What is Person-Centred Care? A Qualitative Inquiry into Oncology Staff and Patient and Family Experience of Person-Centred Care

Calisi, R.; Boyko, Susan; Vendette, Angela; Zagar, Anthony

doi:10.1016/j.jmir.2016.08.007

Cited by 11 publications

(10 citation statements)

References 9 publications

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“…A standard definition of PCC is currently lacking, with terms like “patient-centered care”, “person-centered care”, “shared decision-making”, “relationship-centered care”, and “personalization” seen in the literature, often referring to similar ideas 13–15. Other important aspects emphasized are the patient’s social support and lifestyle wishes, and the notion that everyone working around the patient should work together toward a solution that will suit the individual patient 9,16. The WHO describes PCC as an approach and a way of working so that HCPs are able to visualize the “person as a whole with many levels of needs and goals, with these needs coming from their own personal social determinants of health” 5…”

Section: Introductionmentioning

confidence: 99%

<p>Health care professionals’ experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic</p>

Even¹,

Spaak²,

M³

et al. 2019

JMDH

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Introduction Person-centered care (PCC) appears particularly suitable for patients with complex diseases and in multidisciplinary care. However, previous research tends to focus on each profession and condition separately. Purpose We studied how health care professionals (HCPs) understand PCC, and whether their clinical practice is aligned with their theoretical understanding, when starting clinical practice at a novel multidisciplinary clinic. Methods In total, 16 semi-structured interviews with HCPs and 31 non-participatory observations of outpatient meetings and other activities at the clinic such as team meetings were conducted at a multidisciplinary, integrated outpatient clinic in Sweden. All patients had simultaneous diabetes mellitus, chronic kidney disease and established cardiovascular disease. The clinic employed a PCC approach. Data were analyzed using an inductive thematic approach. Results Two key findings emerged. First, PCC requires a holistic view of the patient at all times during care, with everything focused on the patient. This requires that the HCPs know the patient well enough as an individual to be able to tailor the care together with them. Second, working with a PCC philosophy leads to transformed roles for HCPs in patient meetings, with more active involvement by the patient and often also their next of kin. The observations, in comparison with the interviews, showed that not all HCPs applied their views on PCC in patient meetings. Observations showed that some patient meetings were less person-centered than others, potentially due to stress or lack of time. Conclusion PCC require HCPs to have a holistic view of the patients and a deeper understanding of their situation, as individuals. Working with PCC also leads to a more coaching, supportive role of the HCPs.

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Section: Introductionmentioning

confidence: 99%

<p>Health care professionals’ experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic</p>

Even¹,

Spaak²,

M³

et al. 2019

JMDH

View full text Add to dashboard Cite

show abstract

“…Person-centered is often used interchangeably with patient-centered, but it adds nuances to its meaning [8,9]. Person-centered defines approaches to delivering care centered on the individual independent of the clinical setting [10] and it also signifies the person is an active partner in healthcare processes [9], as well as considering the individual as a whole (person) rather than as a temporary role (e.g., client, participant, resident, patient) [11].…”

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confidence: 99%

Development and validation of the Person-Centeredness of Research Scale

et al. 2018

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Aim: Person-centeredness shifts the focus of healthcare and research to the needs and priorities of patients and communities, and may improve health outcomes. There are no instruments available, however, with which we can assess the degree to which research is indeed person-centered. Our aim was to develop and validate a quantitative instrument to rate person-centeredness of research. Materials & methods: Scale development and validation entailed a multistep approach that led to the seven-item Person Centeredness of Research Scale (PCoR Scale) that uses a 5-point Likert rating scale. The scale was validated using ratings of the Patient-Centered Outcomes Research Institute-funded research abstracts or abstracts submitted to a translational science meeting. Results: Psychometric properties of the PCoR Scale showed high internal consistency (α = 0.96). All seven items were highly correlated with the total score (rs range from 0.63 to 0.90). An exploratory factor analysis demonstrated that all of the items loaded on a single factor, explaining 80% of the variance. The Patient-Centered Outcomes Research Institute-funded research abstracts had a mean PCoR Scale score of 6.52 (±8.01) that was significantly higher than the abstracts submitted to the translational science meeting (-2.56 (±9.18); t = 8.09; p < 0.0001). Inter-rater reliability in the validation of the revised instrument was high (Intraclass Correlation Coefficient [ICC] (group1) = 0.89; ICC (group2) = 0.95). Conclusion: This brief, quantitative rating scale is the first to assess the main constructs that describe person-centeredness of research products. The PCoR Scale can be used to assess person-centeredness in research products; for example, by funders evaluating proposals, data networks evaluating data requests or researchers evaluating their research designs.

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“…The search summary flowchart following PRISMA guidelines is presented in figure 1. The search yielded 12,446 references following deduplication, and 18 studies/n=19 papers [36][37][38][39][40][41][42][43][44][45][46][47][48][49][50][51][52][53][54] were retained and synthesised in this review. The characteristics of included studies are summarised in box 1.…”

Section: Resultsmentioning

confidence: 99%

“…All retained studies (n=18/18) reported data from high-income, Western countries. ► The Netherlands (n=5/18) [36][37][38][39][40] ► Canada (n=3/18) [41][42][43] ► Australia (n=3/18) 44 45 49 ► USA (n=2/18) 46 50 ► UK (n=1/18) 47 ► Ireland (n=1/18) 53 ► Norway (n=1/18) 48 ► Sweden (n=1/18) 54 ► Germany (n=1/18 study reported in n=2/18 papers) 51 52 Healthcare settings ► Hospital wards (n=5/18) 37 38 41 47 48 ► Residential aged care facilities (n=3/18) 44 45 54 ► Outpatient clinics (n=2/18) 36…”

Section: Countries and Settingsmentioning

confidence: 99%

The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review

et al. 2020

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IntroductionPerson-centred care has become internationally recognised as a critical attribute of high-quality healthcare. However, the concept has been criticised for being poorly theorised and operationalised. Serious illness is especially aligned with the need for person-centredness, usually necessitating involvement of significant others, management of clinical uncertainty, high-quality communication and joint decision-making to deliver care concordant with patient preferences. This review aimed to identify and appraise the empirical evidence underpinning conceptualisations of ‘person-centredness’ for serious illness.MethodsSearch strategy conducted in May 2020. Databases: CINAHL, Embase, PubMed, Ovid Global Health, MEDLINE and PsycINFO. Free text search terms related to (1) person-centredness, (2) serious illness and (3) concept/practice. Tabulation, textual description and narrative synthesis were performed, and quality appraisal conducted using QualSyst tools. Santana et al’s person-centred care model (2018) was used to structure analysis.ResultsPRISMA (Preferred Reporting Items for Systematic Reviews and Meta-Analyses) flow data: n=12,446 studies screened by title/abstract, n=144 full articles assessed for eligibility, n=18 studies retained. All studies (n=18) are from high-income countries, and are largely of high quality (median score 0.82). The findings suggest that person-centred care encompasses the patient and family being respected, given complete information, involved in decision-making and supported in their physical, psychological, social and existential needs. The studies highlight the importance of involving and supporting family/friends, promoting continuation of normality and self-identity, and structuring service organisation to enable care continuity.ConclusionPerson-centred healthcare must value the social network of patients, promote quality of life and reform structurally to improve patients’ experience interacting with the healthcare system. Staff must be supported to flexibly adapt skills, communication, routines or environments for individual patients. There remains a need for primary data investigating the meaning and practice of PCC in a greater diversity of diagnostic groups and settings, and a need to ground potential components of PCC within broader universal values and ethical theory.

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What is Person-Centred Care? A Qualitative Inquiry into Oncology Staff and Patient and Family Experience of Person-Centred Care

Cited by 11 publications

References 9 publications

<p>Health care professionals’ experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic</p>

<p>Health care professionals’ experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic</p>

Development and validation of the Person-Centeredness of Research Scale

The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review

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What is Person-Centred Care? A Qualitative Inquiry into Oncology Staff and Patient and Family Experience of Person-Centred Care

Cited by 11 publications

References 9 publications

<p>Health care professionals&rsquo; experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic</p>

<p>Health care professionals&rsquo; experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic</p>

Development and validation of the Person-Centeredness of Research Scale

The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review

Contact Info

Product

Resources

About

<p>Health care professionals’ experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic</p>

<p>Health care professionals’ experiences and enactment of person-centered care at a multidisciplinary outpatient specialty clinic</p>