Why Me?: A Qualitative Study on the Experiences of Young Stroke Survivors in the Accra Metropolis of Ghana, West Africa

Opoku, Sussana; Eliason, Cecilia; Akpalu, Albert

doi:10.1177/2374373520967505

Cited by 12 publications

(5 citation statements)

References 59 publications

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“…Stroke affected their functional independence as they were unable to perform their activities of daily living, which included self-care or personal activities, home or family activities, work activities and social or leisure activities. The findings are similar to other studies (Cawood, Visagie & Mji 2016;Kalavina et al 2019;Opoku, Eliason & Akpalu 2020), which report that stroke leads to limitations with performing activities of daily living and also interferes with social activities of the survivors. Most of the participants reported functional limitations poststroke as they had to be assisted to perform their daily activities such as feeding, bathing, grooming, toileting, among others.…”

Section: Discussionsupporting

confidence: 91%

The impact of rehabilitation on the community life of stroke survivors in Accra, Ghana

Mohammed

Nyante²,

Mothabeng³

2023

S. Afr. j. physiother.

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Background: Return to pre-stroke life is of great importance to stroke survivors, their families and communities as stroke affects their ability to perform activities of daily living. It is therefore important to understand the impact of stroke rehabilitation on the community life of stroke survivors in Ghana as there are limited data.Objectives: Our study aimed to explore and describe the views of stroke survivors on the impact of stroke rehabilitation on their community life.Method: A descriptive qualitative study was conducted among 15 stroke survivors recruited from three selected hospitals in the Greater Accra Region of Ghana. Individual in-depth interviews were conducted using a semi-structured interview guide. Interview transcripts were analysed using thematic analysis and this gave rise to several themes.Results: The authors found that stroke left most of the survivors with functional limitations and they required various degrees of assistance to perform their activities of daily living. As the stroke survivors received rehabilitation, most of them mentioned improvements in function. However, most participants were still unable to return to work and enjoy social or leisure activities.Conclusion: Our study shows that attention needs to be given to the occupational and social management in rehabilitation as much as it is given to the physical management, to improve community integration post-stroke.Clinical implications: Our study highlights the need to take into consideration the occupational and social aspects of life as part of the rehabilitation process for stroke survivors.

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Section: Discussionsupporting

confidence: 91%

The impact of rehabilitation on the community life of stroke survivors in Accra, Ghana

Mohammed

Nyante²,

Mothabeng³

2023

S. Afr. j. physiother.

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“…Therefore, qualitative studies did not clearly respond to the inclusion criteria and were excluded from this review. Qualitative studies have explored particular lived experiences of stroke from the perspective of young adults (e.g., the coping experiences [ 47 ], the perceived needs and priorities [ 48 ], the experience of parenting [ 49 ], the lived experiences during the transition period from hospital discharge through the first weeks at home [ 50 ], the experiences of QoL in the recovery process across countries [ 51 ], the roles of service provision and return to work [ 52 ] etc.). Published protocols of studies, discussion papers, reviews, editorials, conference abstracts, books, reports, and dissertations were excluded.…”

Section: Methodsmentioning

confidence: 99%

Factors affecting the quality of life after ischemic stroke in young adults: a scoping review

Gurková

Štureková

Mandysová

et al. 2023

Health Qual Life Outcomes

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Purpose To synthesize the body of knowledge on the factors influencing the quality of life (QoL) after ischemic stroke (IS) in young adults. Methods Guidelines regarding the scoping review methodology developed by the Joanna Briggs Institute, and the PRISMA-ScR checklist for a scoping review was used in this paper. A total of 1197 studies were identified through a bibliographic search in Web of Science, MEDLINE, PsycInfo, ScienceDirect, Scopus, and ProQuest Science Database. Articles published between the years 2000–2021 were included. Results A total of nine papers were finally selected to respond to the research question. Three studies were prospective longitudinal studies compared QoL between young stroke and age-matched controls from the general population. Across all the analysed studies, 14 variables potentially associated with QoL were identified. QoL in young patients is mainly affected by clinical outcomes after IS (scored by the modified Rankin scale and the Barthel index—favourable initial functional status and higher independence in ADL leads to higher QoL) and psychological factors (post-stroke fatigue and depression—higher levels of fatigue and depression lead to lower QoL). The reviewed studies emphasized the importance of functional outcomes, post-stroke depression, fatigue and anxiety and early return to work. Conclusion Further longitudinal studies are needed to identify the trajectory of post-stroke psychosocial symptoms over time and other potential predictors of unfavourable long-term QoL, thus specific young stroke rehabilitation and stroke self-management support programmes should be developed (address physical, psychological factors which influence the psychosocial adaptation post-stroke and the perception of the QoL).

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“…This in turn, may impair their ability to meet physical, psychological and social needs, and potentially affect their overall health, quality of life, wellbeing, self-esteem, life satisfaction, sense of achievement and facilitation of individual identity, autonomy, security, and social status (Baldwin and Brusco, 2011;Morris, 2011;Edwards et al, 2018;La Torre et al, 2022). Second, the higher levels of anxiety and poor subjective cognitive function may be attributed to the uncertainty of the long-term outcomes, potential complications, and fear of stroke re-occurrence (Opoku et al, 2020). Third, while the data were not collected in this study, there is growing research on biological mechanisms such as neuroinflammation and infection potentially contributing to cognitive impairment post-stroke and overall psychological outcomes (Kliper et al, 2013;Milosevich et al, 2023).…”

Section: Occupational Functioning and Hrqol Domainsmentioning

confidence: 97%

Exploring unmet needs and preferences of young adult stroke patients for post-stroke care through PROMs and gender differences

Ibrahim,

Francis,

Sheehan

et al. 2024

Front. Stroke

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BackgroundStroke incidence among young adults of working age (under 65 years of age) has significantly increased in the past decade, with major individual, social, and economic implications. There is a paucity of research exploring the needs of this patient population. This study assessed: (1) young adult stroke patients' physical, psychological, and occupational functioning and health-related quality of life (HRQoL); and (2) post-stroke care preferences using patient-reported outcome measures (PROMs), with attention to gender differences.MethodsA cross-sectional pilot study was conducted. Sociodemographic and clinical characteristics were collected through chart review and data on occupational function, physical, psychological, and social wellbeing >90 days post-stroke through a self-reported survey. Descriptive statistics, gender-based, and regression analyses were conducted.ResultsThe sample included 85 participants. Participants reported impairments in both, occupational functioning, with 58.7% not returned to work (RTW), and HRQoL, specifically with social activities (37%), anxiety (34%), and cognitive function (34%). Women had significantly (p < 0.05) worse physical symptoms (sleep disturbance and fatigue), emotional health (depression, stigma, emotional dyscontrol) scores, and sense of self-identify post-stroke. Over 70% of participants preferred in-person post-stroke care led by health care providers and felt they would have benefited from receiving information on physical health (71.4%), emotional and psychological health (56.0%), RTW (38.1%), and self-identity (26.2%) post-stroke. Women preferred cognitive behavioral therapy (p = 0.018) and mindfulness-based stress reduction therapy (p = 0.016), while men preferred pharmacotherapy (p = 0.02) for psychological symptoms.ConclusionThis is the first study to report impaired HRQoL, psychological and occupational functioning using PROMs, with significant gender differences and preferences for post-stroke care delivery among young adult stroke patients at >90 days after stroke. The findings highlight the importance of needs, gender, and age-specific post-stroke education and interventions.

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Why Me?: A Qualitative Study on the Experiences of Young Stroke Survivors in the Accra Metropolis of Ghana, West Africa

Cited by 12 publications

References 59 publications

The impact of rehabilitation on the community life of stroke survivors in Accra, Ghana

The impact of rehabilitation on the community life of stroke survivors in Accra, Ghana

Factors affecting the quality of life after ischemic stroke in young adults: a scoping review

Exploring unmet needs and preferences of young adult stroke patients for post-stroke care through PROMs and gender differences

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