What information needs do people with recently diagnosed diabetes mellitus have and what are the associated factors? A cross-sectional study in Germany

Grobosch, Sandra; Kuske, Silke; Linnenkamp, Ute; Ernstmann, Nicole; Stephan, Astrid; Genz, Jutta; Begun, Alexander; Haastert, Burkhard; Szendroedi, Julia; Müssig, Karsten; Burkart, Volker; Roden, Michael; Icks, Andrea

doi:10.1136/bmjopen-2017-017895

Cited by 15 publications

(35 citation statements)

References 31 publications

(38 reference statements)

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“…This is the first study to identify subgroups of persons with DM with different sets of information needs. Recent studies have analysed information needs among people with DM more generally, with some finding higher information needs than in our study [8][9][10]28]. One reason for this observation might be differences in the study samples.…”

Section: Discussion Of the Findings And Comparison To Other Studiescontrasting

confidence: 53%

“…Diabetes-related characteristics [9,10,18,19] We included type of diabetes, coded as 'Type 1 diabetes', 'Type 2 diabetes' and 'other diabetes type' (e.g. gestational diabetes; not included in the LCA models), and diabetes duration as measured by the question 'Have you been diagnosed with diabetes by a physician?…”

Section: Measurement Of Associated Characteristicsmentioning

confidence: 99%

“…Well-being [10,21] Well-being was measured with the German version of the World Health Organisation-Five Well-Being Index (WHO-5) [22] and coded as 'low well-being' or 'high well-being' (cut-off score ≥ 50).…”

Section: Measurement Of Associated Characteristicsmentioning

confidence: 99%

“…Current level of information and diabetes education [10] The respondents' current level of diabetes-related information was captured using the Information Needs in Diabetes Questionnaire [17]. Responses for the 11 topics (Additional file 1, Appendix 1) were given on a 4-point Likert scale from 'not informed at all', coded as 0, to 'very well informed', coded as 3.…”

Section: Measurement Of Associated Characteristicsmentioning

confidence: 99%

“…age and socioeconomic status) and different phases of the disease (e.g. determined by mode of diabetes treatment and diabetesrelated comorbidity) [6,[8][9][10][11]. In order to provide individualized information, more work is required to identify information needs-related subgroups in people with DM.…”

Section: Introductionmentioning

confidence: 99%

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Different information needs in subgroups of people with diabetes mellitus: a latent class analysis

et al. 2020

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Background Current evidence suggests that the information needs of people with diabetes mellitus differ across patient groups. With a view to being able to provide individualized information, this study aims to identify (i) the diabetes-related information needs of people with diabetes mellitus; (ii) different subgroups of people with specific information needs; and (iii) associated characteristics of the identified subgroups, such as sociodemographic characteristics, diabetes-related comorbidities, and well-being. Methods This cross-sectional study was based on data from 837 respondents with diabetes mellitus who participated in the population-based KORA (Cooperative Health Research in the Augsburg Region) Health Survey 2016 in Southern Germany (KORA GEFU 4 study) (45.6% female, mean age 71.1 years, 92.8% Type 2 diabetes). Diabetes-related information needs were assessed with a questionnaire asking about patients’ information needs concerning 11 diabetes-related topics, e.g. ‘long-term complications’ and ‘treatment/therapy’. Subgroups of people with different information needs and associated characteristics were identified using latent class analysis. Results We identified the following four classes of people with different information needs: ‘high needs on all topics’, ‘low needs on all topics’, ‘moderate needs with a focus on complications and diabetes in everyday life’, and ‘advanced needs with a focus on social and legal aspects and diabetes research’. The classes differed significantly in age, years of education, type of diabetes, diabetes duration, diabetes-related comorbidities, smoking behaviour, diabetes education, current level of information, and time preference. Conclusions Knowledge about different patient subgroups can be useful for tailored information campaigns or physician-patient interactions. Further research is needed to analyse health care needs in these groups, changes in information needs over the course of the disease, and prospective health outcomes.

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Section: Discussion Of the Findings And Comparison To Other Studiescontrasting

confidence: 53%

Section: Measurement Of Associated Characteristicsmentioning

confidence: 99%

Section: Measurement Of Associated Characteristicsmentioning

confidence: 99%

Section: Measurement Of Associated Characteristicsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Different information needs in subgroups of people with diabetes mellitus: a latent class analysis

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Knowledge of HbA1c and LDL‐C treatment goals, subjective level of disease‐related information and information needs in patients with atherosclerotic cardiovascular disease

Brockmeyer

Wies

Joerges

et al. 2022

Clinical Cardiology

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Background/Hypothesis Risk factor control of diabetes mellitus (DM) and especially dyslipidemia remains unsatisfactory in patients with atherosclerotic cardiovascular disease (ASCVD). We aimed to analyze the knowledge of low‐density lipoprotein cholesterol (LDL‐C) and glycated hemoglobin (HbA1c) treatment goals, subjective level of information, and information needs in very high‐risk patients with ASCVD. Methods ASCVD patients (n = 210; 75 ± 9 years; 71.4% male; 89.5% coronary disease) with DM (96.7% type 2) completed a questionnaire assessing knowledge of HbA1c and LDL‐C treatment goals and subjective level of information and information needs on disease‐related topics of DM and ASCVD. Serum LDL‐C and HbA1c were measured. Results HbA1c goal (<7.0% in 60.6%) was attained more frequently than LDL‐C goal (<70 mg/dl in 39.9%; p < .01). Significantly more participants named the correct goal for HbA1c compared to LDL‐C (52.9% vs. 2.4%; p < .01). Subjective levels of information were higher and information needs were lower for DM than for ASCVD (p < .01 for all topics). No associations of knowledge of treatment goals and level of information with the attainment of treatment goals for HbA1c and LDL‐C were found. However, in multivariate regression, higher levels of education were associated with knowledge of treatment goals (HbA1c: odds ratio [OR] 1.32, 95% confidence interval [CI] 1.01–1.72, p = .04; LDL‐C: OR 2.32, 95% CI 1.07–5.03; p = .03). Conclusion In very high‐risk patients with ASCVD, a deficit of knowledge of treatment goals to control dyslipidemia exists when compared to DM, patients felt significantly better informed for topics of DM than for ASCVD and display higher information needs for topics of ASCVD.

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Diabetes-related research priorities of people with type 1 and type 2 diabetes: a cross-sectional study in Germany

Borgmann

Verket

Gontscharuk

et al. 2022

Sci Rep

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To investigate (i) the importance and priorities of research objectives for people with type 1 (T1DM) and type 2 diabetes (T2DM); (ii) subgroups with specific research priorities; (iii) associated factors (e.g., sociodemographic characteristics) of the subgroups. The cross-sectional survey was conducted in 2018 using data from 869 respondents (29.0% response, 31.2% female, mean age 61.3 years, 62.7% T2DM) from a German statutory health insurance population. Diabetes-related research priorities were assessed with a questionnaire. Subgroups and associated factors were identified using latent class analysis. Three subgroups were found in T1DM: (1) high priority for the research topic ‘healing diabetes’ and moderate priority for the research topic ‘prevention of long-term complications’, (2) priorities for simplifying handling (high) and stress reduction (moderate), (3) priorities for healing diabetes (high) and simplifying handling (high). Three subgroups were found in T2DM: (1) priorities for simplifying handling (moderate), diabetes prevention (moderate) and prevention of long-term complications (moderate), (2) priorities for stress reduction (high) and diabetes prevention (moderate), (3) priorities for simplifying handling (high) and stress reduction (high). Classes differed in age and HbA1c. Knowledge about research priorities enables researchers to align their work with the needs of people with diabetes.

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What information needs do people with recently diagnosed diabetes mellitus have and what are the associated factors? A cross-sectional study in Germany

Cited by 15 publications

References 31 publications

Different information needs in subgroups of people with diabetes mellitus: a latent class analysis

Different information needs in subgroups of people with diabetes mellitus: a latent class analysis

Knowledge of HbA1c and LDL‐C treatment goals, subjective level of disease‐related information and information needs in patients with atherosclerotic cardiovascular disease

Diabetes-related research priorities of people with type 1 and type 2 diabetes: a cross-sectional study in Germany

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