What place is there for shared housing with individualized disability support?

Measurable Indicators of CRPD for People with Intellectual and Developmental Disabilities within the Quality of Life Framework

“…Article 19 (living independently and being included in the community): 14 papers [ 8 , 38 , 39 , 40 , 42 , 45 , 47 , 49 , 50 , 53 , 63 , 66 , 68 , 69 ] mention personal outcomes or indicators associated with the right to live independently and be included in the community (i.e., not to be institutionalized in segregated environments, not to be restricted in options for in-home residential and other community support services). To achieve this, the papers highlighted the right to receive the necessary individualized supports (person-centered planning, individualized support to live more independently) for everyday activities to do with autonomy in the home (e.g., getting to appointments, running errands, housework, personal finances, heavy household chores, preparing meals, personal care and medical care); support from professionals (sufficient personal resources) and service providers (to organize preferred housing, help find housemates, forge social connections); in housing, to facilitate flexibility in terms of rules and staff control, freedom to move around and to arrange daily home life, enjoy own space, individualized care, small groups, living with their partner; trust and support from family (role of the family as a source of support and as facilitators of autonomy, opportunities to practice skills, avoiding overprotection); special attention to access supports during and after moving (to organize move, types of support, relationships with supporters, quality of supporters); being within walking distance of amenities and shops; support for older people with disability; control over support arrangements (choose support workers and the kind of support they receive); housing affordability; access to information on independent living experiences.…”

“…Article 5 (equality and non-discrimination): Five papers [ 49 , 50 , 54 , 69 , 73 ] identify the indicators and personal outcomes of not suffering stigma; not suffering discrimination (e.g., in insurance matters, in access to health care); not experiencing rejection and denial of their individuality, adulthood and capacity.…”

“…Article 22 (respect for privacy): The four papers [ 40 , 49 , 50 , 69 ] that allude to this right identify the following indicators and personal outcomes: respect for privacy by flatmates, parents and caregivers (having their own room and space: private, peace and quiet; privacy of personal and intimate information; privacy related to sexuality).…”

“…Article 28 (adequate standard of living and social protection): 10 studies [ 8 , 40 , 43 , 47 , 53 , 54 , 59 , 66 , 67 , 69 ] specify personal outcomes or indicators associated with this Article: financial independence (adequate subsistence base); sufficient financial income to access housing (housing affordability); safe, accessible and suitable housing; aid to cover the additional expenses of supports and specialist care (economic support); having the necessary assistive products for environment and self-care (knowledge and awareness about them; customized); personal assistant when needed; leisure activities in people’s home (e.g., listening to the radio, playing instruments, being at home with friends); saving and budgeting (including for holidays); satisfaction with income; assistance with managing money and budgeting; receiving disability benefits (not losing benefits for being employed); easing bureaucracy involved in getting personal assistance and personal budgets; flexibility of support funded; provision of social assistance when needed; existence of personal budgets/personal assistance schemes and awareness of these by people with disability; stability of funding over time; strong supportive legislation.…”

Improving the transition process to independent living for adolescents with profound intellectual disabilities. Experiences of parents and employees

“…In previous literature and studies, we find different designations on how to describe housing for PID children such as clustered housing [32], shared housing [33] and group homes [5]. In our study, we use 'group homes' as a term for housing for PID children/adolescents.…”