Women's knowledge, concerns and psychological reactions before undergoing an invasive procedure for prenatal karyotyping

Cederholm, Maria; Axelssön, Ove; Sjödén, Per‐Olow

doi:10.1046/j.1469-0705.1999.14040267.x

Cited by 40 publications

(36 citation statements)

References 10 publications

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“…Often, in Canada, a doctor or midwife will provide prenatal screening results to a patient with limited interpretation, and patients may wait up to several weeks to see a GC for more information. While research has devoted considerable attention to the anxiety provoked by prenatal screening (Dormandy, Michie, Hooper, & Marteau, ; Garcia, Timmermans, & Leeuwen, ; Michie, Dormandy, & Marteau, ; Van den Berg, Timmermans, ten Kate, Van Vugt, & Van der Wal, ), we know less regarding patients' perceptions of the role of the GC in the process of deciding what to do next (Cederholm, Axelsson, & Sjoden, ; Durand, Stiel, Boivin, & Elwyn, ; Kosonen et al, ; Malkeil, Granat, Sagi, & Brezis, ).…”

Section: Introductionmentioning

confidence: 99%

Patient decision‐making and the role of the prenatal genetic counselor: An exploratory study

Salema

Townsend

Austin

2018

Journal of Genetic Counseling

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Despite much theory about how genetic counseling facilitates prenatal decision‐making, there are limited data regarding patients’ perceptions of the process and the role of the genetic counselor (GC). Our aim in this study was to explore patients’ perceptions of their prenatal genetic counseling session, with a focus on their relationship with their GC and how factors inside and outside the session influenced their decision‐making about amniocentesis. We performed a qualitative study with patients who had seen a GC after maternal serum screening revealed an increased risk for aneuploidy. Semistructured interviews were transcribed verbatim, and analyzed using a constant comparative method. To complement and triangulate with these data, we used a secondary quantitative measure—the 6‐item Satisfaction With Decision‐making (SWD) scale, and questionnaires completed by participants’ GCs. Eleven patients participated and four predominant themes emerged from our data: (1) being unprepared; (2) recognizing responsibility for decision‐making; (3) the burden of responsibility; and (4) the impact of support through affirmation. Despite the underlying tension within these themes, patients reported high satisfaction with their decisions (SWD mean score = 28.5/30, range: 26–30). Patients perceived their GCs to be nonbiased yet supportive in the decision‐making process. Patients described feeling affirmed, but not swayed in their decision.

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Section: Introductionmentioning

confidence: 99%

Patient decision‐making and the role of the prenatal genetic counselor: An exploratory study

Salema

Townsend

Austin

2018

Journal of Genetic Counseling

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“…The possibilities for prenatal karyotyping have developed rapidly since the introduction of amniocentesis during the 1960s (Cederholm et al. 1999).…”

Section: Introductionmentioning

confidence: 99%

“…2006). In addition, the decision to undergo an invasive procedure may be difficult for the woman and an occasion for worry (Cederholm et al. 1999).…”

Section: Introductionmentioning

confidence: 99%

Congenital anomalies: parents’ anxiety and women's concerns before prenatal testing and women's opinions towards the risk factors

Şahin¹,

Güngör²

2008

Journal of Clinical Nursing

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“…We suggest that the underlying characteristic of the observed predictors among women is their impact on perceived risk. The main reasons reported by women for participating in prenatal screening and diagnosis were related to getting reassurance [9,18,19,20]. Previous studies have noted that perceived – rather than actual – risk was the most important predictor of prenatal testing [21], and that the gap between the two risks may be as high as 10-fold [22, 23].…”

Section: Discussionmentioning

confidence: 99%

Different Perceptions and Attitudes regarding Prenatal Testing among Service Providers and Consumers in Israel

Dery

Carmi²,

Shoham‐Vardi³

2007

Public Health Genomics

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Introduction: The increasing number of prenatal tests for fetal abnormalities calls for a prenatal care policy which will reflect not only medical values, but also the needs and attitudes of the services’ consumers. Objectives: To compare attitudes of prenatal service consumers and providers regarding extent of prenatal testing and to evaluate these attitudes in relation to sociodemographic and professional characteristics. Methods: Women were interviewed by phone 5–8 weeks postpartum (n = 596) using a structured questionnaire. Health professionals (n = 351) completed a parallel questionnaire. Results: Health professionals were significantly more supportive of comprehensive prenatal testing than women (61.1 vs. 34.1%, respectively). In a multivariable analysis, age over 35, Ashkenazi origin and being better informed regarding tests, predicted a preference for comprehensive testing among women. Among health professionals, predictors of that attitude were secularism and a paramedical profession. Conclusions: Providers and consumers of prenatal services differ in their perceptions and opinions. Policy makers should have mechanisms in place to properly represent this diversity.

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Women's knowledge, concerns and psychological reactions before undergoing an invasive procedure for prenatal karyotyping

Abstract: Knowledge of factors important to women and their concerns is essential for professionals working with genetic counselling and performance of invasive procedures.

Cited by 40 publications

References 10 publications

Patient decision‐making and the role of the prenatal genetic counselor: An exploratory study

Patient decision‐making and the role of the prenatal genetic counselor: An exploratory study

Congenital anomalies: parents’ anxiety and women's concerns before prenatal testing and women's opinions towards the risk factors

Different Perceptions and Attitudes regarding Prenatal Testing among Service Providers and Consumers in Israel

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