Who Searches the Internet for Health Information?

Bundorf, M. Kate; Wagner, Todd H.; Singer, Sara J.; Baker, Laurence C.

doi:10.1111/j.1475-6773.2006.00510.x

Cited by 261 publications

(256 citation statements)

References 16 publications

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“…support their self-management, 16,17 and some now turn to online resources as a primary source of information. 18,19 These tools augment patients' self-care activities (a fundamental goal of health informatics technology) 20 by improving organization, providing information, and enhancing communication. Moreover, patients who use these resources report increased health-related knowledge and a greater sense of empowerment to improve their health.…”

Section: Introductionmentioning

confidence: 99%

How Can eHealth Technology Address Challenges Related to Multimorbidity? Perspectives from Patients with Multiple Chronic Conditions

et al. 2015

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BACKGROUND: Patient eHealth technology offers potential support for disease self-management, but the value of existing applications for patients with multiple chronic conditions (MCCs) is unclear. OBJECTIVES: To understand self-management and health care navigation challenges that patients face due to MCCs and to identify opportunities to support these patients through new and enhanced eHealth technology. DESIGN: After administering a screening survey, we conducted 10 focus groups of 3-8 patients grouped by age, sex, and common chronic conditions. Patients discussed challenges associated with having MCCs and their use of (and desires from) technology to support self-management. Three investigators used standard content analysis methods to code the focus group transcripts. Emergent themes were reviewed with all collaborators, and final themes and representative quotes were validated with a sample of participants. PARTICIPANTS: Fifty-three individuals with≥3 chronic conditions and experience using technology for healthrelated purposes. KEY RESULTS: Focus group participants had an average of five chronic conditions. Participants reported using technology most frequently to search for health information (96 %), communicate with health care providers (92 %), track medical information (83 %), track medications (77 %), and support decision-making about treatment (55 %). Three themes emerged to guide eHealth technology development: (1) Patients with MCCs manage a high volume of information, visits, and self-care tasks; (2) they need to coordinate, synthesize, and reconcile health information from multiple providers and about different conditions; (3) their unique position at the hub of multiple health issues requires self-advocacy and expertise. Focus groups identified desirable eHealth resources and tools that reflect these themes. CONCLUSIONS:Although patients with multiple health issues use eHealth technology to support self-care for specific conditions, they also desire tools that transcend disease boundaries. By addressing the holistic needs of patients with MCCs, eHealth technology can advance health care from a disease-centered to a patientcentered model.

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Section: Introductionmentioning

confidence: 99%

How Can eHealth Technology Address Challenges Related to Multimorbidity? Perspectives from Patients with Multiple Chronic Conditions

et al. 2015

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“…It is important for healthcare professionals, specifically physicians, to be proactive and to refer families to evidencebased websites following a diagnosis. This referral could save time, support the patient-health care professional relationship, and prevent the negative consequences associated with poor quality health information 14,15 .…”

Section: Discussionmentioning

confidence: 99%

“…Many families rely on the Internet to look for information and understand their health issues 14,15 , especially in relation to chronic conditions 15 . The quality of the information found on the internet can be highly variable, and therefore it has been suggested that health professionals should be proactive in directing families to high quality, evidence-based sources 16 , and provide feedback on information their patients discover on the internet 17,18 .…”

mentioning

confidence: 99%

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

Camden

Foley

Anaby

et al. 2016

Disability and Health Journal

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Background : Developmental coordination disorder (DCD) is a prevalent neurodevelopmental disorder. Best practices include raising parents' awareness and building capacity but few interventions incorporating these best practices are documented. Objective : To examine whether an evidence-based online module can increase the perceived knowledge and skills of parents of children with DCD, and lead to behavioural changes when managing their child's health condition. Methods : A mixed-methods, before-after-follow-up design guided by the theory of planned behaviour was employed. Data about the knowledge, skills and behaviours of parents of children with DCD were collected using questionnaires prior to completing the module, immediately after, and three months later. One-way repeated measures ANOVAs and thematic analyses were performed on data as appropriate. Results : Fifty-eight participants completed all questionnaires. There was a significant effect of time on self-reported knowledge [F(2.00,114.00)=16.37, p=0.00] and skills [F(1.81,103.03)=51.37, p=0.00] with higher post-and follow-up scores than pre-intervention scores. Thirty-seven (65%) participants reported an intention to change behaviour post-intervention; 29 (50%) participants had tried recommended strategies at follow-up. Three themes emerged to describe parents' behavioural change: sharing information, trialing strategies and changing attitudes. Factors influencing parents' ability to implement these behavioural changes included clear recommendations, time, and 'right' attitude. Perceived outcomes associated with the parental behavioural changes involved improvement in well-being for the children at school, at home, and for the family as a whole. Conclusions : The online module increased parents' self-reported knowledge and skills in DCD management. Future research should explore its impacts on children's outcomes long-term. Enclosed please find the research article entitled "Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder"-for consideration by Disability and Health Journal. The article consists of a mixed-method, before-after trial with a threemonth follow-up. In this trial, parents of children with Developmental Coordination Disorder (DCD) completed an online evidence-based module providing information and strategies to manage this prevalent and potentially disabling chronic health condition. This manuscript will be of interest to your journal as the families of children with motor delays, or "suspected DCD", typically visit physicians and many other health care professionals to find out "what is wrong with their child". Previous papers have suggested that providing evidence-based information to families is a key strategy in equipping families to support their children with DCD. However, no specific intervention has been tested so far to evaluate the impact of providing information to families. This study evaluated whether an evidence-based online module could inc...

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“…É mais provável que um indivíduo acometido por uma patologia busque informações sobre saúde na rede do que um indivíduo sadio (nettleton, 2004;BeRGeR et al, 2005;BundoRF et al, 2006). Portadores de patologias consideradas estigmatizantes (depressão, incontinência urinária, herpes, entre outras) encontram no anonimato das relações virtuais um caminho, pois a possibilidade de falar sobre suas queixas aumenta consideravelmente com a comunicação à distância, tanto com médicos quanto com outros indivíduos portadores de quadros semelhantes.…”

Section: A Internet Como Recursounclassified

Internet na promoção da saúde: um instrumento para o desenvolvimento de habilidades pessoais e sociais

Garbin¹,

Guilam²,

Neto³

2012

Physis

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O desenvolvimento de habilidades pessoais e sociais, no sentido da aquisição de maior controle e maior poder de decisão (Empowerment), é considerado estratégia de fundamental importância na promoção da saúde. O acesso à informação é uma das bases para tal. Muito vem sendo dito e escrito sobre o imenso potencial da internet, estudos apontam-na como um instrumento especial para obtenção de informação e de capacitação, tanto individual, quanto comunitária. Este texto se apoia na literatura científica nacional e internacional sobre promoção da saúde, informação e saúde na internet e divisão/exclusão digital, com o objetivo de discutir a possibilidade de utilização da rede como recurso em projetos voltados para a promoção da saúde, apontando pontos positivos e possíveis barreiras, com destaque para a questão da divisão/exclusão digital de boa parte da população brasileira. Os autores consideram que a internet pode vir a ser uma grande aliada na construção de projetos de promoção da saúde. No entanto, no desenvolvimento desses projetos, é fundamental considerar os potenciais riscos e compreender que as estratégias e programas na área da promoção da saúde precisam se adaptar às necessidades e possibilidades de cada local e levar em conta as diferenças sociais, culturais e econômicas.

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Who Searches the Internet for Health Information?

Abstract: Populations with serious health needs and those facing significant barriers in accessing health care in traditional settings turn to the Internet for health information.

Cited by 261 publications

References 16 publications

How Can eHealth Technology Address Challenges Related to Multimorbidity? Perspectives from Patients with Multiple Chronic Conditions

How Can eHealth Technology Address Challenges Related to Multimorbidity? Perspectives from Patients with Multiple Chronic Conditions

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

Internet na promoção da saúde: um instrumento para o desenvolvimento de habilidades pessoais e sociais

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