Women's situation‐specific strategies in managing participation restrictions due to early rheumatoid arthritis: A gender comparison

Östlund, Gunnel; Björk, Mathilda; Thyberg, Ingrid; Valtersson, Eva; Sverker, Annette

doi:10.1002/msc.1225

Cited by 7 publications

(5 citation statements)

References 39 publications

(50 reference statements)

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“…Participants of the current study considered remunerative and non-remunerative employment as subdomains of participation that are fundamentally different from each other, which is in line with previous research [18]. It also becomes clear from the interviews that work at home has a different meaning compared to remunerative employment, as previously suggested [19]. However, the PROMIS item bank contains items that ask respondents about the ability to partake in work, but does not distinguish between remunerative employment, non-remunerative employment, and work at home as unique forms of participation to make sure that the items are universally applicable to people, e.g.…”

Section: Discussionsupporting

confidence: 80%

A qualitative study investigating the meaning of participation to improve the measurement of this construct

Wind¹,

Beek²,

Boezeman

et al. 2019

Qual Life Res

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Purpose The purpose of this study was to improve the measurement of participation. Research questions were as follows: (1) What constitutes participation according to adults? (2) Do they mention participation subdomains that are not covered in the Patient-Reported Outcomes Measurement Information System (PROMIS) item bank “Ability to Participate in Social Roles and Activities”? Methods Semi-structured interviews were conducted with 46 adults from the general population. Interviews were thematically analysed using the International Classification of Functioning, Disability and Health (ICF) as conceptual framework. Thereafter, assigned codes were compared to PROMIS item bank. Results Participants mentioned a variety of participation subdomains that were meaningful to them, such as socializing and employment. All subdomains could be classified into the ICF. The following subdomains were not covered by the PROMIS item bank: acquisition of necessities, education life, economic life, community life, and religion and spirituality. Also a distinction between remunerative (i.e. paid) and non-remunerative (i.e. unpaid) employment, and domestic life was missing. Several ICF sub-codes were not mentioned, such as ceremonies. Conclusions Many participation subdomains were mentioned to be meaningful. As several of these subdomains are not covered in the PROMIS item bank, it may benefit from extension with new (patient-)reported subdomains of participation.

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Section: Discussionsupporting

confidence: 80%

A qualitative study investigating the meaning of participation to improve the measurement of this construct

Wind¹,

Beek²,

Boezeman

et al. 2019

Qual Life Res

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show abstract

“…Indeed, in the present hierarchical multiple regression analysis on the mental component of HRQoL, alexithymia, the HADS‐D subscale, the Resting coping strategy, and the presence of rumination regarding pain were significant predictors of SF‐36_MC, with the final model explaining 40% of the variance. These results are in agreement with those reported by some previous studies in patients with CP, which found that patients’ coping strategies, pain catastrophizing, and mood independently contributed to the psychosocial disability adjustment, more so than the pain intensity itself (Edwards et al ., ; Lame, Peters, Vlaeyen, Kleef & Patijn, ; Östlund, Björk, Thyberg, Valtersson & Sverker, ). It is well known that depression and pain catastrophizing are two crucial psychosocial factors that influence the course and experience of chronic pain (Edwards et al ., ; Miller‐Matero, Chipungu, Martinez, Eshelman & Eisenstein, ; Morgan, ).…”

Section: Discussionmentioning

confidence: 99%

Pain appraisal and quality of life in 108 outpatients with rheumatoid arthritis

Larice

Ghiggia

Tella

et al. 2019

Scandinavian J Psychology

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Individual differences in emotional functioning, pain appraisal processing, and perceived social support may play a relevant role in the subjective experience of pain. Due to the paucity of data regarding individuals with Rheumatoid Arthritis (RA), the present study aimed to examine pain intensity, emotional functioning (psychological distress and alexithymia), pain appraisal (pain beliefs, pain catastrophizing, and pain‐related coping strategies) and social support, and their relationships with the health‐related quality of life (HRQoL) in patients with RA. Data were collected from 108 female patients diagnosed with RA. Clinically relevant levels of depressive and anxiety symptoms assessed by the HADS subscales were present in 34% and 41% of the patients, respectively, and about 24% of them exhibited the presence of alexithymia. The results of hierarchical multiple regression analyses showed that pain intensity, alexithymia, the maladaptive beliefs regarding the stability of pain and the coping strategy of guarding explained 54% of the variance in the physical component of HRQoL (p < 0.001). Depression subscale of the HADS, alexithymia, the coping strategy of resting, and the rumination factor of pain catastrophizing significantly explained 40% of the variance in the mental component of HRQoL (p < 0.001). The present findings provide evidence regarding the importance of emotional functioning and pain appraisal in the negative impact of RA on patients’ quality of life. These findings provide additional evidence for the biopsychosocial model of chronic pain, further supporting the complex interaction between emotional, cognitive, and behavioral processes in patients with chronic pain.

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“…Also, knowing that higher self‐efficacy scores are associated with lesser psychological distress and tiredness, underline that talking to patients about how to balance their activities and energy according to their individual situations (Grønning et al, ) is needed to support patients to become good self‐managers, (Bech et. al, , Chaleshgar‐Kordasiabi, Enjezab, Akhlaghi, & Sabzmakan, ; Dures et al, ; Ostlund, Björk, Thyberg, Valtersson, & Sverker, ) and that men and women may have different needs (Flurey et al, , , , ; Gruszczynska & Knoll, ).…”

Section: Discussionmentioning

confidence: 99%

Health status and self‐management in patients with inflammatory arthritis—A five‐year follow‐up study after nurse‐led patient education

2019

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AimThe aim of this study was to investigate changes in patients' self‐management and health status five years after nurse‐led patient education.DesignA longitudinal study.MethodsWe collected self‐reported data on physical function, pain, tiredness, disease activity, psychological status, patient activation and self‐efficacy from a sample of Norwegian‐speaking adults with inflammatory arthritis that had participated in a randomised controlled study investigating the effects of nurse‐led patient education. Changes and associations in patients' health status and self‐management were analysed with paired sample t tests and multivariable linear regression analyses, respectively.ResultsExcept from a small deterioration in patients' physical function, there were no changes in patients' health status 5 years after the nurse‐led patient education. Patients' self‐management skills were improved after 5 years. Self‐efficacy was positively associated with female gender, patient activation, less tiredness and less psychological distress.

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Women's situation‐specific strategies in managing participation restrictions due to early rheumatoid arthritis: A gender comparison

Abstract: Women and men used four types of situation-specific strategies in managing RA; adjustment, avoidance, interaction and acceptance. These situation-specific strategies provide useful knowledge, in terms of multidisciplinary rehabilitation and for patients' significant others.

Cited by 7 publications

References 39 publications

A qualitative study investigating the meaning of participation to improve the measurement of this construct

A qualitative study investigating the meaning of participation to improve the measurement of this construct

Pain appraisal and quality of life in 108 outpatients with rheumatoid arthritis

Health status and self‐management in patients with inflammatory arthritis—A five‐year follow‐up study after nurse‐led patient education

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