2012
DOI: 10.1177/1077558712459216
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What Is Shared in Shared Decision Making? Complex Decisions When the Evidence Is Unclear

Abstract: Patient involvement in decisions is central to patient-centered care. Yet many important decisions must be made in complex, ambiguous clinical situations in which all possible options cannot be known, evidence is inadequate to inform patients' preferences fully, and/or patients are unclear about their desired level of involvement. In these situations, preferences are shaped by affect, framing, and "collaborative cognition" among clinicians, patients, and their families; thus, decisions are often relational, dy… Show more

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Cited by 144 publications
(136 citation statements)
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“…Assessing the patient's ability to understand this information is one element of assessing decision-making capacity (Appelbaum 2007). If the patient does not seem to fully grasp the information that was conveyed, the clinician will want to determine whether this reflects a true inability to understand the material or whether the explanation needs to be worded in more straightforward terms (Epstein and Gramling 2013;Epstein and Peters 2009;Sessums et al 2011;Sheridan et al 2004). Shifting to a different mode or format of presentation may also help improve the patient's understanding of the material (Covey 2007).…”
Section: Methodsmentioning
confidence: 99%
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“…Assessing the patient's ability to understand this information is one element of assessing decision-making capacity (Appelbaum 2007). If the patient does not seem to fully grasp the information that was conveyed, the clinician will want to determine whether this reflects a true inability to understand the material or whether the explanation needs to be worded in more straightforward terms (Epstein and Gramling 2013;Epstein and Peters 2009;Sessums et al 2011;Sheridan et al 2004). Shifting to a different mode or format of presentation may also help improve the patient's understanding of the material (Covey 2007).…”
Section: Methodsmentioning
confidence: 99%
“…The clinician could discuss the likely diagnostic possibilities or explain why symptomatic treatment is still indicated, even in the absence of a clear diagnosis. Other elements of the proposed treatment approach may also contain uncertainties (Epstein and Gramling 2013), and gaps in available evidence may not allow estimates of risks and benefits of treatment. Again, the goal is a straightforward discussion of the therapeutic options as well as transparent mention of key areas of uncertainty that would be relevant to the patient's preferences and decisions.…”
Section: Methodsmentioning
confidence: 99%
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“…What happens when the evidence is poor or options are ambiguous is less clear and requires a different approach. 42 And for patients who prefer to delegate treatment decisions, what is the provider responsibility for defining preferred wound outcome?…”
mentioning
confidence: 99%
“…Briefly, patients must decide not only through a theoretical exercise, but considering the context that preserves the expression of their autonomy, in which there must be: clarity on where the care is provided; about the treatment process or outcome to achieve a particular health status; adequate information regarding their preferences; perceived credibility of the information source; clarity in the language used to describe options; attention to different attributes of a decision such as benefits and harms; number of options available; valuing of previous experiences in similar situations; affection; description of the effects in the order in which they occur; analysis of reliable opinions of others; perceived social norms; and media influence 6 .…”
mentioning
confidence: 99%