Work, gender, and stress in family cancer caregiving

Gaugler, Joseph E.; Given, William C.; Linder, Jeanette; Kataria, Ritesh; Tucker, Galina; Regine, William F.

doi:10.1007/s00520-007-0331-y

Cited by 54 publications

(47 citation statements)

References 39 publications

(50 reference statements)

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“…This group's concerns, motives, and anticipated reactions to testing may mean they would have benefited from additional decision support via contact with a counselor or health care provider or different timing of the intervention as they may have been involved in the care of their relative. 49,50 One of the potential advantages of a web-based protocol would be to offer services to those whose schedules (including their care-giving duties) do not enable them to attend group meetings or other programs. To this end, a web-based testing program could be used to triage individuals based on preference for testing and other behavioral assessments as a means for managing the limited resource of genetics-trained health professionals.…”

Section: Resultsmentioning

confidence: 99%

The feasibility of online genetic testing for lung cancer susceptibility: uptake of a web-based protocol and decision outcomes

O’Neill

White

Sanderson

et al. 2008

Genetics in Medicine

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Purpose: To examine the feasibility of offering genetic susceptibility testing for lung cancer (GSTM1) via the Internet to smokers who were blood relatives of patients with lung cancer. Outcomes include proportion who logged on to the study website to consider testing, made informed decisions to log on and to be tested. Methods: Baseline measures were assessed via telephone survey. Participants could choose to log on to the study website; those who did were offered testing. Informed decisions to log on and to be tested were indicated by concordance between the decision outcome and test-related attitudes and knowledge. Results: Three hundred four relatives completed baseline interviews. One hundred sixteen eligible relatives expressed further interest in receiving information via the web. Fifty-eight logged on and 44 tested. Those logging on expressed greater quit motivation, awareness of cancer genetic testing, and were more likely to be daily Internet users than those who did not log on. Approximately half of the sample made informed decisions to log on and to be tested. Conclusion: Interest in a web-based protocol for genetic susceptibility testing was high. Internet-delivered decision support was as likely as other modalities to yield informed decisions. Some subgroups may need additional support to improve their decision outcomes. Genet Med 2008:10(2):121-130. Key Words: Internet, genetic testing, test uptake, decision making, GSTM1, lung cancerAvailability of genetic susceptibility testing for common diseases is likely to increase as the evidence supporting gene-disease associations continues to grow. 1 There is a good deal of optimism that such testing might be beneficial for motivating individuals to adopt healthy lifestyles. 2 Genetic susceptibility testing for lung cancer has been suggested as a means to motivate smoking cessation. 3 However, a challenge for integrating such testing into smoking cessation or other behavior change interventions is that most of these interventions are self-directed, low intensity, and obliged to be low in cost to maximize dissemination. 4 Before any such integration, the feasibility of offering genetic susceptibility testing and conveying risk feedback, via alternate, user-friendly, self-directed delivery models, such as the Internet, must be assessed. 5 To our knowledge, no studies to date have offered genetic susceptibility testing using solely a web-based format. This is despite the fact that 75% of Americans use the Internet on a regular basis, and the impact of Internet applications on physician-patient communication and health care delivery continues to expand. 6 -8 Though no studies have examined delivery of genetic test results via the Internet, research to date supports the examination of alternate delivery models in some settings. For example, one trial delivered genetic susceptibility testing for alpha-1 antitrypsin deficiency, a smoking-linked form of emphysema, via the mail to unaffected individuals with some success. 9,10 Results of another trial, in which ...

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Section: Resultsmentioning

confidence: 99%

The feasibility of online genetic testing for lung cancer susceptibility: uptake of a web-based protocol and decision outcomes

O’Neill

White

Sanderson

et al. 2008

Genetics in Medicine

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“…The impact of the illness on the caregiver is related to the amount of time required to perform caregiving tasks and the number of caregiving tasks performed. As the time spouses devote to caregiving and the number of tasks increase, their impact on their physical health, psychological distress, and income level increase (Nijboer et al, 1998;Wadhwa et al, 2013;Gaugler et al, 2008;Passik and Steven, 2005).…”

Section: Introductionmentioning

confidence: 95%

Health-related quality of life and sense of coherence among partners of women with breast cancer in Israel

Shor¹,

Cohen²,

Reinshtein

et al. 2015

European Journal of Oncology Nursing

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“…Psychiatry and Clinical Neurosciences 2010; 64: 505-513 doi:10.1111/j.1440-1819.02131.x 505 © 2010 The Authors Psychiatry and Clinical Neurosciences © 2010 Japanese Society of Psychiatry and Neurology reported that factors associated with caregiver's QOL during the cancer caregiving period could be divided into four categories: (i) sociodemographic characteristics; (ii) caregiving demands; (iii) available psychological and social resources; and (iv) caregiving situation. [8][9][10] In China, the Center for Health Information and Statistics, Ministry of Health reported a total of 2.1 million cancer cases in 2000 and this number has kept increasing. In 2007, according to the report from the Ministry of Health of the People's Republic of China, cancer has become the fifth leading cause of hospitalization.…”

mentioning

confidence: 99%

Quality of life and related factors among cancer caregivers in China

Pan

Sun

et al. 2010

Psychiatry Clin Neurosci

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Aims: The present study was designed to investigate quality of life (QOL) among caregivers of cancer inpatients, and to explore the related factors with the long-term goal to improve QOL of cancer caregivers in China. Methods:A cross-sectional study was performed during the period January-March 2008. Subjects comprised 358 caregivers of cancer inpatients. The questionnaires pertaining to QOL, sociodemographic characteristics, caregiving demands, available social resources, caregiving situation, and caregiver's health status were used. Data were collected by nurses through interviews. Results:The average QOL score of these subjects was 5.26. General linear model analysis showed that caregiver's QOL was significantly associated with, in standardized estimate sequence, spousal relationship, patient's activities of daily living, and chronic disease (no). Overall spousal relationship to patient had the strongest association with caregiver's QOL.Conclusions: Psychological well-being and social concerns of cancer caregivers were disrupted more seriously than spiritual well-being and physical wellbeing. In addition, spousal relationship, patient's disability, and caregiver's health status could affect the caregiver's QOL.Key words: burden, cancer, caregiver, oncology, quality of life. C ANCER REMAINS ONE of the leading causes of morbidity and mortality worldwide. According to the World Cancer Report estimated by the World Health Organization, cancer rates have increased at an alarming rate, from 10 million new cases globally in 2000 to 15 million in 2002, 1 and it has been estimated that, in 2020, the world's cancer population will increase to 7.5 billion, which will include 15 million new cancer cases and 12 million cancer deaths.2 However, cancer has an effect not only on patients, but also on family caregivers, because cancer patients need long-term care due to the long duration of the disease and the treatment, such as surgery, chemotherapy and radiotherapy. In a study of family caregivers of cancer patients, 66.8% of caregivers quit work or made major life changes in order to provide care, 68.0% of families lost most of their savings, and 55.0% of families lost their main source of income. Therefore, the health and well-being of cancer caregivers have attracted accelerating interest in recent years, and have been studied well in Western countries. [4][5][6][7] Quality of life (QOL) is a term used widely to indicate an individual's general well-being, and has been applied in the field of caregiving for years. Studies conducted in Western countries have *Correspondence: Lie Wang, PhD, Department of Social Medicine, School of Public Health, China Medical University, No. 92 Beier Road, Heping District, Shenyang, 110001, China. Email: liewang@mail.cmu.edu.cn Received 9 November 2009; revised 14 June 2010; accepted 11 July 2010. Psychiatry and Clinical Neurosciences 2010; 64: 505-513 doi:10.1111/j.1440-1819.02131.x 505 © 2010 The Authors Psychiatry and Clinical Neurosciences © 2010 Japanese Society of Psychiatry ...

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Work, gender, and stress in family cancer caregiving

Cited by 54 publications

References 39 publications

The feasibility of online genetic testing for lung cancer susceptibility: uptake of a web-based protocol and decision outcomes

The feasibility of online genetic testing for lung cancer susceptibility: uptake of a web-based protocol and decision outcomes

Health-related quality of life and sense of coherence among partners of women with breast cancer in Israel

Quality of life and related factors among cancer caregivers in China

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