YouTube™ as a source of information for patients undergoing laryngectomy: a thematic analysis

Malik, Tariq; Heywood, Emily; O'Connor, Therese C.; Baker, D.; Marshall, J.; Beasley, Nigel

doi:10.1007/s00405-019-05590-7

Cited by 14 publications

(19 citation statements)

References 24 publications

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“…1). Papers originated in the USA (n = 6) [12,31,[33][34][35], UK (n = 3) [36][37][38], Europe (n = 2) [39,40], Canada (n = 1) [41] and a collaborative study (n = 1) [42]. Most of the included studies focused on the process of intervention development and testing (n = 8) [12, 34, 35, 38-40, 42, 43], whereas five studies determined the quality of patient information within the web-based interventions (n = 5) [31,33,36,37,41].…”

Section: Range Of Studiesmentioning

confidence: 99%

“…Papers originated in the USA (n = 6) [12,31,[33][34][35], UK (n = 3) [36][37][38], Europe (n = 2) [39,40], Canada (n = 1) [41] and a collaborative study (n = 1) [42]. Most of the included studies focused on the process of intervention development and testing (n = 8) [12, 34, 35, 38-40, 42, 43], whereas five studies determined the quality of patient information within the web-based interventions (n = 5) [31,33,36,37,41]. The majority of the web-based interventions focused solely on the post-treatment component of the treatment trajectory, ranging from exercise programmes [34], rehabilitation programmes [39] to self-management and survivorship initiatives [12,35,40,42].…”

Section: Range Of Studiesmentioning

confidence: 99%

“…One was remote monitoring of symptoms, namely dehydration risk during treatment [43], and one focused solely on the pre-treatment period [38]. Some studies that focused on online intervention development assessed e-literacy and readability [31,36], alongside information needs and preferences [41], while others explored HNC patients' use of online resources such as You-Tube™ [37] and online cancer networks [33].…”

Section: Range Of Studiesmentioning

confidence: 99%

“…Studies focusing on web-based development [12,35,42] or adaption of current interventions [34] used a range of research designs including qualitative [12], quantitative methods [36,37] to include surveys [33,41], randomised controlled trial [40]; and mixed methods for a feasibility study [43].…”

Section: Range Of Studiesmentioning

confidence: 99%

“…Participant sample size within studies focusing on intervention development or evaluation ranged from 14 [38] to 4295 [33]. Studies providing a review of HNC web-based resources, ranged in number of those being reviewed from 3 [36] to 27 [31] to 96 online videos [37]. Within this scoping review, six studies focused purely on patients [33-35, 40, 41, 43]; one focused on both patients and family carers [12] and three on patients and healthcare professionals [38,39,42].…”

Section: Range Of Studiesmentioning

confidence: 99%

See 4 more Smart Citations

Availability and use of web-based interventions for patients with head and neck cancer: a scoping review

Kelly¹,

Gordon²,

Thompson³

et al. 2022

J Cancer Surviv

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Purpose To identify and review the nature, scope and use of web-based interventions for patients with head and neck cancer (HNC). Method A scoping review guided by the methodological framework described by the Joanna Briggs Institute was performed to review empirical studies and websites. Seven electronic databases (CINAHL, Medline, Scopus, Embase, Cochrane, PubMed and PsycInfo) were searched from 2010 to 2020, data extracted and synthesised using thematic analysis. The Google search engine was employed, identifying the first 100 websites, using the search term head and neck cancer. Websites meeting eligibility criteria were assessed using the QUEST analysis tool, and descriptively summarised. Results Thirteen empirical studies and 32 websites were included. As identified by empirical studies, web-based interventions were developed to provide (1) patient information on HNC and related treatments, (2) advice and support during treatment and (3) management strategies promoting adjustment to life with and beyond HNC. The reviewed websites provided minimal information to aid shared decision-making and facilitate preparedness for treatment, with few utilising patient narratives. Web-based interventions for HNC patients were mainly text based and focused on survivorship. Conclusions There is a paucity of theory-based, co-designed web-based interventions using patient narratives. Implications for Cancer Survivors As patients increasingly look to the internet for advice and support, healthcare professionals are in a position to provide high-quality web-based interventions. There is an opportunity to rigorously develop a web-based intervention, containing narratives of peoples’ lives before and after HNC treatment, aiding decision-making, preparedness for treatment and self-management.

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Section: Range Of Studiesmentioning

confidence: 99%

Section: Range Of Studiesmentioning

confidence: 99%

Section: Range Of Studiesmentioning

confidence: 99%

Section: Range Of Studiesmentioning

confidence: 99%

Section: Range Of Studiesmentioning

confidence: 99%

See 3 more Smart Citations

Availability and use of web-based interventions for patients with head and neck cancer: a scoping review

Kelly¹,

Gordon²,

Thompson³

et al. 2022

J Cancer Surviv

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Social Media Utilization in Otolaryngology: A Scoping Review

et al. 2023

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ObjectiveSocial media (SM) is an increasingly popular medium for the medical community to engage with patients, trainees, and colleagues. This review aimed to identify reported uses of SM in otolaryngology‐head and neck surgery (OHNS), assess the quality of evidence supporting these uses, and identify gaps in the literature. With the relative lack of regulatory guidelines for the development of SM content, we hypothesized that the quality of content available on SM would be highly variable.Data Sources and MethodsA scoping review was performed of English‐language peer‐reviewed studies published to date discussing SM use in any form within OHNS. Three reviewers independently screened all abstracts. Two reviewers independently extracted data of interest from the full text of articles identified from the preliminary abstract screen.Results171 studies were included, with 94 (54.9%) studies published between 2020 and 2022. 104 (60.8%) studies were conducted in the US. 135 (78.9%) used cross‐sectional or survey‐based methodology; only 7 (4.1%) were controlled studies. SM was most commonly employed for professional networking (n = 37 [21%]), and within subspecialties of otology (n = 38 [22%]) and rhinology/allergy (n = 25 [15%]). Facebook was most frequently used for study recruitment (n = 23 [13.5%]), YouTube for patient education (n = 15 [14.6%]), and Twitter for professional networking (n = 16 [9.4%]).ConclusionSM use within OHNS is increasing rapidly, with applications including patient education, professional networking, and study recruitment. Despite myriad articles, there remains a paucity of well‐controlled studies. As SM becomes integrated into healthcare, particularly for applications directly impacting patient care, higher levels of evidence are needed to understand its true impact. Laryngoscope, 133:2447–2456, 2023

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Online Searches Related to Total Laryngectomy

Miller

Meyer

et al. 2023

The Laryngoscope

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ObjectiveTo identify the most frequently asked questions regarding “laryngectomy” through an assessment of online search data.MethodsGoogle Search data based on the search term “laryngectomy” were analyzed using Google Trends and Search Response. The most common People Also Ask (PAA) questions were identified and classified by the concept. Each website linked to its respective PAA question was rated for understandability, ease of reading, and reading grade level.ResultsSearch popularity for the term “laryngectomy” remained stable between 2017 and 2022. The most popular PAA themes were post‐laryngectomy speech, laryngectomy comparison to tracheostomy, stoma and stoma care, survival/recurrence, and post‐laryngectomy eating. Of the 32 websites linked to the top 50 PAA's, eleven (34%) were at or below an 8th grade reading level.ConclusionPost‐laryngectomy speech, eating, survival, the stoma, and the difference between laryngectomy and tracheostomy are the most common topics searched online in relation to “laryngectomy.” These are important areas for both patient and healthcare provider education.Level of EvidenceN/A Laryngoscope, 2023

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YouTube™ as a source of information for patients undergoing laryngectomy: a thematic analysis

Cited by 14 publications

References 24 publications

Availability and use of web-based interventions for patients with head and neck cancer: a scoping review

Availability and use of web-based interventions for patients with head and neck cancer: a scoping review

Social Media Utilization in Otolaryngology: A Scoping Review

Online Searches Related to Total Laryngectomy

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