Women-centred HIV care: a scoping review to understand the current state of service delivery for women living with HIV globally

Medeiros, Priscilla; Gupta, Manisha; Wong, Heather; Kazemi, Mina; Ndungu, Mary; Smith, Stephanie; Kishibe, Teruko; Loutfy, Mona

doi:10.1080/09540121.2021.1948498

Cited by 4 publications

(5 citation statements)

References 25 publications

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“…Women living with HIV who report feeling comfortable with healthcare providers are more likely to discuss their reproductive goals with their care providers [ 12 ]. Although frameworks recognizing the need for gendered care approaches exist [ 13 , 14 ], few studies have examined the care preferences and priorities of women living with HIV. Integrating these priorities and evidence-based care recommendations can maximize the care engagement, health and wellbeing of this population [ 15 ].…”

Section: Introductionmentioning

confidence: 99%

Factors and Priorities Influencing Satisfaction with Care among Women Living with HIV in Canada: A Fuzzy Cognitive Mapping Study

Skerritt

Kaida

Savoie

et al. 2022

JPM

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Engagement along the HIV care cascade in Canada is lower among women compared to men. We used Fuzzy Cognitive Mapping (FCM), a participatory research method, to identify factors influencing satisfaction with HIV care, their causal pathways, and relative importance from the perspective of women living with HIV. Building from a map of factors derived from a mixed-studies review of the literature, 23 women living with HIV in Canada elaborated ten categories influencing their satisfaction with HIV care. The most central and influential category was “feeling safe and supported by clinics and healthcare providers”, followed by “accessible and coordinated services” and “healthcare provider expertise”. Participants identified factors that captured gendered social and health considerations not previously specified in the literature. These categories included “healthcare that considers women’s unique care needs and social contexts”, “gynecologic and pregnancy care”, and “family and partners included in care.” The findings contribute to our understanding of how gender shapes care needs and priorities among women living with HIV.

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Section: Introductionmentioning

confidence: 99%

Factors and Priorities Influencing Satisfaction with Care among Women Living with HIV in Canada: A Fuzzy Cognitive Mapping Study

Skerritt

Kaida

Savoie

et al. 2022

JPM

Self Cite

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“…In recent years, Safe Spaces have become a common feature of women-centred HIV, SRH and trauma-sensitive care service models globally, regarded as an appropriate way to overcome barriers that limit women's access to care [6]. Safe Spaces are not always referred to as such, however the concept of safe physical and social space has been conceptualized as a key delivery mechanism in HIV programmes in East and Southern Africa that focus on social protection interventions for young women vulnerable to HIV [7].…”

Section: Introductionmentioning

confidence: 99%

Safe spaces for beneficiaries of a combination HIV prevention intervention for adolescent girls and young women in South Africa: access, feasibility, and acceptability

et al. 2022

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Background Safe Spaces are a feature of combination HIV prevention interventions for adolescent girls and young women (AGYW) in South Africa. We investigated whether AGYW at risk for adverse sexual and reproductive health (SRH) outcomes accessed Safe Spaces that were part of an intervention, as well as their feasibility and acceptability. Methods In December 2020 to February 2021, as part of a process evaluation of a combination HIV prevention intervention, we randomly sampled 2160 AGYW intervention beneficiaries aged 15–24 years from 6 of the 12 intervention districts. We invited them to participate in a phone survey, with questions about their vulnerability to adverse SRH outcomes, and participation in intervention components including Safe Spaces. We examined factors associated with use of Safe Spaces using bivariate analyses and Pearson’s chi squared tests. We also conducted in-depth interviews with 50 AGYW beneficiaries, 27 intervention implementers, 4 health workers, 7 social workers, and 12 community stakeholders, to explore perceptions and experiences of the intervention. Thematic analysis of the qualitative data was performed. Results At least 30 Safe Spaces were established across 6 districts. Five hundred fifteen of two thousand one hundred sixty sampled AGYW participated in the survey of whom 22.6% visited a Safe Space, accessing HIV testing (52.2%), mobile health services (21.2%) and counselling for distress (24.8%) while there. Beneficiaries of lower socioeconomic status (SES) were less likely to have visited a Safe Space, compared with those of higher SES (13.6% versus 25.3%; p < 0.01). Implementers described political, structural and financial challenges in identifying and setting up Safe Spaces that were safe, accessible and adequately-resourced, and challenges with AGYW not utilising them as expected. AGYW shared positive views of Safe Spaces, describing benefits such as access to computers and the internet, support with homework and job and education applications, and a space in which to connect with peers. Conclusion AGYW are attracted to Safe Spaces by educational and employment promoting interventions and recreational activities, and many will take up the offer of SRH services while there. The poorest AGYW are more likely to be excluded, therefore, an understanding of the obstacles to, and enablers of their inclusion should inform Safe Space intervention design.

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“…45 , 46 Another gap we identify is lack of focus and investment in women’s unique health care priorities across the lifespan, beyond our reproductive capacity. 47 – 50 Our priorities from high-income countries (HICs), 51 as well as LMICs also include violence reduction, mental health and support for women ageing with HIV. Efforts to collect disaggregated data that will allow us to understand women and gender diverse individuals’ unique experiences are still rare.…”

Section: Where Are We Nowmentioning

confidence: 99%

“…There are some notable recent examples of formal or academic researchers who have specifically reached out to include priorities of women living with HIV, such as Medeiros et al 51 and Tariq et al 176 However, these are still very much the exception rather than the rule. Over the years, the ATHENA Network has sought to ensure the meaningful involvement of women in all it has done since its inception in 2005, with women living with HIV on its steering group and involved in its diverse research, training and advocacy activities and co-publications.…”

Section: Accelerating Srhr: What Needs To Change?mentioning

confidence: 99%

What will it take to achieve the sexual and reproductive health and rights of women living with HIV?

Dunaway¹,

Brion²,

Hale³

et al. 2022

Womens Health (Lond Engl)

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This article outlines progress in realizing the sexual and reproductive health and rights of women and girls living with HIV over the last 30 years from the perspective of women living with HIV. It argues that the HIV response needs to go beyond the bio-medical aspects of HIV to achieve our sexual and reproductive health and rights, and considers relevant Joint United Nations Programme on HIV/AIDS (UNAIDS), World Health Organization, United States President’s Emergency Plan for AIDS Relief (PEPFAR), Global Fund and other guidelines, what engagement there has been with women living with HIV and whether guidelines/strategies have been adopted. It has been written by women living with HIV from around the world and a few key supporters. Co-authors have sought to collate and cite materials produced by women living with HIV from around the world, in the first known effort to date to do this, as a convergence of evidence to substantiate the points made in the article. However, as the article also argues, research led by women living with HIV is seldom funded and rarely accepted as evidence. Combined with a lack of meaningful involvement of women living with HIV in others’ research on us, this means that formally recognized evidence from women’s own perspectives is patchy at best. The article argues that this research gap, combined with the ongoing primacy of conventional research methods and topics that exclude those most affected by issues, and the lack of political will (and sometimes outright opposition) in relation to gender equality and human rights, adversely affect policies and programmes in relation to women’s rights. Thus, efforts to achieve an ethical, effective and sustainable response to the pandemic are hindered. The article concludes with a call to action to all key stakeholders.

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Women-centred HIV care: a scoping review to understand the current state of service delivery for women living with HIV globally

Cited by 4 publications

References 25 publications

Factors and Priorities Influencing Satisfaction with Care among Women Living with HIV in Canada: A Fuzzy Cognitive Mapping Study

Factors and Priorities Influencing Satisfaction with Care among Women Living with HIV in Canada: A Fuzzy Cognitive Mapping Study

Safe spaces for beneficiaries of a combination HIV prevention intervention for adolescent girls and young women in South Africa: access, feasibility, and acceptability

What will it take to achieve the sexual and reproductive health and rights of women living with HIV?

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