Women’s experiences of advanced breast cancer in a resource‐limited Arab context: A Stakian multi‐case study

Fearon, David; Hughes, Sean; Brearley, Sarah

doi:10.1002/pon.5735

Cited by 3 publications

(1 citation statement)

References 19 publications

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“…Studies investigating coping mechanisms in palliative care patients have echoed similar results, with acceptance emerging as the most prevalent coping strategy. This is closely followed by seeking emotional support, engaging in active coping strategies, and turning to religion for support (30) (31).…”

Section: Discussionmentioning

confidence: 99%

Systematic review on coping strategies used by palliative care patients in South Asia

Ali,

Fearon,

Jabeen

2024

Preprint

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Background The number of people with life-limiting illnesses seems to be increasing in South Asia’s fast-growing population. The diagnosis of a life-limiting condition is often associated with psychosocial stressors, including changes in social relations, financial constraints, limited physical functioning and anxiety about the future and death. Some of the coping strategies that patients employ to address these stressors include support from family members, increased religiosity, and acceptance of their condition. Aim To explore how palliative care patients in South Asia cope with the various psychosocial stressors experienced during their ailment. Design and setting This is a systematic review of qualitative studies identifying and exploring coping among palliative care patients within community settings in South Asia. Method Searches of four electronic databases from inception to May 2022 were carried out. The extracted data included participant demographics, study characteristics and coping strategies employed. Thematic synthesis was performed. This qualitative systematic review was conducted and reported according to the PRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) guidelines. The Critical Appraisal Skills Programme (CASP) checklist was used to evaluate the quality of the included articles. Results Six studies were included in the systematic review. The results showed that palliative care patients often experience loss of independence, financial worries and feelings of loneliness during their illness. The main coping strategies employed included social support from family, faith, and acceptance of their condition. Conclusion This systematic review provides a better understanding of various stressors and coping strategies in the context of palliative care in South Asia. This highlights the need for further research to be carried out in this area to better understand patients’ experiences and help develop policies and guidelines. The patient's family and their continuous support are identified as the predominant coping strategies in the context of South Asia. Family members seem to play a vital role in the provision of community or home-based palliative care. They not only provide personal, emotional but also monetary support needed in the terminal phase of life-limiting illness.

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Section: Discussionmentioning

confidence: 99%

Systematic review on coping strategies used by palliative care patients in South Asia

Ali,

Fearon,

Jabeen

2024

Preprint

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Sharing the secret: The effects of sharing mothers’ breast cancer on Arab children’s emotional and behavioral status

Hen,

Khalaily,

Mirochnik

et al. 2024

Curr Psychol

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A diagnosis of breast cancer implies an emotional burden on the patient’s personal and family functioning, especially in traditional societies. Along with the physical and emotional difficulties that are inherent to cancer, there is also a tendency in Arab society to keep the disease a secret. The present study examined the impact of sharing information about the mother’s illness on the emotional and educational scholastic functioning of children of Arab Israeli women with breast cancer. The sample included 39 Arab women with breast cancer, their school aged children and their children’s teachers, who answered self-report questionnaires. Findings indicated that mothers and children who shared information related to the illness reported more perceived social support, children’s higher academic achievements, fewer emotional and behavioral problems, and higher pro-social behaviors than children and mothers who did not share information regarding the illness. This study underscores the role of sharing information about breast-cancer illness among Arab mothers, on the emotional and scholastic functioning of their children. Further research is needed to provide a way to facilitate the information-sharing process in the community, and to prevent the negative ‘ripple effect’ of concealing the mother’s illness in Arab society.

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Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study

et al. 2023

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Background Stroke is a prevalent neurological disease that can have a profound impact on women’s physical, psychosocial, and spiritual well-being. In many cases, women living with stroke may have marginalized palliative care needs that are often not adequately addressed by healthcare providers. Unfortunately, the experience of women with stroke and their specific palliative care needs have been largely overlooked in research conducted in Jordan. Aim The purpose of this study is to examine the specific palliative care needs of women who have experienced a stroke and are currently living in Jordan. By conducting this research, we aim to identify the various physical, emotional, social, and spiritual needs of women with stroke and gain a better understanding of how these needs can be addressed through palliative care interventions. Methods This research utilized a phenomenological descriptive study approach to explore the experiences of twelve women recruited from the outpatient clinic of rehabilitation centers. The data was collected through semi-structured interviews. The analysis was conducted using the method of Colaizzi (1978), which involves identifying significant statements, extracting meanings, and formulating an exhaustive description of the phenomenon under study. Results The study findings uncovered three primary themes that reflect the palliative care needs of women who are currently living with stroke in Jordan, including (1) Spiritual practices, beliefs, and needs; (2) Coping with distressing symptoms; and (3) Managing the delivery of unfavorable news. Discussion This study provides valuable insights into the experiences of Jordanian women living with stroke, highlighting the far-reaching consequences of this condition on various aspects of their lives. The findings reveal that stroke has a significant impact on women’s physical, emotional, social, and spiritual well-being, with many facing unmet palliative care needs. By illuminating these challenges, our study underscores the importance of taking a holistic approach to stroke care that addresses the multifaceted needs of women living with stroke. Healthcare providers must consider these findings and integrate palliative care interventions into treatment plans to improve the quality of life of women living with stroke in Jordan. Conclusion This study provides valuable insights into the palliative care needs of women who have experienced a stroke. Our findings highlight the importance of addressing women’s physical, psychosocial, and spiritual needs as part of a comprehensive approach to stroke care. We recommend integrating palliative care interventions into rehabilitation programs to improve the quality of life of women living with stroke in Jordan. By doing so, we can address the pain and complications that can arise from stroke, while also providing holistic support to address the emotional and spiritual impact of the illness. This approach has the potential to improve outcomes for women living with stroke and enhance their overall well-being.

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Women’s experiences of advanced breast cancer in a resource‐limited Arab context: A Stakian multi‐case study

Cited by 3 publications

References 19 publications

Systematic review on coping strategies used by palliative care patients in South Asia

Systematic review on coping strategies used by palliative care patients in South Asia

Sharing the secret: The effects of sharing mothers’ breast cancer on Arab children’s emotional and behavioral status

Palliative care needs of Jordanian women’s experience of living with stroke: a descriptive phenomenological study

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