Withdrawal of mechanical ventilation in patients with amyotrophic lateral sclerosis: A questionnaire study

Ito, Hidetaka; Itai, Koichiro; Ito, Muneharu

doi:10.1016/j.jns.2017.08.3491

Cited by 1 publication

(1 citation statement)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Legally, in the UK and many other countries, ventilation is considered a medical treatment and the refusal of such treatment by a patient who has capacity must be complied with, and to continue that treatment without their consent constitutes a criminal offence [ 23 , 24 , 25 ]. However, this is not the case in all countries, with Japan [ 26 ] and Israel [ 27 ] being notable exceptions. The ability to control the potential future discontinuation of ventilation may be a factor for some patients in making decisions about starting this treatment [ 12 , 28 ].…”

Section: Introductionmentioning

confidence: 99%

The Use of Mechanical Ventilation Support at the End of Life in Motor Neurone Disease/Amyotrophic Lateral Sclerosis: A Scoping Review

et al. 2022

View full text Add to dashboard Cite

There has been an increase in the use of mechanical ventilation (MV) in motor neurone disease (MND) to alleviate symptoms related to hypoventilation. Little is known about its use at the end of life, and the withdrawal of MV is a challenging topic. A scoping review was conducted to map the existing evidence of ventilation use at the end of life in MND. The Joanna Briggs Institute methodological framework was used, and a total of 31 documents were included in the data extraction. Boarder themes around place, planning, cause and comments on death were identified. Our findings show that the focus of the literature has been on the process of the withdrawal of ventilation, creating the subthemes of timing and reason for withdrawal, along with ethical, emotional, and practical issues, medications used and the time until death. There is a foundation of evidence to guide the process and discuss the ethical and emotional issues of withdrawing ventilation. However, there remains limited evidence from patient and family member perspectives. Importantly, there is almost no evidence exploring dying with ventilation in place, the active or passive decisions around this process, how the interface might impact the dying process, or what families think about this.

show abstract

Section: Introductionmentioning

confidence: 99%