Young Carers in Australia:Understanding the Advantages and Disadvantages of Their Care Giving

Cass, Bettina; Smyth, Ciara; Hill, Trish; Blaxland, Megan; Hamilton, Myra

doi:10.2139/ssrn.1703262

Cited by 56 publications

(86 citation statements)

References 52 publications

(55 reference statements)

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“…In our introduction we mention that the identification of young carers is challenging due to self‐identification barriers (Cass and others, ; Noble‐Carr and Woodman, ). In this study, we have used an approach that we believe overcomes this barrier.…”

Section: Limitations and Strengthsmentioning

confidence: 99%

“…Research on these young people is challenging because they often do not recognise themselves as caring relatives or identify themselves as such (Cass and others, ; Noble‐Carr and Woodman, ). This lack of self‐identification combined with a low level of awareness among professionals from healthcare, education and social services (Leu and others, 2018) is one of the reasons for a lack of sustainable policies and intervention strategies (Leu and Becker, ), and such is the case in Switzerland.…”

Section: Introductionmentioning

confidence: 99%

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Counting Young Carers in Switzerland – A Study of Prevalence

et al. 2018

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An online survey of children in school grades 4–9 (mostly aged 10–15) was conducted in order to determine the prevalence of young carers in Switzerland using a 2‐stage stratified sampling approach. 4082 respondents were drawn from 230 schools. A total of 3991 respondents were included in the analysis and of these 307 (7.7%) were identified as young carers. The population estimate of prevalence was 7.9 per cent. This suggests that there are around 38 400 young carers in school grades 4–9 in Switzerland. Extrapolating to the 9–16 age group gives a figure of almost 51 500.

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Section: Limitations and Strengthsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Counting Young Carers in Switzerland – A Study of Prevalence

et al. 2018

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“…Young carers are exposed to increased stress as a result of their caring role and have a heightened risk for mental health issues (Cass et al ). In a study sampling 61 young carers in the UK, the majority of participants reported regularly worrying about the physical health of the person they cared for (83%), the patient's behaviour (58%) and who would take care of them in the future (53%) (Cree ).…”

Section: Young Carers' Psychosocial Well‐beingmentioning

confidence: 99%

“…In this same study, 34% of the young carers reported self‐harm and 36% had experienced suicidal ideation. In an Australian population‐based survey, young carers (aged 15 to 24; n = 96) indicated significantly poorer mental health than non‐carers, (Cass et al ). These concerning statistics seem consistent with qualitative data suggesting young carers commonly experience an ongoing sense of burden and stress (Bolas et al ).…”

Section: Young Carers' Psychosocial Well‐beingmentioning

confidence: 99%

A qualitative evaluation of an innovative resilience‐building camp for young carers

Cunningham

Shochet

Smith

et al. 2016

Child & Family Social Work

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Young carers are at increased risk of developing mental health and social problems. The objective was to pilot a camp‐based resilience‐building programme for young carers. Twelve young carers (12 to 14 years) recruited from Carers Queensland attended a 3‐day resilience‐building camp adapted from the Resourceful Adolescent Program. One month after the camp, carers participated in a semi‐structured telephone interview. Thematic analysis was used to analyse the data. Two key themes emerged. The first, coping self‐efficacy, included subthemes of affect regulation, interpersonal skills, and recognition of strengths and coping ability. The second key theme, social benefits, included opportunities for respite and social engagement. Overall, participants reported enjoying the camp and would recommend it to other young carers, yet they were able to provide some suggestions to improve future camps. Implementing an integrative resilience‐building program such as the Resourceful Adolescent Program in a camp format shows promise as a way of both engaging and benefiting young carers, as well as selective populations more generally.

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“…When defining young carers, there are differences among countries concerning the age interval included: in the United States, up to the age of 18 years; the United Kingdom, up to the age of 17 years; and Australia, up to the age of 24 years of age (Cass, Smyth, Hill, Blaxland, & Hamilton, ; Cunningham, Shochet, Smith, & Wurfl, ). In Sweden, no formal definition of young carers exists, therefore we have adopted the definition above mentioned for our study.…”

Section: Introductionmentioning

confidence: 99%

Young carers in Sweden—A pilot study of care activities, view of caring, and psychological well‐being

Berggren

Bergman

Eriksson

et al. 2018

Child & Family Social Work

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Children who have parents with any kind of illness may become young carers who take a responsibility not expected of children for household tasks, or personal or emotional care for parents and siblings. So far, little is known about children in Sweden who are at risk of becoming young carers. The aim of this article is therefore to explore the extent and impact of children's caring activities as reported in a pilot study by a sample of children in Sweden. A number of international questionnaires measuring the amount of caring activities, impact of caring, quality of life, and psychological well‐being were translated and combined into a survey. The pilot survey was completed by 30 children 10–18 years of age. Also, when completing the survey, the children were interviewed concerning their experiences of caregiving. The participants report on a group level emotional symptoms such as fear and nervousness above the clinical cut‐off value. They also rate a lower level of caring compared with findings from the United Kingdom, but they report a higher degree of negative impact of caring than young carers in the United Kingdom.

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Young Carers in Australia:Understanding the Advantages and Disadvantages of Their Care Giving

Cited by 56 publications

References 52 publications

Counting Young Carers in Switzerland – A Study of Prevalence

Counting Young Carers in Switzerland – A Study of Prevalence

A qualitative evaluation of an innovative resilience‐building camp for young carers

Young carers in Sweden—A pilot study of care activities, view of caring, and psychological well‐being

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