Wheelchair use by patients with amyotrophic lateral sclerosis: A survey of user characteristics and selection preferences

Trail, Marilyn; Nelson, Naomi; Van, John; Appel, Stanley H.; Lai, Eugene C.

doi:10.1053/apmr.2001.18062

Cited by 42 publications

(25 citation statements)

References 9 publications

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“…However, not everyone with ALS at any particular time needs a wheelchair or has difficulty operating a wheelchair. In a survey of 42 individuals with ALS who used wheelchairs, respondents reported an average time of 2.1 years from symptom onset to wheelchair purchase [16]. In the same survey, 26 individuals (62%) indicated that they no longer could use a manual wheelchair independently.…”

Section: Amyotrophic Lateral Sclerosismentioning

confidence: 99%

“…In the same survey, 26 individuals (62%) indicated that they no longer could use a manual wheelchair independently. However, only 13 of these individuals were using a powered wheelchair [16]. The number of individuals with ALS who use wheelchairs is estimated based on the observation that the average time from symptom onset to wheelchair purchase was 2.1 years [16] and the survival rate at 2 years from symptom onset is 80 percent [17].…”

Section: Amyotrophic Lateral Sclerosismentioning

confidence: 99%

“…However, only 13 of these individuals were using a powered wheelchair [16]. The number of individuals with ALS who use wheelchairs is estimated based on the observation that the average time from symptom onset to wheelchair purchase was 2.1 years [16] and the survival rate at 2 years from symptom onset is 80 percent [17]. This finding leads to an estimate that 80 percent of individuals diagnosed with ALS need a wheelchair for mobility at any given time.…”

Section: Amyotrophic Lateral Sclerosismentioning

confidence: 99%

“…Fatigue or weakness can also make navigating long distances difficult for a wheelchair user. Diagnoses that can produce muscle fatigue or weakness include MS (43%-90% of cases) [4,36], severe TBI (37%-50%) [54,57], and ALS (26%) [16].…”

Section: Upper-body Physical Impairmentmentioning

confidence: 99%

“…Limited head/neck movement is particularly important when wheelchair users back up, since they have difficulty seeing obstacles behind the wheelchair. Diagnoses that can result in limited head/neck movement include SCI above the C4 level (100% of cases), ALS (26%) [16], and MS (43%-90%) [4,36].…”

Section: Visual Impairment and Wheeled Mobilitymentioning

confidence: 99%

See 4 more Smart Citations

How many people would benefit from a smart wheelchair?

Simpson

LoPresti²,

Cooper³

2008

JRRD

202

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Abstract-Independent mobility is important, but some wheelchair users find operating existing manual or powered wheelchairs difficult or impossible. Challenges to safe, independent wheelchair use can result from various overlapping physical, perceptual, or cognitive symptoms of diagnoses such as spinal cord injury, cerebrovascular accident, multiple sclerosis, amyotrophic lateral sclerosis, and cerebral palsy. Persons with different symptom combinations can benefit from different types of assistance from a smart wheelchair and different wheelchair form factors. The sizes of these user populations have been estimated based on published estimates of the number of individuals with each of several diseases who (1) also need a wheeled mobility device and (2) have specific symptoms that could interfere with mobility device use.

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Section: Amyotrophic Lateral Sclerosismentioning

confidence: 99%

Section: Amyotrophic Lateral Sclerosismentioning

confidence: 99%

Section: Amyotrophic Lateral Sclerosismentioning

confidence: 99%

Section: Upper-body Physical Impairmentmentioning

confidence: 99%

Section: Visual Impairment and Wheeled Mobilitymentioning

confidence: 99%

See 3 more Smart Citations

How many people would benefit from a smart wheelchair?

Simpson

LoPresti²,

Cooper³

2008

JRRD

202

View full text Add to dashboard Cite

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Amyotrophic lateral sclerosis patients' self‐reported satisfaction with assistive technology

2011

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Assistive devices are prescribed for amyotrophic lateral sclerosis (ALS) patients with motor deficits, but little is known about their perceived benefit. Therefore, we assessed ALS patients’ satisfaction with commonly prescribed devices. Methods A telephone survey of 63 ALS patients from a single multidisciplinary clinic was conducted to assess the frequency of use, perceived usefulness, and satisfaction with 33 assistive devices. Results Of those assistive technologies used “often or always” by ≥ 20% of respondents, arm rails by the toilet, elevated toilet seat, shower seat, shower bars, and slip-on shoes were ranked very highly, for both usefulness and satisfaction. The ankle brace for ambulation, transfer board, speaker phone, and electronic seating controls were ranked highly. The button hook, dressing stick, and long-handled reaching tool received low ratings for both usefulness and satisfaction. Conclusions ALS patients reported high usefulness and satisfaction with all bathroom adaptive devices and certain low technology devices.

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Taking the eye road: A new access method for powered mobility in amyotrophic lateral sclerosis

Geronimo

2019

Muscle and Nerve

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show abstract

Wheelchair use by patients with amyotrophic lateral sclerosis: A survey of user characteristics and selection preferences

Cited by 42 publications

References 9 publications

How many people would benefit from a smart wheelchair?

How many people would benefit from a smart wheelchair?

Amyotrophic lateral sclerosis patients' self‐reported satisfaction with assistive technology

Taking the eye road: A new access method for powered mobility in amyotrophic lateral sclerosis

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