Wonders &amp; Worries: evaluation of a child centered psychosocial intervention for families who have a parent/primary caregiver with cancer

Phillips, Farya; Prezio, Elizabeth A.

doi:10.1002/pon.4120

Cited by 23 publications

(37 citation statements)

References 31 publications

(51 reference statements)

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“…Child life advocates and child psychologists should be consulted if available, as they are specially trained to pick up on behaviors and distress that may be overlooked or underreported by parents, teachers, and physicians. Child-centered classes have shown benefit, as a short 6-week curriculum based study of 194 families focused on children found vast improvement in communication skills (87%), school scores (73%), and reduced anxiety (84%) (29).…”

Section: Resultsmentioning

confidence: 99%

“…Open communication, adaptability, expressiveness, cohesion, decreased conflict are all factors that have been found to be protective for children and adolescents (8,28). The literature repeatedly shows that children and adolescents desire honest, accurate, and complete information, especially in regards to long term implications and the possibility of inheritance (9,17,29,30). It is important to provide support to parents in how to explain their diagnosis in an age-appropriate manner and allowing children the opportunity to express their questions and concerns, as doing so results with better coping mechanisms and decreased distress (13).…”

Section: Interventionsmentioning

confidence: 99%

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Impact of Parental Cancer on Children

2017

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Abstract. Background It is estimated that 10.4% of newly diagnosed cancer patients are between the ages of 18-55, with 22.4% of all cancer cases occurring in individuals aged 21-55 (1). This range represents common childbearing and child-rearing ages which suggest a significant portion of these patients may have minor children. In fact, in 2010 it was estimated that 2.85 million children under the age of 18 lived with a parent who was diagnosed with cancer in the US (2). Over the last 30 years, overall cancer survival rates have increased with the 5-year survival rate rising 20% across all races (3). The increasing survival rates suggest a concomitant increase in prevalence of cancer survivors with minor children.A cancer diagnosis can affect the whole family, not just the afflicted parent (4, 5). Multiple studies demonstrate that children in particular have a higher risk of emotional and behavioral problems (6, 7). The disruption of schedules and daily routine, shifting of household roles, financial stress, and the physical and emotional availability of either parent all contribute to these emotional and behavioral problems (7-9). These problems, if overlooked or untreated, can persist into adulthood (10). Daily RoutineA daily routine is an important part of life for preschoolers, grade-schoolers, and adolescents for both structural stability and social behavior guidance (7, 11). A parental cancer diagnosis can disrupt the daily routine or schedule due to frequent clinic visits, unexpected hospital admission, and the home turning into a place of care (9, 12, 13). The disruptions also promote problems sleeping in preschoolers and increased post-traumatic stress symptoms as well as internalizing and externalizing behaviors in adolescents (6,7,14). Adolescents also report the impact that physical unavailability has on their emotional well being including the ill parent no longer driving them to school, to extracurricular activities, or even packing lunches (12, 15). Role ChangesIt has long been known that parental roles change as one parent becomes a caregiver and the ill parent becomes less available physically and emotionally, having fewer opportunities to interact while placing increased demands on their children (12). However, children of patients with cancer frequently change roles within their family as well, absorbing more responsibility while one parent cares for the ill parent (4, 16). The literature shows that both children and adolescents have increased personal responsibilities, resulting in a decrease in social activity and subsequent loss of childhood at a time when peer groups are essential for social development (4,10,14,17). Adolescent truancy rates increase and overall attendance decreases as they need to care for their younger siblings or pick-up extra work shifts to help combat the financial burden cancer puts on a household (11, 13). 4025

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Section: Resultsmentioning

confidence: 99%

Section: Interventionsmentioning

confidence: 99%

Impact of Parental Cancer on Children

2017

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“…While the findings from this study align with those of Shallcross et al, (2016) and cognisance needs be paid to the challenges involved in delivering a programme that covers a broad age span. It may be that one to one sessions are necessary for children with significant distress as recommended in another psychosocial intervention (Phillips & Prezio, 2016). This demonstrates the importance of facilitators being able to manage the different needs of the various children.…”

Section: Discussionmentioning

confidence: 99%

Children Navigating Parental Cancer: Outcomes of a Psychosocial Intervention

O'Neill

O’Neill

Semple³

2019

Comprehensive Child and Adolescent Nursing

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Research has evidenced a marked increase in the prevalence of cancer among younger people with up to one in five, parenting children under the age of 18 years of age. When a parent is diagnosed with cancer they experience fears and anxieties as they attempt to simultaneously manage their role as parent, with the illness experience. Parents have expressed difficulties in knowing how to communicate appropriately with their children throughout the illness trajectory as they are primarily focused on protecting or shielding their children from knowledge of the illness. Understandably parents may become overwhelmed with significant parental stress impacting on their psychological wellbeing. This subsequently effects the well-being of the entire family unit, coupled with changes to routines, roles and responsibilities. This study was carried out to examine how a group psychosocial intervention Children's Lives Include Moments of Bravery (CLIMB®) helped young children to navigate parental cancer. A qualitative research design utilizing focus group methodology, artwork and individual interviews was used to generate data from 19 participants (parents, children and healthcare professionals). Three key themes emerged from the data, navigating the diagnosis, navigating emotions and changed routines, creating spaces to talk about cancer. The findings evidenced that attending CLIMB® was a positive experience for both children and parents. It gave the children the language and opportunity to express their fears and worries. CLIMB® equipped them with tools and skills to both express and manage their negative emotions, life skills that could be transferred to other challenging life events. All techniques that created spaces to talk and appeared to have a reassuring effect on the children. The parents appreciated the professional support that the structured intervention offered to them and helped them communicate more openly with their children. Creating spaces to talk about cancer reduces mistrust and tension between parents and children, when parental cancer occurs, and hopefully minimizes future psychological and social problems.

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“…Notably, at the time of scoping the websites, CanTeen Australia was the only service to offer such supportive data . Since scoping the websites, Wonders & Worries have published data regarding the evaluation of their services, and the CLIMB programme has undergone evaluation …”

Section: Discussionmentioning

confidence: 99%

An investigation of support services available by Internet searching to families impacted by a parent's cancer

2017

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Objective: Throughout a parent's cancer diagnosis and treatment, families are likely to turn to the Internet to find social, emotional, and informational support services. It is important that professionals understand the content and availability of support discoverable through Web searches. This study identified and described Web-based information regarding support services offered to families when a parent has cancer.Methods: Predefined key search terms were searched across 2 public Web browsers for a period of 3 months. Web-based information of support services (n = 25) was abstracted, and their key criteria examined.Results: Of services offering face-to-face support (n = 22), more were founded by persons impacted by cancer (n = 10) (patients, parents, and offspring) than professionals (n = 4). Services

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Wonders & Worries: evaluation of a child centered psychosocial intervention for families who have a parent/primary caregiver with cancer

Cited by 23 publications

References 31 publications

Impact of Parental Cancer on Children

Impact of Parental Cancer on Children

Children Navigating Parental Cancer: Outcomes of a Psychosocial Intervention

An investigation of support services available by Internet searching to families impacted by a parent's cancer

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