Women’s perspectives and experiences on screening for osteoporosis (Risk-stratified Osteoporosis Strategy Evaluation, ROSE)

Rothmann, Mette Juel; Huniche, Lotte; Ammentorp, Jette; Barkmann, Reinhard; Glüer, Claus C.; Hermann, Anne Pernille

doi:10.1007/s11657-014-0192-1

Cited by 22 publications

(60 citation statements)

References 30 publications

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“…Descriptions suggested a lack of trust in one's body and a view of the osteoporotic body as nonnormative and relied on metaphors of destruction and frailty [21]. A focus on physical characteristics or appearance for assessing osteoporosis risk has been identified in other samples of older Danish women [22]. …”

Section: Resultsmentioning

confidence: 99%

“…Patients do not connect underlying bone health to the resultant fractures, which are perceived as freak, traumatic accidents [26, 29]. A conceptualization of fractures as freak events has been reported by other authors (e.g., [22, 30, 31]). This dissociation had important impacts on medication adherence.…”

Section: Resultsmentioning

confidence: 99%

“…In focus groups and interviews, older Danish women described their views on osteoporosis screening [22]. Help seeking behavior was perceived as a moral responsibility, but screening could be rejected by those who felt they were at low risk for osteoporosis.…”

Section: Resultsmentioning

confidence: 99%

“…Help seeking behavior was perceived as a moral responsibility, but screening could be rejected by those who felt they were at low risk for osteoporosis. Osteoporosis screening was not considered to be as important as cancer screening; however, most participants did undertake screening, while acknowledging concerns over labelling, medicalization, and medication effects [22]. …”

Section: Resultsmentioning

confidence: 99%

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Qualitative Insights from the Osteoporosis Research: A Narrative Review of the Literature

Bombak

Hanson

2016

Journal of Osteoporosis

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Purpose. Much of the research on osteoporosis has been generated quantitatively. However, the qualitative osteoporosis literature provides valuable information on patient and clinician experiences and perspectives, informing the design and implementation of health research and healthcare services. To identify knowledge gaps and inform the design of future qualitative research, a narrative review was conducted to consolidate and synthesize the existing insights available within the qualitative osteoporosis research. Methods. Search terms reflecting the domains of osteoporosis and qualitative research were entered into the Scopus database to generate a comprehensive survey of qualitative research in the area of osteoporosis. Articles were thematically analysed and the results are presented in the form of a narrative review. Results. Forty-four articles were included in the narrative review. Qualitative research in the field of osteoporosis research can be summarized by 3 thematic areas: the meaning of osteoporosis for patients and the public, the lived experience of an osteoporosis diagnosis, and the programmatic approach to osteoporosis prevention and treatment. Conclusions. Qualitative studies provide clinically valuable insights in how osteoporosis is conceptualized and managed and programmatic aspects of osteoporosis treatment. The findings of this narrative review suggest the need for balance between presenting osteoporosis as a serious health condition and producing unwarranted anxiety and inactivity so as to ensure the best possible outcomes for individuals with osteoporosis.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Qualitative Insights from the Osteoporosis Research: A Narrative Review of the Literature

Bombak

Hanson

2016

Journal of Osteoporosis

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“…A Canadian study of osteoporosis patients' perception of their care pathway following a lowenergy fracture [11] concluded that, when improving the uptake of osteoporosis testing and care, patients' awareness of their needs should be matched with the delivery of immediate information by a health care professional. While a Danish qualitative study of elderly women's experiences of screening for osteoporosis found no major adverse psychological consequences of screening for osteoporosis, the importance of patients' knowledge of the disease was highlighted [12]. However, based on a study of Danish elderly women's ideas of osteoporosis, Reventlow suggested, that the result of osteoporosis investigation and its cultural interpretation could trigger a reconstruction of the body-self as weak and having reduced capacity [13].…”

Section: Introductionmentioning

confidence: 99%

Screening for Underlying Osteoporosis in Fragility Fracture Patients: The Patients Perspective

Tei¹,

Langdahl²,

Brink³

et al. 2019

TONURSJ

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Background:Early detection and treatment of osteoporosis are essential in preventing fractures and fracture-related morbidity and mortality. Fractures beget fractures and it is relevant and well-documented beneficial to target osteoporosis screening in patients already suffering a fracture. The associated increased number of patients being confronted with a potential diagnosis of osteoporosis makes it worth considering how this affects patients. Objective:The aim of this study was to explore fracture patients' experiences when confronted with the option of being screened for osteoporosis as the underlying reason of their fracture. Methods:In a phenomenological hermeneutic framework, semi-structured interviews were performed in 15 fragiligty fracture patients being offered screening for osteoporosis. Analysis inspired by Ricoeur consisting of naive reading, structural analysis, and critical analysis and discussion was applied. Results:Fracture patients were condemned to make a choice when confronted with the possibility of the early detection of osteoporosis. Many questions regarding prevention of new fractures and prospects in the case of a positive test result were raised. The major themes were related to the consequences of knowing what might be hidden in the bones, and the responsibility to prevent illness. Conclusion:The confrontation with the potential risk of osteoporosis provokes fear and worry in patients about lived daily life and anxiety about being treated as a sick person, but in return, it motivates patients to adopt a bone-healthy lifestyle. In general, patients prefer to be given knowledge of their bone health status over not knowing, and being able to seek further information on the condition facing them. tant factor in assessing the risk for future fractures [9], and early detection and treatment of osteoporosis are essential in preven-ting disability, pain, increased mortality, and other harms associated with fractures. The relevance of targeting patients presenting a fracture is thus clear. An evaluation of the Scottish Fracture Liaison Service (FLS) after eight years [2] showed this coordinator-based, post-fracture model of care to be cost-effective in ensuring that fragility fracture patients receiving appropriate assessment and intervention to reduce the Screening for Underlying OsteoporosisThe

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Patients' Experiences of Nurse‐Led Screening for Cardiovascular Risk in Rheumatoid Arthritis

Frølund

Primdahl

2015

Musculoskeletal Care

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Women’s perspectives and experiences on screening for osteoporosis (Risk-stratified Osteoporosis Strategy Evaluation, ROSE)

Abstract: In general, the women accepted the screening program. No major ethical reservations or adverse psychological consequences were detected. Only a minority of women declined screening participation due to a low perceived risk of osteoporosis.

Cited by 22 publications

References 30 publications

Qualitative Insights from the Osteoporosis Research: A Narrative Review of the Literature

Qualitative Insights from the Osteoporosis Research: A Narrative Review of the Literature

Screening for Underlying Osteoporosis in Fragility Fracture Patients: The Patients Perspective

Patients' Experiences of Nurse‐Led Screening for Cardiovascular Risk in Rheumatoid Arthritis

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