Why caregivers of people with dementia and memory loss don't use services

Brodaty, Henry; Thomson, Cathy; Thompson, Claire; Fine, Michael

doi:10.1002/gps.1322

Cited by 412 publications

(463 citation statements)

References 40 publications

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“…But by using various recruiting pathways, it was possible to affirm that a substantial fraction of the family caregivers had never used caregiver counselling previously, as would be expected in a representative sample. The fact that over 50% were non-users has also been seen in other studies (Brodaty et al 2005;Lamura et al 2006;Philip and Ghosh 1992;Toseland et al 1999). It is noticeable that only slightly more than half of the respondents (59%) know about caregiver counselling, which is comparable with statements by family caregivers in North America (awareness quotas between 55.6% and 63.2%) (Toseland et al 1999).…”

Section: Structural Quality (S): Non-personal Factors (S I); Person-rsupporting

confidence: 74%

“…However, Brodaty et al (2005) report that the utilization of support offers by family caregivers is low, even though these are well known and even when the services are free of charge (Kosloski and Montgomery 1993). This means that there must be other more significant variables that determine utilization.…”

Section: Structural Quality (S): Non-personal Factors (S I); Person-rmentioning

confidence: 99%

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Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Gräßel

Luttenberger

Trilling³

et al. 2010

Eur J Ageing

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Caregiver counselling has proved to be effective in reducing the burden of family caregivers of dementia patients. Nevertheless, little is known about the influencing factors for utilization and quality expectations of family caregivers. In this article, we address the following questions on the theoretical base of the Andersen/ Newman model: Which variables of the care situation, the caregivers and their attitudes act as predictors for the utilization of caregiver counselling? What are the views of caregivers about the quality of caregiver counselling? The cross-sectional study was carried out as an anonymous written survey of family caregivers of dementia patients in four regions, both urban and rural, of Germany. Quantitative and qualitative data from 404 family caregivers were analysed using binary logistic regression analysis and qualitative content analysis, respectively. The only significant predictor for utilization is the assessment of how helpful caregiver counselling is for the individual care situation. In the sensitivity analysis 'accessibility of caregiver counselling' was additionally predictive for usage. Family caregivers most frequently expressed a wish for advice about further 'support offers' by qualified counsellors. In order to increase the rate of utilization, family caregivers must be convinced of the relevant advantages of using caregiver counselling. Counselling services should provide information about further support offers and give practical help in filling out application forms.

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Section: Structural Quality (S): Non-personal Factors (S I); Person-rsupporting

confidence: 74%

Section: Structural Quality (S): Non-personal Factors (S I); Person-rmentioning

confidence: 99%

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Gräßel

Luttenberger

Trilling³

et al. 2010

Eur J Ageing

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“…17,18 This resonated with the participants having a huge caregiving burden, which they felt was present for 24 hours in the day.…”

Section: Views and Responsibilities Of The Caregivermentioning

confidence: 98%

“…16 It has emerged that caregivers of people with dementia engage in more caregiving tasks than other long-term illnesses, and, as already been reported, have decreased quality of life, and higher anxiety and depression than caregivers of people with physical illnesses. 17 The amount of time spent in performing caregiving tasks is expected to increase as the dementia progresses. 18 This too is not unexpected, as dementia is a serious neurodegenerative condition, with a progression over approximately 10 years from diagnosis to death.…”

Section: Introductionmentioning

confidence: 99%

Caregiving for people with dementia in a rural context in South Africa

Gurayah

2015

South African Family Practice

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Background: This research is an exploratory pilot study into the phenomenon of caregiving for people with dementia in a rural context in South Africa. Method: This study used a qualitative method of inquiry for conducting individual interviews with five caregivers to collect the data. The interviews were conducted in the local language of isiZulu. All interviews were audiotaped, and then transcribed into English. Transcriptions were analysed using thematic analysis. Findings: There were three main emergent themes, namely views and responsibilities of the caregiver, impact of caregiving, and skills and services to assist the caregiver. There were numerous subsidiary themes such as acceptance of the ageing process, a sense of duty and kinship in African culture, and dealing with problem behaviours. Caregiving was also viewed as a character-building experience, and has major implications such as promoting social isolation, restricting activities of daily living, reducing employment and increasing financial burden. Services that would alleviate caregiver burden are education, caregiver training, a financial grant and respite care. Conclusions: Although these findings are not generalisable, it would appear that caregivers of people with dementia suffer significant psychosocial distress, and would benefit from emotional and financial support. It remains to be seen who will provide this support, but policy-makers as well as governmental and non-governmental organisations will have to factor this into their forward planning to render an effective service for people with dementia and their families. Advocacy groups should also disseminate information on dementia and caregiving responsibility, whilst healthcare professionals should screen for caregiver stress or caregiver burden in individuals caring for people with dementia.

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“…5 Particularly low service use has been reported among carers of people with neurological impairments [5][6][7] and by carers belonging to minority groups 8 or living in rural areas. 9 Older carers may have particular problems in accessing services.…”

mentioning

confidence: 99%

Few urban–rural differences in older carers' access to community services

Lucke

Russell²,

Tooth³

et al. 2008

Aust. Health Review

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To examine perceived adequacy of access to information and services, and perceived quality of health and community services, among older female carers across rural and urban areas primary data were collected as part of the ongoing Australian Longitudinal Study on Women's Health (ALSWH). In all, 306 women in their 70s who had family caregiving roles responded to a nested substudy of the ALSWH. There were few reported differences between urban and rural older carers in their access to health and community services for the people they cared for. In fact, those in rural areas fared slightly better than those in urban areas in awareness of service availability and perceived quality of service. Many older carers in both rural and urban areas do not access health and community services even when appropriate services are available. A better understanding is needed of how support can be delivered to com- MANY PEOPLE WITH long-term disability, illness or frailty are cared for by family members. While there are many positive outcomes from caregiving, such as personal growth 1 or feelings of gratification, pride and resiliency, 2 there is also evidence that the task of providing care can become an overwhelming burden which results in significant negative consequences for the carer' s physical and mental health and for the community in general. 3 Appropriate services have the potential to reduce the stress and burden felt by carers. 4 A number of studies have identified high levels of unmet need for services among carers but it is not clear whether it is lack of services or reluctance to use them which causes the problem. 3 Reasons for low use of existing services are varied and may include the belief that caring is part of the role of spouse or family member, the care recipient not wishing to accept services, the service not being suitable for some reason, carers not being aware of service availability, or problems

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Why caregivers of people with dementia and memory loss don't use services

Cited by 412 publications

References 40 publications

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Caregiving for people with dementia in a rural context in South Africa

Few urban–rural differences in older carers' access to community services

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Why caregivers of people with dementia and memory loss don't use services

Cited by 412 publications

References 40 publications

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Caregiving for people with dementia in a rural context in South Africa

Few urban&ndash;rural differences in older carers' access to community services

Contact Info

Product

Resources

About

Few urban–rural differences in older carers' access to community services