What Makes a Community-Based Physical Activity Program Successful for Adults With Moderate-Severe Traumatic Brain Injury?

Quilico, Enrico; Swaine, Bonnie; Sweet, Shane N; Duncan, Lindsay R.; Wilkinson, Shawn; Alarie, Christophe; Bonnell, Kaila; Colantonio, Angela

doi:10.1016/j.apmr.2020.10.091

Cited by 3 publications

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“…The grass-roots initiative was first established in response to a need for PA support in the community after moderate-to-severe TBI ( 13 ) and was piloted from 2017 to 2019 to promote exercise and sport participation for its users. An initial exploration of the program revealed its potential, based on perceptions of the program's accessibility, benefits, and positive outcomes ( 14 ). However, a subsequent need was identified to cocreate a formal version of the program that could be replicated and evaluated for a larger cohort of users.…”

Section: Introductionmentioning

confidence: 99%

Participatory co-creation of an adapted physical activity program for adults with moderate-to-severe traumatic brain injury

Quilico

Wilkinson

Duncan

et al. 2022

Front. Rehabilit. Sci.

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BackgroundResearch about using physical activity (PA) to improve health, quality of life, and participation after moderate-to-severe traumatic brain injury (TBI) is receiving growing attention. However, best-practices for maintaining PA participation after TBI have yet to be defined. In this context, a team of researchers and stakeholders with a moderate-to-severe TBI (including program participants and peer mentors) participated in a co-creation process to optimize a 9-month, 3-phased, community-based, adapted PA program named TBI-Health.PurposeThe study aimed to provide a detailed account of the participation in and co-creation of a new TBI-Health Program to enhance sport and exercise participation for adults with moderate-to-severe TBI. Specifically, we carried out an in-depth exploration of the perceived experiences and outcomes of users over one cycle of the program to assist the co-creation process.MethodsAn interpretive case study approach was used to explore the experiences and outcomes of the participatory co-creation within and across phases of the TBI-Health program. A purposeful sample of fourteen adults with moderate-to-severe TBI (program participants n = 10; peer mentors n = 4) were involved in audio-recorded focus groups after each program phase. Reflexive thematic analyses within and across the phases identified three higher-order themes.ResultsProgram Participation included barriers, facilitators, sources of motivation and suggested modifications to optimize the program; Biopsychosocial Changes highlighted perceived physical, psychological, and social outcomes, by self and others, that resulted from program participation; PA Autonomy emphasized transitions in knowledge, sex- and gender-related beliefs, and abilities related to exercise and sport participation.ConclusionsStudy findings suggest the TBI-Health program can increase autonomy for and reduce barriers to PA for adults with moderate-to-severe TBI, which results in increased PA participation and important physical, psychological, and social benefits. More research is needed about the TBI-Health program with larger samples.

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Section: Introductionmentioning

confidence: 99%