YouTube as a Patient-Information Source for Cleft Lip and Palate

Abstract

Objective: The aim of the present study was to evaluate the content and quality of the popular videos on YouTubeTM about the treatment of cleft lip and palate. Design: Retrospective, YouTubeTM video analysis. Methods: The 3 keywords “cleft lip and palate surgery,” “cleft lip and palate treatment,” and “cleft lip and palate repair” were searched on YouTubeTM. After sorted by view-count, final 50 videos were analyzed for general characteristics, primary purpose, information content, relevance, audiovisual quality, and also viewers’ interaction index, and viewing rate formulas were calculated for each video. Kruskal Wallis and one-way analysis of variance tests were used to compare the video parameters between good, moderate, and poor information content videos. Results: The viewing rate was significantly higher in good content videos ( P = .003). Most of the videos were uploaded by a clinic (32%), a surgeon (20%), or individuals (22%) who shared their own experience. Most of the videos (54.00%) were classified as moderate general information content and 26.00% were rated as poor, and 20.00% were rated as good. Videos generally involved patient information (60.00%), followed by patient parent’s experience (14.00%), and cleft lip and palate surgery (12.00%). The average viewers’ interaction index of all evaluated YouTubeTM videos was 0.36. Conclusions: Although most of the videos were rated as moderate regarding the sufficiency of the information, the results of this study showed that YouTubeTM could still not be considered as a fully reliable source of information for patients on treatment of cleft lip and palate.

Cleft Lip and Palate YouTube Videos: Content Usefulness and Sentiment Analysis

“…The most mentioned topics were defining terms, treatment information for CLP, and prenatal diagnosis information. Similarly, Korkmaz & Buyuk (2019) found that treatment procedures were frequently mentioned in the 50 most viewed YouTube videos. The frequency of videos covering prenatal diagnosis may reflect the need for information by parents who have received a prenatal diagnosis for their child as well as the growing prevalence and accuracy of prenatal diagnostic screening (Maarse et al, 2010).…”

“…Although two-thirds of the videos were found to be moderately or very useful, no statistically significant associations were detected between the audio-visual quality of the video, viewing rate, interaction index, or the source of video and usefulness scores. It has been previously reported that videos with higher audio-visual quality were more frequently watched (Korkmaz & Buyuk, 2019). Variation in results may be due to different research time frames and video selection criteria.…”

“…Variation in results may be due to different research time frames and video selection criteria. In some studies, the first 3 pages of videos were evaluated when determining which videos to analyze from YouTube (Hegarty et al, 2017; Korkmaz & Buyuk, 2019). In our study, the sample size was determined by power analysis and included a larger number of videos.…”

The benefit of “Youtube” in teaching Oral- and Maxillofacial Surgery in dental students

“…The use of Youtube as a source for the information of patients about dental and maxillofacial procedures is described for the subjects of orthodontics, wisdom teeth removal, tooth pain, impacted canine and cleft palate procedures, and others. [15][16][17][18][19] However, the contradictory results were critically discussed. Kilinc et al complain the lack of a peer review with the potential of misinformation of the public.…”

Online Cleft Educational Videos: Parent Preferences

“…Previous studies have relied on modified preexisting quality assessment tools or subjective checklists devised from relevant guidelines, or expert opinion (Garg et al, 2015; Elkarmi et al, 2016; Korkmaz and Buyuk, 2020), but this fails to consider parent or patient perspectives, the main users of these resources (van den Bosch et al, 2016). A recent study evaluating patient information about cleft lip and palate on YouTube using expert opinion (Korkmaz and Buyuk, 2020) revealed that the majority of videos contained a moderate amount of information content. In contrast, our study, using the information needs as defined by parents, found a lower number of videos meeting these standards (Figure 2).…”