Young Adult Caregivers: A First Look at an Unstudied Population

Levine, Carol; Hunt, Gail Gibson; Halper, Deborah; Hart, Andrea Y.; Lautz, Jessica; Gould, David

doi:10.2105/ajph.2005.067702

Cited by 105 publications

(138 citation statements)

References 6 publications

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“…The distribution of ages reflects broader caregiving literature that no age is exempt from taking on these tasks, even end-of-life care (Aldridge and Becker 1993, 1999; Levine et al 2005). The range of respondents’ ages justifies asking people as young as 15 years of age about their participation in caregiving.…”

Section: Discussionmentioning

confidence: 94%

Caregivers for people with end-stage lung disease: Characteristics and unmet needs in the whole population

Currow¹,

Ward²,

Clark³

et al. 2008

COPD

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Introduction: End-stage lung disease (ESLD) (predominantly caused by chronic obstructive pulmonary disease and restrictive lung disease) is a signifi cant cause of death. Little is known about community care for people with ESLD especially in the period leading to death. This paper describes demographic characteristics of caregivers, and key characteristics of the deceased irrespective of specialist service utilization. Methods: The South Australian Health Omnibus is an annual, random, face-to-face, cross-sectional survey conducted statewide. For the last eight years questions about end of life have been asked of 3000 respondents annually (participation rate 77.9%). Directly standardized to the whole population, this study describes people who cared for someone with ESLD until death. Results: One third (6370/18267) had someone die in the last fi ve years from a terminal illness, 644 from ESLD (3.5% of respondents; 10.2% of deaths). One in fi ve (20.8%) provided physical care: 43 respondents provided day-to-day and 63 provided intermittent hands-on care for an average of 40.1 months (SD 56.9). Caregivers were on average 51.2 years old (range 17-85; SD 16.5) and one in fi ve was a spouse. Additional support to provide physical care was an unmet need by 17% of caregivers. The deceased were an average of 73.9 years old (range 47-92; SD 10.4). Only 31.1% were assessed as 'comfortable' or 'very comfortable' in the last fortnight of life. Discussion: Given the health consequences of caregiving, caregivers of people with ESLD would benefi t from prospectively defi ning their needs given the time for which intense caregiving is provided.

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Section: Discussionmentioning

confidence: 94%

Caregivers for people with end-stage lung disease: Characteristics and unmet needs in the whole population

Currow¹,

Ward²,

Clark³

et al. 2008

COPD

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“…Research shows that young adults are similarly affected by parental illness/disability and associated caregiving demands (e.g. Levine et al, 2005).…”

Section: Methodsmentioning

confidence: 99%

Youth adjustment to parental illness or disability: The role of illness characteristics, caregiving, and attachment

Ireland

Pakenham

2010

Psychology, Health & Medicine

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This study aimed to (1) examine relations between youth adjustment and three sets of predictors: parental illness/disability characteristics, caregiving, and parent-child attachment, and (2) explore differences on these variables between youths of parental physical illness/disability and youths of parental mental illness. Eighty-one youths between 10 and 25 years of a parent with a physical illness/disability (35%) or a mental illness (43%) completed a series of self-report measures assessing perceived characteristics of the parent's illness/disability, caregiving experiences, and adjustment outcomes. Results revealed a set of predictors of poorer youth adjustment: gradual illness/disability onset, being male, isolation, lower perceived maturity, and less choice in caregiving. Youths of parental mental illness differed from youths of parental physical illness/disability on emotional distress (worry and discomfort) dimensions of caregiving. Youth-parent attachment security was associated with youth caregiving and there was a trend for attachment to vary according to parental illness/disability type. Findings highlight young caregiving as an important target for service and policy planning.

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“…For example, the proportion of spousal caregivers aged 75 or older increased from 38.2% in 1989 to 47.4% in 1999 (Wolff & Kasper, 2006). There is a growing awareness of the challenges experienced by young adult (Levine et al, 2005) and grandparent caregivers (Kolomer, 2008), caregivers who provide assistance from long distances (Bevan & Sparks, 2011), and caregivers who are responsible for providing complex, medically oriented care (Reinhard, Levine, & Samis, 2012). Available data and sampling strategies in national surveys preclude a comprehensive understanding of caregiving within the context of acute-onset illnesses or transitional care, for brief periods of time, at the end of life, or within the context of institutional LTC.…”

Section: The Family Caregiver Workforce: Size Composition and Scopementioning

confidence: 99%

Chronic Illness Trends and the Challenges to Family Caregivers

Wolff

Jacobs

2015

Family Caregiving in the New Normal

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Young Adult Caregivers: A First Look at an Unstudied Population

Cited by 105 publications

References 6 publications

Caregivers for people with end-stage lung disease: Characteristics and unmet needs in the whole population

Caregivers for people with end-stage lung disease: Characteristics and unmet needs in the whole population

Youth adjustment to parental illness or disability: The role of illness characteristics, caregiving, and attachment

Chronic Illness Trends and the Challenges to Family Caregivers

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