Work-related stigma and disclosure: A daily challenge for people living with HIV

Wagener, Marlies; Opstal, S.E.M. van; Miedema, Harald S.; Gorp, Eric C. M. Van; Roelofs, Pepijn D D M

doi:10.3233/wor-172650

Cited by 10 publications

(5 citation statements)

References 39 publications

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“…The unemployment rate of PLWH is significantly higher, compared to the general population [ 16 , 17 ]. Furthermore, HIV could lead to absenteeism, loss of productivity and skills, and discrimination at work [ 16 – 19 ]. Particularly due to the high morbidity risk after diagnosis, late-presenters might face specific employment-related concerns.…”

Section: Introductionmentioning

confidence: 99%

Late Presentation of HIV Infection in the Netherlands: Reasons for Late Diagnoses and Impact on Vocational Functioning

et al. 2018

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Late diagnosis of HIV remains a major challenge in the HIV epidemic. In Europe, about 50% of all people living with HIV are diagnosed late after infection has occurred. Insight into the reasons for late diagnoses is necessary to increase the number of early diagnoses and optimize treatment options. This qualitative study explored the experiences of 34 late-presenters through in-depth semi-structured interviews. A variety of reasons for late diagnoses emerged from our data and led to a division into four groups, characterized by two dimensions. Regarding vocational functioning, the consequences of late diagnoses were health-related problems prior to and since diagnosis, and problems concealing the HIV status. Healthcare providers should offer HIV tests to groups at risk, and be alert for clinical HIV indicator conditions. It is recommended to increase awareness of HIV transmission routes, symptoms and tests, and the benefits of early testing and early entry to HIV care.

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Section: Introductionmentioning

confidence: 99%

Late Presentation of HIV Infection in the Netherlands: Reasons for Late Diagnoses and Impact on Vocational Functioning

et al. 2018

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“…Stigmatization is an important aspect of disclosure of chronic conditions, and this is often the result of co-worker and employer's lack of knowledge. Stigma after disclosure is a particular problem for certain conditions, such as mental illnesses, HIV/Aids and IBD (Jones, 2011;Peterson, Currey, & Collings, 2011;Wagener, van Opstal, Miedema, van Gorp, & Roelofs, 2017). The difficulty of disclosing certain chronic conditions was described in a review by Brohan et al on factors associated with disclosure of mental health problems in the workplace (Brohan et al, 2012).…”

Section: Discussionmentioning

confidence: 99%

Exploring self-control of workers with a chronic condition: a qualitative synthesis

Bosma

Boot

Maaker

et al. 2019

European Journal of Work and Organizational Psychology

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Working while having a chronic condition can be challenging. Self-control at work could play an important role for workers with a chronic condition in sustainable work participation. The aim of this qualitative synthesis is to profile elements of self-control at work and to gain insight in its exertion, from the perspective of workers with a chronic condition. Four databases were systematically searched for relevant articles from January 2007 to October 2017 (PubMed, PsycINFO, Embase, and CINAHL). Search terms were related to work, seven prevalent chronic conditions, subjective needs to continue working, and qualitative research. The included articles were thematically analyzed using ATLAS.ti. The search yielded 6,445 articles of which 17 studies were included. Four elements of self-control at work for workers with a chronic condition were identified: disclosure, finding a healthy balance, requesting work accommodations and support, and management of symptoms and limitations in the workplace. These elements of self-control at work for workers with a chronic condition are helpful in developing a strategy for occupational health professionals to support these workers in strengthening their selfcontrol and to facilitate sustainable employment.

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“…Studies from Canada, United States and France estimate that 45-65% of working-age PLWH were unemployed, compared to 5-10% in the general public of these countries respectively [17][18][19][20]. This disparity is a likely a result of several barriers to sustaining employment still faced by PLWH including unpredictable periodic disability [21], persistent physical limitations, gaps in employment history and difficulty in navigating social assistance plans [22,23]. Similar findings have been documented in the United States and Australia, outlining barriers to employment including the development of social assistance plans, age, co-morbidities, and experiences of mental health illness [24][25][26].…”

Section: Introductionmentioning

confidence: 99%

A qualitative study of barriers to employment experienced by people living with HIV in Toronto and Ottawa

Perri

Craig-Neil²,

Gaspar

et al. 2021

Int J Equity Health

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Background Effective treatment has extended the life expectancy and reduced disability in people living with HIV (PLWH). However, previous research has found 45–65% of working-age PLWH were unemployed compared to 5–10% in the general public of North America and Europe. We examined the barriers to gaining employment among PLWH. Methods Thirty-five in-depth interviews were conducted in person or over the phone with PLWH living in Toronto or Ottawa. This included PLWH who were unemployed but actively seeking employment, as well as PLWH who had successfully gained employment through an agency that specifically supported PLWH funded by the AIDS Committee of Toronto. Interviews were conducted between February 2019 and March 2020. All interviews were audio-recorded, transcribed and analyzed using thematic analysis. Results The majority of participants were between the ages of 40–55 and identified as male. Participants shared many common barriers when describing their attempts to attain or maintain employment. Although varying in employment status at the time of the study, consistent barriers included experiencing HIV stigma in workplaces, challenges overcoming mental health illnesses, and difficulties in navigating social assistance and unemployment insurance programs when pursuing a return to work. Conclusions PLWH face significant barriers when attempting to engage with employment opportunities. Health providers and organizations can do more to support campaigns to end HIV stigma, to support individuals in pursuing employment, and to advocate for policy change that supports reentry into the workforce for PLHA.

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Work-related stigma and disclosure: A daily challenge for people living with HIV

Cited by 10 publications

References 39 publications

Late Presentation of HIV Infection in the Netherlands: Reasons for Late Diagnoses and Impact on Vocational Functioning

Late Presentation of HIV Infection in the Netherlands: Reasons for Late Diagnoses and Impact on Vocational Functioning

Exploring self-control of workers with a chronic condition: a qualitative synthesis

A qualitative study of barriers to employment experienced by people living with HIV in Toronto and Ottawa

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