AN EVOLVING PICTURE'Long COVID' describes both ongoing symptomatic COVID-19 (5-12 weeks after onset) and post-COVID-19 syndrome (≥12 weeks after onset). 1 Long COVID is also a patient-preferred term 2 so will be used throughout this editorial to describe symptoms lasting ≥4 weeks after an acute episode of COVID-19.As the phenomenon of long COVID emerged and came to be recognised, including with the publication of the guideline by the National Institute for Health and Care Excellence, Scottish Intercollegiate Guideline Network, and the Royal College of General Practitioners, 1 there was still limited evidence about whether children and young people could suffer with prolonged symptoms following an acute COVID-19 infection. The general opinion was still that SARS-CoV-2 was a mild infection in the young. 3 Narratives emerged, however, from parents describing prolonged problems in their children, following an acute COVID-19 infection, 4 and this was borne out in the scientific literature. 5 Jasmin (young person with long COVID) describes her situation: 'I'm Jasmin. I am 11 years old and I have suffered from long COVID for over a year. I was perfectly fit and happy, and enjoyed doing sports. Having long COVID has really changed my life in many different ways. I can't go to school much anymore, I don't see my friends, I can't exercise, I can't even walk far without a wheelchair. I think that a lot of people don't understand what the illness is and how difficult it is for me.'