Young persons with visual impairment: Challenges of participation

Salminen, Airi; Karhula, Maarit

doi:10.3109/11038128.2014.899622

Cited by 35 publications

(35 citation statements)

References 19 publications

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“…Młodzież szkolna i uniwersytecka jest szczególnie wrażliwa na wygląd i niechętnie sięga po narzędzia, które mogą ją dodatkowo stygmatyzować (Salminen, Karhula 2014). O samym aspekcie estetycznym będzie mowa później.…”

Section: Cechy Rozwiązań Technologicznych Wspierające Uczestnictwo Wunclassified

Rola technologii wspomagających w funkcjonowaniu społecznym uczniów z niepełnosprawnością wzroku w kontekście edukacji włączającej

Wiazowski¹

2017

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Streszczenie: Technologie wspomagające w edukacji dzieci i młodzieży z niepełnospraw-nością wzroku stają się coraz powszechniejsze. Pomimo ograniczonych danych na temat ich efektywności, w literaturze można znaleźć informacje, że pozytywnie oddziałują na dostęp do informacji. Odpowiednio dobrane i zaimplementowane rozwiązania mają jednak szersze znaczenie, wykraczające poza dostęp do materiałów edukacyjnych. Mogą one wzbogacić integrację społeczną, umożliwiając wszystkim zainteresowanym interakcję w formalnych i nieformalnych sytuacjach komunikacyjnych.

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Section: Cechy Rozwiązań Technologicznych Wspierające Uczestnictwo Wunclassified

Rola technologii wspomagających w funkcjonowaniu społecznym uczniów z niepełnosprawnością wzroku w kontekście edukacji włączającej

Wiazowski¹

2017

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“…As children age, visual impairment can increase the risk of social exclusion or low community participation. 30 Children with OCA2 may experience a harder transition to independence because of either a lack of assistive technology or overbearing parents. 30 Because of the desire for acceptance, those with mild impairments may try to manage without assistive devices, with resultant poorer school performance.…”

Section: Psychosocial Concernsmentioning

confidence: 99%

“…30 Children with OCA2 may experience a harder transition to independence because of either a lack of assistive technology or overbearing parents. 30 Because of the desire for acceptance, those with mild impairments may try to manage without assistive devices, with resultant poorer school performance. Although children may experience frustration and have difficulty relating to peers, parents reported they have fear of others ostracizing their child while also conveying hope for the future.…”

Section: Psychosocial Concernsmentioning

confidence: 99%

Unseen Impairment: Pediatric Primary Care Management of Oculocutaneous Albinism 2

Kronick¹,

John²

2016

The Journal for Nurse Practitioners

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Oculocutaneous albinism type 2 (OCA2), an autosomal recessive mutation of the OCA2 gene on chromosome 15, results in ocular and dermatologic manifestations. In primary care, nurse practitioners must detect the condition, refer to specialists, provide psychosocial support, refer to community resources, and coordinate care for children with this disorder. This article discusses the pathophysiology, epidemiology, and differential diagnosis of OCA2 as well as a discussion of the clinical implications and nurse practitioner management of the condition. The unique psychosocial effects of having the OCA2 mutation are less frequently explored in the current literature and are highlighted in this article.

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“…Having a disability can limit participation in daily living activities and reduce participation in social activities [1][2][3]. In particular, young people with a visual impairment face challenges with establishing and maintaining relationships, performing group leisure and physical activities, and building successful school and work careers [4][5][6][7][8][9][10][11][12]. These forms of social participation are vital to successfully completing social developmental tasks on time and contribute to health, psychological wellbeing, and quality of life [13,14].…”

Section: Introductionmentioning

confidence: 99%

Improving social participation of adolescents with a visual impairment with community-based mentoring: results from a randomized controlled trial

Heppe

Willemen

Kef

et al. 2019

Disability and Rehabilitation

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Purpose: The efficacy of a community-based mentoring program for adolescents with a visual impairment vs. care-as-usual was tested on social participation including satisfaction with social support. Materials and methods: Adolescents (15-22 years; 46% boys) were randomized to an intervention group with mentors with visual impairment (N ¼ 25), an intervention group with mentors without visual impairment (N ¼ 26), or care-as-usual (N ¼ 25). One-on-one mentoring activities regarded school/work, leisure activities, and social relationships. Results and conclusions: Multilevel growth modelling revealed no effect of mentoring on changes in social participation compared to the care-as-usual group (participation [95% CI-0.30, 0.21, d ¼ 0.1]; social participation composite [95% CI-0.24, 0.26, d ¼ 0.24]). Mentees matched to mentors with visual impairments increased more on satisfaction with their social support compared to mentees matched to mentors without impairments and the care-as-usual group [95% CI 0.02, 0.49, d ¼ 0.38]. Age, characteristics of the impairment, and number of match meetings were not associated with change in social participation during the mentoring program. This evaluation showed no benefit of mentoring for social participation of adolescents with a visual impairment. The value of mentors and mentees sharing the same disability needs further investigation. This trial is registered in the Netherlands Trial Register NTR4768. ä IMPLICATIONS FOR REHABILITATION A community-based mentoring program resulted in no benefits for adolescents with a visual impairment on their social participation. A community-based mentoring program should not replace care-as-usual provided to young people with a visual impairment in the Netherlands. It could only be thought of as an additional service within rehabilitation. Matching mentees and mentors based on sharing the same disability could strengthen the effect of a community-based mentoring program. However, these benefits are rather small. Providing additional support for the social participation of young people with a visual impairment might be especially helpful for those with a progressive impairment and with comorbid problems.

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Young persons with visual impairment: Challenges of participation

Cited by 35 publications

References 19 publications

Rola technologii wspomagających w funkcjonowaniu społecznym uczniów z niepełnosprawnością wzroku w kontekście edukacji włączającej

Rola technologii wspomagających w funkcjonowaniu społecznym uczniów z niepełnosprawnością wzroku w kontekście edukacji włączającej

Unseen Impairment: Pediatric Primary Care Management of Oculocutaneous Albinism 2

Improving social participation of adolescents with a visual impairment with community-based mentoring: results from a randomized controlled trial

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