Who Cares? A Profile of People who Care for Relatives with a Mental Disorder

Pirkis, Jane; Burgess, Philip; Hardy, Judy; Harris, Meredith; Slade, Tim; Johnston, Amy

doi:10.3109/00048674.2010.493858

Cited by 47 publications

(62 citation statements)

References 9 publications

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“…Mental health care for older people is primarily delivered in the community (WHO, 2013, Commonwealth of Australia, 2009, with significant input from informal carers (Pirkis et al, 2010). In Australia it is estimated that there are 2.7 million informal carers (12% of the population), who provide unpaid care to family members or friends with a disability, mental illness or chronic conditions (ABS 2012).…”

Section: Introduction (5304)mentioning

confidence: 99%

Carers' experiences of accessing and navigating mental health care for older people in a rural area in Australia

Dawson

Gerace

Muir‐Cochrane

et al. 2015

Aging & Mental Health

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(250) ObjectivesMental health care for older people is primarily delivered in the community and is largely dependent on informal carers. Mental health policy encourages partnerships between carers and service providers to facilitate service access, coordination and positive experience of care. However, carers often lack information and support from services, with the potential for carer burden, and negative impacts on their own health and capacity to fulfil caring tasks. This paper explores rural carers' experiences of accessing care from a range of services for older people with mental health problems. MethodsThe Pathways Interview Schedule was used to facilitate nine in-depth care journey interviews with eleven carers of older people with a mental health problem. Interviews explored their journeys to and through mental health, aged care, primary care and social care services.Framework analysis was used to explore carers' experiences and perceptions of care with a focus on access enablers and barriers. ResultsCarers had a significant role in navigating services and operationalising care for their relative.Enablers to accessing care included carer knowledge and workers actively involving carers in planning. Barriers included carer mental health literacy, consumer and carer readiness for services, and worker misinterpretation of confidentiality and privacy laws. ConclusionCarers should be considered key partners in mental health care planning that crosses service sectors. For this to occur changes are required at the worker level, including increased communication between mental health workers and carers, and the service level, involving training for staff in interpreting confidentiality and privacy policy.

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Section: Introduction (5304)mentioning

confidence: 99%

Carers' experiences of accessing and navigating mental health care for older people in a rural area in Australia

Dawson

Gerace

Muir‐Cochrane

et al. 2015

Aging & Mental Health

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“…A large proportion of people in developed countries have such a role (Collings, 2009;Sinha, 2013), with approximately 9 million people in the United States caring for a person with a mental illness (AARP Public Policy Institute, 2015). In Australia, 15% of the adult population (2.4 million people) are estimated to care for a person with a mental illness (Pirkis et al, 2010).…”

Section: Introductionmentioning

confidence: 99%

Smoking Cessation Care for People with a Mental Illness: Family Carer Expectations of Health and Community Services

et al. 2016

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Introduction: Smoking prevalence remains high among people with a mental illness, contributing to higher levels of morbidity and mortality. Health and community services are an opportune setting for the provision of smoking cessation care. Although family carers are acknowledged to play a critical role in supporting the care and assistance provided by such services to people with a mental illness, their expectations regarding the delivery of smoking cessation care have not been examined.Aims: To explore family carer expectations of smoking cessation care provision by four types of health services, to clients with a mental illness, and factors associated with expectations.Methods: A cross-sectional survey was conducted with carers of a person with a mental illness residing in New South Wales, Australia. Carers were surveyed regarding their expectations of smoking cessation care provision from four types of health services. Possible associations between carer expectation of smoking cessation care provision and socio-demographic and attitudinal variables were explored.Results: Of 144 carers, the majority of carers considered that smoking cessation care should be provided by: mental health hospitals (71.4%), community mental health services (78.0%), general practice (82.7%), and non-government organisations (56.6%). The factor most consistently related to expectation of care was a belief that smoking cessation could positively impact mental health.Conclusions: The majority of carers expected smoking cessation treatment to be provided by all services catering for people with a mental illness, reinforcing the appropriateness for such services to provide smoking cessation care for clients in an effective and systematic manner.

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“…En rekke studier fra ulike fagfelt, viser at pårørende opplever manglende gjensidig informasjon, manglende involvering i beslutninger og manglende innflytelse (Dybwik et al, 2011;Jonasson, Liss, Westerlind & Berterö, 2010;Pirkis, Burgess, Hardy, Harris, Slade & Johnston, 2010;Montgomery & Koloski, 2009;Gray, Robinson, Seddon & Roberts, 2008;Berglund, 2007). Forskning om pårørendeinvolvering legger stor vekt på at samarbeidet mellom helsepersonell og pårørende bør vaere planlagt og strukturert (Bøckmann & Kjellevold, 2010;Jonasson et al, 2010).…”

Section: Bakgrunnunclassified

“…Norheim & Sommerseth (2014) fant at det for pårørende til eldre i sykehjem, først og fremst var viktig å bli sett og føle seg respektert. Pirkis et al (2010) hevder at mangel på respekt fra andre kan vaere en kilde til utvikling av psykisk lidelse og psykologisk stress blant pårørende. Dersom belastningene blir for store, kan det vaere fare for at den pårørende selv utvikler helseproblemer og/eller at relasjonen til den en er pårørende til, blir konfliktfylt (Dybwik et al, 2011;Holst & Edberg, 2011;Weimand, Hedelin, Sällström & Hall-Lord, 2010;Koerner & Kenyon, 2007;Ulstein, 2007).…”

Section: Bakgrunnunclassified

“…Resultatene støtter opp under funn fra tidligere studier fra ulike fagfelt når det gjelder pårørendes opplevelse av mangel på informasjon, inkludering og samarbeid fra helsetjenestens side (Norheim & Sommerseth, 2014;Weimand, 2012;Dybwik et al, 2011;Pirkis et al 2010;Montgomery & Koloski, 2009;Gray et al, 2008;Koerner & Kenyon, 2007;Lewis, 2007), men studien bringer også inn nye dimensjoner. Dette er for det første knyttet til sammenhengen mellom pårørendes behov og den familiaere relasjonen til den en er pårørende til.…”

Section: Diskusjonunclassified

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Den familiære relasjonens betydning for pårørendes behov i møte med helsetjenesten

Hanssen

Sommerseth

2015

NorTidHelse

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Who Cares? A Profile of People who Care for Relatives with a Mental Disorder

Cited by 47 publications

References 9 publications

Carers' experiences of accessing and navigating mental health care for older people in a rural area in Australia

Carers' experiences of accessing and navigating mental health care for older people in a rural area in Australia

Smoking Cessation Care for People with a Mental Illness: Family Carer Expectations of Health and Community Services

Den familiære relasjonens betydning for pårørendes behov i møte med helsetjenesten

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