Young Caregivers: Positive and Negative Aspects of Caregiving

Hunt, Gail Gibson

doi:10.1037/e606372010-001

Cited by 8 publications

(16 citation statements)

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“…1 Family caregiver support is limited by austerity measures, undervalued care work, 2 and an aging population with health-related needs, 1,3 leading to increased caregiving responsibilities falling on children and adolescents below age 18. 4,5 This study estimates the economic impact of caregiving work provided by adolescents for the family for the first time since 2009. 6 We focus specifically on adolescents ages 10 up to 17 to who provide significant, ongoing care for aging, ill, or disabled family members.…”

Section: Adolescents Provide $13 To $51 Billion Worth Of Informal Fam...mentioning

confidence: 99%

“…An estimated 7.36% to 18.47% of youth under age 18 are caregivers for their families, 5 primarily for parents or grandparents (72%). 4 They manage complicated daily tasks, including bathing, cleaning, feeding, and administering medicine. 7 The number of caregiving youth has increased 250% since 2005, 4 a trend expected to escalate as the adult population ages and the cost of formal caregiving services rises.…”

Section: Adolescents Provide $13 To $51 Billion Worth Of Informal Fam...mentioning

confidence: 99%

“…4 They manage complicated daily tasks, including bathing, cleaning, feeding, and administering medicine. 7 The number of caregiving youth has increased 250% since 2005, 4 a trend expected to escalate as the adult population ages and the cost of formal caregiving services rises. 8 Acknowledging the value and impact of these young caregivers to our economy and communities is critical for crafting effective health, economic, and social welfare policies to support children, families and the health care economy.…”

Section: Adolescents Provide $13 To $51 Billion Worth Of Informal Fam...mentioning

confidence: 99%

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Adolescents Provide $13 to $51 Billion Worth of Informal Family Caregiving Services to the United States Economy

Armstrong-Carter,

Gilbert,

Silfverskiold

et al. 2024

Preprint

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The US is facing a well-documented caregiving crisis, with more aging adults requiring informal caregiving in the home and fewer young people available to support them. This paper calculates the current economic value of care provided by unpaid adolescents (ages 10 to 17) to ill and disabled family members. Leveraging large scale, national datasets, we estimate that the national economic value of informal caregiving provided by adolescents is $13.44 to $50.59 billion. This figure corresponds to 3-14% of the $470 billion value of informal caregiving services provided by adults. It is 1.19 to 5.96 times the most recent estimate of the economic impact of youths’ caregiving from 2009. We also provide state-by-state estimates, which show substantial variability. By demonstrating children’s annual contribution to the US economy, we aim to inform the work of educators and policymakers to design targeted programs to support the thriving of youth, aging and disabled adults, our national economy, and our communities.

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Section: Adolescents Provide $13 To $51 Billion Worth Of Informal Fam...mentioning

confidence: 99%

Section: Adolescents Provide $13 To $51 Billion Worth Of Informal Fam...mentioning

confidence: 99%

Section: Adolescents Provide $13 To $51 Billion Worth Of Informal Fam...mentioning

confidence: 99%

See 1 more Smart Citation

Adolescents Provide $13 to $51 Billion Worth of Informal Family Caregiving Services to the United States Economy

Armstrong-Carter,

Gilbert,

Silfverskiold

et al. 2024

Preprint

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“…These children may choose to enter into the labor force or work additional weeks of the year to help contribute to the family financial resources. Alternatively, they may need to spend less time working in order to focus more on home production such as cooking, cleaning, shopping, or caring for the parent with a disability (Hunt, Levine, & Naiditch, 2005). This time spent working or on additional housework potentially comes at the expense of time spent on educational activities (Kalenkoski & Pabilonia, 2022).…”

Section: Introductionmentioning

confidence: 99%

Employment Among Adolescent Children of SSDI Recipients

Vaughn

2023

Preprint

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I explore the association between parental work-limiting disabilities (WLD) and Social Security Disability Insurance (SSDI) receipt and the labor supply of their adolescent children. Using the 2014-2021 waves of the Survey of Income and Program Participation, I estimate that having a parent who receives SSDI benefits is associated with a 22 percent reduction in the odds that the child worked during the school months of the previous calendar year relative to teens whose parents did not receive benefits. Along the intensive margin, parental SSDI receipt is correlated with a more than 20 percent reduction in total hours worked over the previous year. These effects are almost entirely driven by teenage boys, suggesting a gendered response to parental disability and SSDI benefit receipt. JEL Classification: I38 , J13 , J22

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“…For the purpose of the current research, YCs are identified as children and youth under the age of 25 who provide substantial and consistent unpaid care or support to another family member with a chronic or acute physical or mental health condition, disability or difficulties with substance use 9 10. The reported prevalence of YC internationally varies from 3.2% to 22% 11 12. The wide variation in prevalence is mainly related to differences in YC definitions and associated age ranges, recruitment methods and identification criteria 13.…”

Section: Introductionmentioning

confidence: 99%

Young carers’ perspectives on navigating the healthcare system and co-designing support for their caring roles: a mixed-methods qualitative study

Saragosa,

Hahn-Goldberg,

Lunsky

et al. 2023

BMJ Open

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ObjectivesDespite young carers (YCs) providing regular and significant care that exceeds what would normally be associated with an adult caregiver, we need to learn more about their experience interacting with the healthcare system. The primary study aims were to (1) describe YC experiences in interacting with the healthcare system and (2) identify types of support YC recognise as potentially helpful to their caring role.Design and settingA mixed-methods qualitative study was conducted between March 2022 and August 2022, comprising two phases of (1) semi-structured interviews and focus groups with YCs living in the community to confirm and expand earlier research findings, and (2) a co-design workshop informed by a generative research approach. We used findings from the interviews and focus groups to inform the brainstorming process for identifying potential solutions.ResultsEight YCs completed either a focus group or an interview, and four continued the study and participated in the co-design activity with 12 participants. Phase 1 resulted in three overarching themes: (1) navigating the YC role within the healthcare system; (2) being kept out of the loop; and (3) normalising the transition into caregiving. Phase 2 identified two categories: (1) YC-focused supports and (2) raising awareness and building capacity in the healthcare system.ConclusionStudy findings revealed the critical role that YCs play when supporting their families during pivotal interactions in the healthcare system. Like their older caregiver counterparts, YCs struggle to navigate, coordinate and advocate for their family members while juggling their needs as they transition from adolescence to adulthood. This study provides important preliminary insights into YCs encountering professionals, which can be used to design and implement national support structures.

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Young Caregivers: Positive and Negative Aspects of Caregiving

Cited by 8 publications

References 0 publications

Adolescents Provide $13 to $51 Billion Worth of Informal Family Caregiving Services to the United States Economy

Adolescents Provide $13 to $51 Billion Worth of Informal Family Caregiving Services to the United States Economy

Employment Among Adolescent Children of SSDI Recipients

Young carers’ perspectives on navigating the healthcare system and co-designing support for their caring roles: a mixed-methods qualitative study

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