Worth a Thousand Words? Advantages, Challenges and Opportunities in Working with Photovoice as a Qualitative Research Method with Youth and their Families

Woodgate, Roberta Lynn; Zurba, Melanie; Tennent, Pauline

doi:10.17169/fqs-18.1.2659

Cited by 16 publications

(7 citation statements)

References 52 publications

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“…These methodologies provided a creative way for study participants to share their stories and illuminate the human dimensions of health and illness. 33 34 …”

Section: Methodsmentioning

confidence: 99%

“…Each family member was given an opportunity to draw an ecomap at the beginning of their first open-ended interview, a graphical portrayal of social relationships or networks, key events, places or issues. 41 After the first interview, families were given instructions about the photovoice process 33 42 previously used in research with children 33 and adults. 43 After completing the photovoice activity, families participated in a digitally recorded family-group interview (online supplemental appendix 1: Interview Guides-see Photovoice Interview Guide), capturing interactional data or shared realities 44 and contextualising photovoice stories.…”

Section: Data Collectionmentioning

confidence: 99%

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Respite care: qualitative arts-based findings on the perspectives and experiences of families of children and youth with special healthcare needs residing in Manitoba, Canada

et al. 2023

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ObjectivesRespite for families of children and youth with special healthcare needs (CYSHCN) is essential for sustaining a family care environment. Lacking is an understanding of families’ respite experiences who reside in Canada. We sought to understand experiences of the use of respite services by families with CYSHCN with the aim to help improve respite services. This paper reports on the qualitative arts-based findings.DesignQualitative methods including open-ended interviews combined with the arts-based methods of ecomaps and the photovoice process were used. Analysis involved delineating units of meaning from the data, clustering units of meaning to form thematic statements and extracting themes.SettingManitoba, a western Canadian province.ParticipantsThirty-two families (including 38 parents and 13 siblings) of CYSHCN.ResultsWe identified six themes surrounding challenges experienced by families’ in their journeys accessing, acquiring and navigating the respite care system, and sustainment of respite care for their families, leading to familial burn-out and breakdown, financial stress, unemployment and unaddressed mental health struggles. Families provided multipronged recommendations to address these challenges.ConclusionsThrough the lens of Canadian families of children with a range of complex care needs, the qualitative arts-based portion of the study underscores the challenges with accessing, navigating and sustaining respite care, which has implications for CYSHCN, their clinicians and the potential for long-term costs for government and society. This study identifies the state of the current Manitoba respite care system as an issue, presenting actionable recommendations from families that can assist policymakers and clinicians in advocating for and implementing a collaborative, responsive, family-centred system of respite care.

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“…These methodologies provided a creative way for study participants to share their stories and illuminate the human dimensions of health and illness. 33 34 …”

Section: Methodsmentioning

confidence: 99%

Section: Data Collectionmentioning

confidence: 99%

Respite care: qualitative arts-based findings on the perspectives and experiences of families of children and youth with special healthcare needs residing in Manitoba, Canada

et al. 2023

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“…(Handley et al, 2020). Participatory approaches such as Photovoice methods are also valuable as the images participants provide illustrate metaphors for their life situations, experiences, and/or emotions (Woodgate et al, 2017). The verbal interpretations of the images are particularly important for understanding the meaning(s) participants attach to the photos, especially when the images are deeply symbolic .…”

Section: Qualitative Contributionsmentioning

confidence: 99%

Retroductive Theorizing: A Contribution of Critical Realism to Mixed Methods Research

Mukumbang

2021

Journal of Mixed Methods Research

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Mixed methods studies in social sciences are predominantly employed to explore broad, complex, and multifaceted issues and to evaluate policies and interventions. The integration of qualitative and quantitative methods in social sciences most often follows the Peircean pragmatic approach—abductive hypothesis formation followed by deductive and inductive testing/confirmation—with limited theorizing properties. This paper contributes to the field of mixed methods research in social sciences by explicating a two-way interaction process between mixed methods data and [social] theory in a pluralistic inferencing approach espoused by critical realism—retroductive theorizing. The paper further illustrates how through retroductive theorizing, critical realism offers a more epistemologically and ontologically grounded alternative for integrating qualitative and quantitative methods compared to pragmatism.

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“…It has been argued that arts-based methods enable participants to delve into the imaginary, go beyond literal depictions of illness and provide new in-depth perspectives compared to traditional forms of research [28,47,48]. This was particularly true in the current study in relation to the emergence of fears and negative beliefs about NCDs, and the description of symptoms (e.g., diabetic wounds) during the verbalised senses activities.…”

Section: Discussionmentioning

confidence: 76%

“I see salt everywhere”: A qualitative examination of the utility of arts-based participatory workshops to study noncommunicable diseases in Tanzania and Malawi

Bissett

Gray

Abdulla

et al. 2022

PLOS Glob Public Health

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The burden of noncommunicable diseases (NCDs) including hypertension, diabetes, and cancer, is rising in Sub-Saharan African countries like Tanzania and Malawi. This increase reflects complex interactions between diverse social, environmental, biological, and political factors. To intervene successfully, new approaches are therefore needed to understand how local knowledges and attitudes towards common NCDs influence health behaviours. This study compares the utility of using a novel arts-based participatory method and more traditional focus groups to generate new understandings of local knowledges, attitudes, and behaviours towards NCDs and their risk factors. Single-gender arts-based participatory workshops and focus group discussions were conducted with local communities in Tanzania and Malawi. Thematic analysis compared workshop and focus group transcripts for depth of content and researcher-participant hierarchies. In addition, semiotic analysis examined the contribution of photographs of workshop activities to understanding participants’ experiences and beliefs about NCD risk factors. The arts-based participatory workshops produced in-depth, vivid, emotive narratives of participants’ beliefs about NCDs and their impact (e.g., “… it spreads all over your body and kills you—snake’s poison is similar to diabetes poison”), while the focus groups provided more basic accounts (e.g., “diabetes is a fast killer”). The workshops also empowered participants to navigate activities with autonomy, revealing their almost overwhelmingly negative beliefs about NCDs. However, enabling participants to direct the focus of workshop activities led to challenges, including the perpetuation of stigma (e.g., comparing smells associated with diabetes symptoms with sewage). Semiotic analysis of workshop photographs provided little additional insight beyond that gained from the transcripts. Arts-based participatory workshops are promising as a novel method to inform development of culturally relevant approaches to NCD prevention in Tanzania and Malawi. Future research should incorporate more structured opportunities for participant reflection during the workshops to minimise harm from any emerging stigma.

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Worth a Thousand Words? Advantages, Challenges and Opportunities in Working with Photovoice as a Qualitative Research Method with Youth and their Families

Cited by 16 publications

References 52 publications

Respite care: qualitative arts-based findings on the perspectives and experiences of families of children and youth with special healthcare needs residing in Manitoba, Canada

Respite care: qualitative arts-based findings on the perspectives and experiences of families of children and youth with special healthcare needs residing in Manitoba, Canada

Retroductive Theorizing: A Contribution of Critical Realism to Mixed Methods Research

“I see salt everywhere”: A qualitative examination of the utility of arts-based participatory workshops to study noncommunicable diseases in Tanzania and Malawi

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