What survivors see: Creative condemnations of total institutionalization

A systematic review of photovoice research methods with people with intellectual disabilities

“…More commonly researchers added opportunities for individual interviews about the photographs taken in combination with group discussions (Booth & Booth, 2003; Kim et al, 2021; Ollerton & Horsfall, 2013; Pallisera et al, 2016; Povee et al, 2014; Rinaldi, 2021; St. John et al, 2018; Watchman et al, 2020; Williamson et al, 2020) or substituted individual interviews for the group discussions usually employed in photovoice projects (Akkerman et al, 2014; Aldridge, 2007; Benoot et al, 2021; Dorozenko et al, 2015; Garrels & Sigstad, 2019; Jurkowski & Paul‐Ward, 2007; Krisson et al, 2021; Ottmann & Crosbie, 2013; Overmars‐Marx et al, 2018; Tajuria et al, 2017; Wass & Safari, 2020; Watchman et al, 2020; Weiss et al, 2017; Wos & Baczała, 2021). Frequently used questions were ‘what is in this photograph?’; ‘why did you take it?’; ‘how does this photograph make you feel?’.…”

“…Researchers justified this departure from the usual photovoice method by asserting that individual interviews allowed more sensitive issues to be discussed that might cause discomfort or embarrassment in group situations (Kim et al, 2021; Wos & Baczała, 2021), to explore personal issues and individual stories in more depth (Booth & Booth, 2003; Jurkowski & Paul‐Ward, 2007), facilitate reflection (Weiss et al, 2017) and minimise the influence of peers (Overmars‐Marx et al, 2018). Scheduling more than one interview can be helpful to ensure familiarity with the interviewer and build trust (Overmars‐Marx et al, 2018; Rinaldi, 2021).…”

“…A range of adaptations to the original photovoice method were used by researchers in order to involve people who present with diverse More commonly researchers added opportunities for individual interviews about the photographs taken in combination with group discussions (Booth & Booth, 2003;Kim et al, 2021;Ollerton & Horsfall, 2013;Pallisera et al, 2016;Povee et al, 2014;Rinaldi, 2021;St. John et al, 2018;Watchman et al, 2020;Williamson et al, 2020) 'what is in this photograph?…”

“…In some studies this assistance was formalised with each participant with intellectual disabilities being allocated a supporter, either a student or junior researcher at the researchers' university (Rinaldi, 2021;St. John et al, 2021;van Heumen & Schippers, 2016) or someone from the participants' work (Akkerman et al, 2014), family or social network (Schleien et al, 2013;Tajuria et al, 2017;Williamson et al, 2020).…”

“…Few researchers described negotiating ownership of photographs, photo-release permissions, legal definitions of privacy and defamation, rights to disseminate photographs with participants, or even risks of negative attention that photographing their local community might present for participants (Power & Bartlett, 2018). Provision of emotional support and aftercare for participants dealing with potentially upsetting and traumatic material was mentioned in Kim et al (2021) and Rinaldi (2021) but otherwise given little consideration.…”