Whole genome sequencing in (recurrent) glioblastoma: challenges related to informed consent procedures and data sharing
Mira C. Hasner,
Mark P. van Opijnen,
Filip Y. F. de Vos
et al.
Abstract:Increased use of whole genome sequencing (WGS) in neuro-oncology for diagnostics and research purposes necessitates a renewed conversation about informed consent procedures and governance structures for sharing personal health data. There is currently no consensus on how to obtain informed consent for WGS in this population. In this narrative review, we analyze the formats and contents of frameworks suggested in literature for WGS in oncology and assess their benefits and limitations. We discuss applicability,… Show more
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