2017
DOI: 10.2196/jmir.7212
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What Patients Value About Reading Visit Notes: A Qualitative Inquiry of Patient Experiences With Their Health Information

Abstract: BackgroundPatients are increasingly asking for their health data. Yet, little is known about what motivates patients to engage with the electronic health record (EHR). Furthermore, quality-focused mechanisms for patients to comment about their records are lacking.ObjectiveWe aimed to learn more about patient experiences with reading and providing feedback on their visit notes.MethodsWe developed a patient feedback tool linked to OpenNotes as part of a pilot quality improvement initiative focused on patient eng… Show more

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Cited by 79 publications
(100 citation statements)
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References 35 publications
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“…In another qualitative review of OpenNotes and a reporting tool by Gerard et al, they reported on eight themes: "confirm and remember next steps," "quicker access and results," "positive emotions" and "sharing information with care partners," "accuracy and correcting mistakes," "partnership and engagement," "bidirectional communication and education," and "importance of feedback." 15 These were similar to our positive themes of convenience, communication, and education.…”
Section: Discussionsupporting
confidence: 74%
See 1 more Smart Citation
“…In another qualitative review of OpenNotes and a reporting tool by Gerard et al, they reported on eight themes: "confirm and remember next steps," "quicker access and results," "positive emotions" and "sharing information with care partners," "accuracy and correcting mistakes," "partnership and engagement," "bidirectional communication and education," and "importance of feedback." 15 These were similar to our positive themes of convenience, communication, and education.…”
Section: Discussionsupporting
confidence: 74%
“…Furthermore, a portal-based patient feedback tool as reported by several authors would be of value for reporting a variety of patient issues on an ongoing basis. 15,18…”
Section: Lessons Learned and Improvement Opportunitiesmentioning
confidence: 99%
“…Evidence indicates that such access improves communication and trust, patient safety, and potentially patient outcomes. [20][21][22][23][24] Two large integrated healthcare systems that launched tethered patient portals in 2003 with significant patient adoption and sustained use are Kaiser Permanente and the Department of Veterans Affairs (VA). Kaiser Permanente's (KP) portal, My Health Manager, is used by more than 5 million members, representing about 70% of adult KP members.…”
Section: Introductionmentioning
confidence: 99%
“…Patients who read their notes report having a better understanding of their health, and relatively few patients are concerned about privacy (37%) or feel that reading their clinic notes causes confusion, worry or offence (1% to 8%) . Qualitative feedback from patients about their note content has been positive, but patients in safety‐net settings may have different perceptions of their doctors' notes . Also, vulnerable populations are less likely to access patient portals, which raises concerns about whether this technological intervention for engaging patients might actually increase health‐care disparities due to a “digital divide.” A better understanding of electronic note access among vulnerable populations, who may have relatively limited computer access or lower health literacy, is needed.…”
Section: Introductionmentioning
confidence: 99%