"You Have to Have Tough Skin": The Impact of Social Exclusion on Immigrant Mothers of Children with Disabilities

Abstract

This exploratory research considers the way gender, racialized ethnicity, and disability, as markers of difference, contribute to the social exclusion experienced by immigrant mothers as primary caregivers of child(ren) with a disability. Interviews were held with eight immigrant mothers in the Greater Toronto Area exploring barriers to accessing informal, formal networks of support, and the resulting impact on their lives. The findings include a lack of ethno-specific and extended family support as well as a lack of accessible, transparent government, social service information, and service provision. Other issues concern language, equity and access to services, impact on personal health, caregiving for aging parents, and future concerns for their children’s short and long-term welfare. Recommendations are based on a social inclusion framework of principles, which are relevant to policy makers, service providers, educators, and members of society.

Left behind: newcomer children with disabilities and their families

“…Proclaimed by the United Nations, this day aligns with the promise of the 2030 Agenda for Sustainable Development to leave no one behind and uphold the rights of all disabled persons ( 1 ). However, disabled newcomers in Canada, and parents of children with disabilities, which include refugees and newly settled immigrants, are continually left behind and repeatedly excluded from disability-related policies and disability-specific services ( 2 ).…”