Worsening of Self-Reported Symptoms Through Suggestive Feedback

Helvoort, Daniël van; Otgaar, Henry

doi:10.1177/2167702619869184

Cited by 3 publications

(1 citation statement)

References 21 publications

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“…First, in observational online research such as the WARN-D study, where participants do not receive the report under supervision, special care must be taken to ensure that participants do not experience potentially harmful consequences from the reports. While assessing clinical constructs such as suicidality does not appear to increase suicidal behavior (DeCou & Schumann, 2018 ), there is less research on providing feedback to participants (especially in online settings), and there is evidence that receiving false information as feedback can lead to a worsening of symptoms (van Helvoort et al, 2020 ). To minimize potential harm, we did not include variables that could be used to infer psychopathological states to avoid iatrogenic effects; this was based on the iterative process for variable selection described in the “ Methods ” section.…”

Section: Discussionmentioning

confidence: 99%

Introducing FRED: Software for Generating Feedback Reports for Ecological Momentary Assessment Data

Rimpler,

Siepe,

Rieble

et al. 2024

Adm Policy Ment Health

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Ecological Momentary Assessment (EMA) is a data collection approach utilizing smartphone applications or wearable devices to gather insights into daily life. EMA has advantages over traditional surveys, such as increasing ecological validity. However, especially prolonged data collection can burden participants by disrupting their everyday activities. Consequently, EMA studies can have comparably high rates of missing data and face problems of compliance. Giving participants access to their data via accessible feedback reports, as seen in citizen science initiatives, may increase participant motivation. Existing frameworks to generate such reports focus on single individuals in clinical settings and do not scale well to large datasets. Here, we introduce FRED (Feedback Reports on EMA Data) to tackle the challenge of providing personalized reports to many participants. FRED is an interactive online tool in which participants can explore their own personalized data reports. We showcase FRED using data from the WARN-D study, where 867 participants were queried for 85 consecutive days with four daily and one weekly survey, resulting in up to 352 observations per participant. FRED includes descriptive statistics, time-series visualizations, and network analyses on selected EMA variables. Participants can access the reports online as part of a Shiny app, developed via the R programming language. We make the code and infrastructure of FRED available in the hope that it will be useful for both research and clinical settings, given that it can be flexibly adapted to the needs of other projects with the goal of generating personalized data reports.

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Section: Discussionmentioning

confidence: 99%

Introducing FRED: Software for Generating Feedback Reports for Ecological Momentary Assessment Data

Rimpler,

Siepe,

Rieble

et al. 2024

Adm Policy Ment Health

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Toward an mHealth App for Early Detection of Relapse in Remitted Depressed Individuals: A Focus Group Study on User Requirements and Concerns (Preprint)

Coenen,

Maerevoet,

Chen

et al. 2024

Preprint

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BACKGROUND Major depressive disorder is often a recurrent condition, with a high risk of relapse for remitted depressed individuals. Early detection of relapse is critical to improve clinical outcomes. mHealth (mobile health) technologies offer new opportunities for real-time monitoring and prevention of relapse, given that user requirements of the target population are effectively implemented. OBJECTIVE This study investigated remitted depressed individuals’ user requirements and concerns for an mHealth app aimed at monitoring depressive symptoms and detecting early signs of relapse through integrating both active ecological momentary assessment (EMA) data and passive data from the user’s smartphone and smartwatch. METHODS Three focus group discussions were conducted with 17 participants who had a history of depression but were in remission at the time of the study. Prior to the focus group, participants had gained some experience with an in-house designed EMA monitoring app, prompting questions regarding their mood multiple times throughout the day. During the focus groups, feedback and insights were gathered into participants’ expectations, requirements, concerns, and attitudes toward a depression monitoring app. A thematic analysis was performed to identify recurring themes and subthemes, shedding light on the desired user experience and functionalities. RESULTS We identified five main themes. Participants highlighted (1) a need for customization settings, particularly in terms of data collection and sharing, and frequency of self-assessments. They also valued (2) positivity in the app’s design through positive reinforcement and journaling features. Additionally, participants emphasized (3) interventions to be the main motivator for adoption and long-term usage. More specifically, they wanted the app to foster self-awareness, self-reflection and insights and to offer support during deteriorations in mental health. Furthermore, participants deemed (4) transparency in data use and machine learning predictions essential for building trust. Participants required these functionalities to bear (5) the user burdens of self-monitoring. Key concerns were for passive monitoring to cause a privacy burden and for active monitoring to raise an emotional burden. CONCLUSIONS Considering the vulnerability of potential users, caution is warranted in the design of an mHealth app for depression relapse prevention. Users’ requirements for customization, positivity, interventions, and transparency must be addressed, while minimizing both the emotional and privacy burden. Carefully balancing these design elements is crucial to ensure adoption and long-term user engagement.

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Esperienze traumatiche e ricordi: implicazioni in campo clinico e legale

Malacrea¹,

Felis²,

Pagani³

et al. 2022

Quaderni Di Psicoterapia Cognitiva

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L'articolo ha l'obiettivo di fare il punto su quanto sappiamo sulla memoria traumatica e sull'eventuale possibilità di alterarla producendo "falsi ricordi", dal punto di vista sia della psicologia clinica che della psicologia giuridica. Negli ultimi anni ci sono state molte pubblicazioni e ricerche su come le esperienze traumatiche sono immagazzinate e codificate in memoria e sulle reazioni post-traumatiche che presentano le persone esposte a situazioni da stress estremo. Questo ha avuto un effetto importante nel campo della psicoterapia e del trattamento dei disturbi post-traumatici, contribuendo alla loro comprensione e dando strumenti utili per la loro risoluzione. Allo stesso tempo, negli anni '90 è nato un movimento opposto, chiamato "false memory syndrome", dove spesso gli psicoterapeuti venivano accusati di produrre falsi ricordi di abusi sessuali nei loro pazienti. Sotto accusa erano finiti metodi come l'ipnosi, le terapie di gruppo, le tecniche di immaginazione guidata o di interpretazione dei sogni: ma in generale sotto accusa era finita l'attività psicoterapeutica in ogni sua forma. Ad oggi il dibattito continua, sollevando dubbi specie sulle psicoterapie mirate alla risoluzione degli esiti post traumatici. L'articolo percorre i vari aspetti di questa diatriba e cerca di fare luce sulla comprensione degli aspetti clinici particolarmente complessi di situazioni traumatiche croniche, rispondendo agli autori che sostengono che la psicoterapia può creare falsi ricordi.

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Worsening of Self-Reported Symptoms Through Suggestive Feedback

Cited by 3 publications

References 21 publications

Introducing FRED: Software for Generating Feedback Reports for Ecological Momentary Assessment Data

Introducing FRED: Software for Generating Feedback Reports for Ecological Momentary Assessment Data

Toward an mHealth App for Early Detection of Relapse in Remitted Depressed Individuals: A Focus Group Study on User Requirements and Concerns (Preprint)

Esperienze traumatiche e ricordi: implicazioni in campo clinico e legale

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