Szmuda

Syed

Singh

et al. 2020

Reviews in Medical Virology

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show abstract

“…• What is the educational quality of YouTube videos concerning COVID-19? Several studies were published on this topic [14][15][16]. The Google Chrome extension "vidIQ Vision for YouTube" may be used to access additional statistics that are normally not available on the YouTube website and provide the exact numbers of likes, dislikes and the like ratio, as seen on Figure 3.…”

Section: Potential Usesmentioning

confidence: 99%

Datasets and future research suggestions concerning the novel Coronavirus (COVID-19)

Szmuda¹,

Ali²,

Özdemir³

et al. 2020

Eur J Trans Clin Med

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“…The optimization analysis method in this study is similar to a studies previously published. (Szmuda et al 2020a;Szmuda et al 2020b) The average daily views [total views/days since upload], the like ratio [(likes/likes +dislikes)*100] and the video power index (VPI) [(like*100/(like + dislike))*(views/day)/100] were used to assess the audience engagement with a video. Of note, standardized cut-off scores do not exist for the VPI since it depends on the number of likes and views and this is highly variable depending on how popular a video is.…”

Section: Scoring Systemmentioning

confidence: 99%

“…(Madathil et al 2015;Szmuda et al 2020b) While there have been studies regarding the role of YouTube videos disseminating psychoeducation for dementia, schizophrenia and narcolepsy, there are currently no studies pertaining to the quality of videos for bipolar disorder (BD). (Lam et al 2017;Lam and Woo 2020;Szmuda et al 2020a) BD is a mental disorder characterized by shifts in mood and affect ranging from depression to mania. Bipolar I (BP1) is de ned by prolonged periods of mania and depression, often requiring hospitalization.…”

Section: Introductionmentioning

confidence: 99%

YouTube as a Source of Patient Information for Bipolar Disorder: A Content-Quality and Optimization Analysis

Szmuda¹,

Żydowicz²,

Ali³

et al. 2020

Preprint

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Background YouTube is currently the second most popular website in the world and it is often used by patients to access health information online. Our aim was to evaluate the content-quality of YouTube videos relating to bipolar disorder. Methods We chose the first 30 videos for four different search phrases: ”bipolar disorder,” ”bipolar disorder treatment,” ”bipolar disorder symptoms” and ”manic depression.” Video contents were evaluated by two independent final year medical students using the validated DISCERN instrument. Qualitative data, quantitative data and the upload source was recorded for analysis. Results Out of the total 120 videos, 80 videos met our inclusion criteria and were evaluated. The mean DISCERN score was 63.5 (out of 75 possible points). This indicates that the quality of YouTube videos on bipolar disorder is excellent. Reliability between the two raters was excellent (intraclass correlation coefficient = 0.96). Nearly all videos had symptoms of the disorder (100%) and the impact of the disorder on daily life (98.8%). Videos were mostly uploaded by educational channels (61.3%) and hospitals (16.3%). Videos that had a doctor speaker had a significantly higher average daily views, comments and a video power index (P<0.05). Conclusions The quality of YouTube videos on bipolar disorder is good. We have included a list of the top-quality videos in our paper as they may be used by patients and physicians as a reference to find the most reliable videos for patient education. Having a doctor speaker in a video optimizes a video for higher audience engagement.

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YouTube as a source of information for narcolepsy: A content‐quality and optimization analysis

Cited by 38 publications

References 15 publications

YouTube as a source of patient information for Coronavirus Disease (COVID‐19): A content‐quality and audience engagement analysis

YouTube as a source of patient information for Coronavirus Disease (COVID‐19): A content‐quality and audience engagement analysis

Datasets and future research suggestions concerning the novel Coronavirus (COVID-19)

YouTube as a Source of Patient Information for Bipolar Disorder: A Content-Quality and Optimization Analysis

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