Why the (dis)agreement? Family context and child–parent perspectives on health‐related quality of life and psychological problems in paediatric asthma

Silva, Neuza; Crespo, Carla; Carona, Carlos; Bullinger, Monika; Canavarro, Maria Cristina

doi:10.1111/cch.12147

Cited by 51 publications

(49 citation statements)

References 63 publications

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“…Third, the replication of analyses crossing self-and proxy-reported data on pediatric QL outcomes contributes to improving the clinical validity of the observed results [98,105]. Fourth, not only does parent-child concordance tend to be moderate in pediatric QL assessments, but, perhaps most importantly, the strength and direction of this (dis)agreement may also be linked to modifiable family factors [106] that can be targeted in the assessments performed and the interventions designed for pedopsychiatric patients. Taking this rationale into account, a developmental approach would argue for the complementary use of self-reports and proxy reports in the QL assessment of children and adolescents with psychological disorders, which goes beyond the selective use of either source of information.…”

Section: Discussionmentioning

confidence: 98%

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

Carona

Silva

Moreira

2014

Expert Review of Pharmacoeconomics & Outcomes Research

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Research on the quality of life (QL) of children/adolescents with psychological disorders has flourished over the last few decades. Given the developmental challenges of QL measurements in pediatric populations, the aim of this study was to ascertain the extent to which a developmental approach to QL assessment has been applied to pedopsychiatric QL research. A systematic literature search was conducted in three electronic databases (PubMed, PsycINFO,SocINDEX) from 1994 to May 2014. Quantitative studies were included if they assessed the self or proxy-reported QL of children/adolescents with a psychological disorder. Data were extracted for study design, participants, QL instruments and informants, and statistical approach to age-related specificities. The systematic review revealed widespread utilization of developmentally appropriate QL instruments but less frequent use of both self and proxy reports and an inconsistent approach to age group specificities.Methodological guidelines are discussed to improve the developmental validity of QL research for children/adolescents with mental disorders.

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Section: Discussionmentioning

confidence: 98%

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

Carona

Silva

Moreira

2014

Expert Review of Pharmacoeconomics & Outcomes Research

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“…However, discrepancies between children's and adults' attitudes regarding HRQoL have been noted to exist in studies concerning healthy individuals as well as in patients with asthma (13,14).…”

Section: Key Notesmentioning

confidence: 99%

Self‐care management of type 1 diabetes has improved in Swedish schools according to children and adolescents

et al. 2017

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Aim: Age-appropriate support for diabetes self-care is essential during school time, and we investigated the perceived quality of support children and adolescents received in 2015 and 2008.Methods: This national study was based on questionnaires answered by children and adolescents aged 6-15 years of age with type 1 diabetes attending schools or preschools in 2008 (n = 317) and 2015 (n = 570) and separate parental questionnaires. The subjects were recruited by Swedish paediatric diabetes units, with 41/44 taking part in 2008 and 41/42 in 2015.

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“…The convergence or divergence of data obtained from multiple perspectives provides valuable information of different aspects of family processes. For instance, differences in family members' perspective regarding family processes could also suggest conflicting expectations and needs [53][54][55]. Left unresolved, these differences could lead to increased stress and conflict within families.…”

Section: Limitations Of This Study and Future Researchmentioning

confidence: 99%

Psychometric properties of the Family Resilience Assessment Scale: A Singaporean perspective

Chew

Haase

2016

Epilepsy & Behavior

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General rightsThis document is made available in accordance with publisher policies. Please cite only the published version using the reference above. Full terms of use are available: http://www.bristol.ac.uk/pure/about/ebr-terms In turn, their ability to cope with multiple demands is likely to affect young people's adaptation. The purpose of this study was to examine psychometric properties of the Family Resilience Assessment Scale (FRAS), an assessment tool that measures the construct of family resilience. A total of 152 young people with epilepsy, aged 13 to 16 years old, from KK Women's and Children's Hospital, Singapore, completed the FRAS along with Rosenberg's Self-Esteem scale. Factor structure of the FRAS was examined. Exploratory factor analysis resulted in a 7-factor solution -Meaning making and Positive outlook; Transcendence and spirituality; Flexibility and Connectedness; Social and economic resources (community); Social and economic resources (neighbors); Clarity and Open emotional expression; Collaborative problem-solving -accounting for 83.0% of the variance. Internal consistency of the scale was high (α=0.92). Family resilience was significantly correlated with higher levels of self-esteem. Our study provides preliminary findings that suggest FRAS is a reliable and valid scale for assessing the construct of family resilience among young people with epilepsy in Singapore.

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Why the (dis)agreement? Family context and child–parent perspectives on health‐related quality of life and psychological problems in paediatric asthma

Cited by 51 publications

References 63 publications

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

Applying a developmental approach to quality of life assessment in children and adolescents with psychological disorders: challenges and guidelines

Self‐care management of type 1 diabetes has improved in Swedish schools according to children and adolescents

Psychometric properties of the Family Resilience Assessment Scale: A Singaporean perspective

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