“You Have No Idea How Much ‘Just Get the Shot’ Is Triggering Me”: Experiences of COVID-19 Vaccination in Individuals with Psychosis and Schizophrenia

Abstract

The COVID-19 pandemic has presented those with experience of psychosis with a number of additional challenges. In the present study, we extend previous literature on this subject to explore experiences of COVID-19 vaccination in those with psychosis or schizophrenia. We analysed 38 posts from three popular Reddit sites for individuals with experiences of psychosis and schizophrenia. We employed reflexive, inductive thematic analysis and identified the following two themes: (i) facilitators for COVID-19 vaccination uptake, and (ii) barriers to COVID-19 vaccination uptake. The facilitators consisted of (i) trust in science/fact-checking, (ii) fear of the virus/vulnerable status/personal experience, (iii) help from trusted people, (iv) others becoming vaccinated, (v) rationalising fears/paranoia, and (vi) moral decision/contact with vulnerable people. The barriers consisted of (i) lack of trust (in doctors, government, science), (ii) psychosis about things inserted into the body/fear of adverse reactions, and (iii) and increased paranoia because of the coercive tone of discussions around the vaccination. It is clear that public health guidance can be problematic for individuals who have lived experience of psychosis. We recommend employing experts by experience in the design of public health campaigns that aim to reduce the fear around COVID-19 vaccinations.

The complex lived experience of schizophrenia diagnosis: A thematic analysis of online forum posts

“…Indeed, telling personal stories is an important aspect of Reddit posting (O'Neill, 2018). Consequently, Reddit has been effectively used to investigate the rst episode of psychosis (Spikol & Murphy, 2019), and experiences of the COVID-19 pandemic in individuals who identify as having psychosis/schizophrenia (Lyons et al, 2021;Lyons & Brewer, 2023). The current study aims to expand our understanding of the lived experience of schizophrenia diagnosis, utilising an inductive thematic analysis of these online forum posts.…”