‘You don't show everyone your weakness’: Older adults' views on using Family Group Conferencing to regain control and autonomy

Metze, Rosalie; Kwekkeboom, Rick; Abma, Tineke

doi:10.1016/j.jaging.2015.04.003

Cited by 17 publications

(8 citation statements)

References 24 publications

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“…The home becomes a workplace in which care and services are provided. Other aspects of being exposed are shown by Metze, Kwekkeboom, and Abma (2015) and Lloyd, Calnan, Cameron, Seymour, and Smith (2014). They reported that older people feel embarrassed about asking others for help after they have lived independently, which complies with the results of the present study.…”

Section: Discussionsupporting

confidence: 90%

Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities

Jarling

Rydström

Bravell

et al. 2018

Int J Older People Nursing

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Section: Discussionsupporting

confidence: 90%

Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities

Jarling

Rydström

Bravell

et al. 2018

Int J Older People Nursing

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“…Some of these reasons resemble barriers found in previous studies in adult healthcare and welfare, such as the concern over being a burden (Metze et al, 2015b, 2019) and shame and fear of rejection (de Jong & Schout, 2013a, 2013b; de Jong, Schout, & Abma, 2015; de Jong, Schout, Pennell, et al, 2015; de Jong et al, 2018; Meijer et al, 2019; Metze et al, 2015a, 2015b; Schout et al, 2017; Schout & de Jong, 2017). The reluctance to ask for (more) support confirms prior research on the principle of reciprocity (Mauss, 2002) in public mental healthcare, general social welfare and elderly social welfare (Bredewold et al, 2016; de Jong, Schout, & Abma, 2015; de Jong, Schout, Pennell, et al, 2015; Malmberg‐Heimonen & Johansen, 2014; Metze et al, 2015a, 2015b). As in other contexts, couples in rehabilitation care also consider reciprocity as the basis for interpersonal relationships and fear that asking more support would disturb the fragile balance of give and take in the relationships with the members of their social network.…”

Section: Discussionmentioning

confidence: 53%

‘Let us be’. Social support needs of people with acquired long‐term disabilities and their caregivers in rehabilitation practice in the Netherlands

Hillebregt

Trappenburg

Tonkens

2022

Health Social Care Comm

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In many European countries, including the Netherlands, current care policies encourage 'active citizens' to support each other rather than having individuals rely on paid professional help. Rehabilitation centres also put greater emphasis on social networks assisting adults with acquired long-term disabilities and their caregivers. Often these adults and their caregivers feel insufficiently prepared to cope with the disability in daily life and struggle with community integration. However, little is known about the factors that make vulnerable people accept or decline support from their social networks. We researched the social support needs of persons with acquired disabilities and their caregivers eligible for a family group conference intervention by conducting 19 semi-structured interviews in rehabilitation centres in the Netherlands. A thematic analysis revealed that most couples (15) were reluctant to request (more) support from their social network, even though many of them had a good network to rely on.We identified five reasons for this reluctance: (1) not accustomed asking support, (2) not wanting to be a (bigger) burden, (3) fear of intrusion into one's privacy and independence, (4) fear or problematic motivations such as curiosity or pity and (5) lack of reliability, competence, or comprehension. The main factor seemed to be the lack of reciprocity: couples do not see sufficient options to reciprocate the necessary support. Therefore, before instigating social support-centred interventions such as family group conferences, social care and other health professionals should be aware of any factors causing a sense of reluctance and explore the experiences of an imbalance in reciprocity.

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“…Shared decision‐making, which was developed from the patient–physician dyad, could aid, but developing it to support decision‐making in a care network asks for further research (Groen‐van, ). How to embed elderly persons in this decision‐making demands further research, since they seem resistant towards group conferences in fear of losing control (Metze, Kwekkeboom, & Abma, ). Third actions on contagion were not visible.…”

Section: Discussionmentioning

confidence: 99%

Actions to influence the care network of home‐dwelling elderly people: A qualitative study

Kemper-Koebrugge

Adriaansen

Laurant

et al. 2019

Health Soc Care Community

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Positive impact of care networks of home‐dwelling elderly people may be based on several network mechanisms: navigation to resources, negotiation between participants and contagion of behaviours. Little is known about actions of participants—elderly people, informal caregivers or formal care providers—to activate such mechanisms and generate support. Aim of this study was to identify actions in relation to these network mechanisms. A cross‐sectional qualitative study of 48 interviews with home‐dwelling elderly people, informal caregivers and formal care providers in the eastern parts of the Netherlands was conducted between March and September 2016. A framework analysis on network mechanisms categorised actions. Actions were reviewed by network party and compared between networks to explore relations between actions and networks. Results showed that participants navigated through existing relations to seek support. Actions on negotiation were aimed at ameliorating existing relations. Few examples and no actions on contagion of behaviours were found. Actions seemed driven by incidents and existing relations. Elderly people rarely initiated actions, informal caregivers felt hampered by their position in the network. Consistent patterns of relations between actions and network characteristics did not emerge. We concluded that the full potential of network‐based support of elderly people is probably underused. Particularly promising seem: navigating the neighbourhood for new informal care, using opposite opinions as a catalyst for change and bringing quality of life and dilemma's into dialogue in the network.

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‘You don't show everyone your weakness’: Older adults' views on using Family Group Conferencing to regain control and autonomy

Cited by 17 publications

References 24 publications

Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities

Becoming a guest in your own home: Home care in Sweden from the perspective of older people with multimorbidities

‘Let us be’. Social support needs of people with acquired long‐term disabilities and their caregivers in rehabilitation practice in the Netherlands

Actions to influence the care network of home‐dwelling elderly people: A qualitative study

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