“What Doesn't Kill You Makes You Stronger”: An Ovarian Cancer Survivor Survey

Stewart, Donna E.; Wong, Felicia; Duff, Steven B.; Melancon, Cindy; Cheung, Angela M.

doi:10.1006/gyno.2001.6437

Cited by 138 publications

(123 citation statements)

References 22 publications

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“…However, similar observations have been made with shorter-term breast [25,26] and genital tract [12,27] cancer survivors where, in spite of highly prevalent problems with sexual functioning, positive attitudes, partnership and behavior are maintained. Understanding how and why some very long-term survivors maintain sexual partnerships and positive attitudes toward sexuality even with severely compromised sexual function may help physicians and survivors better understand the role of sexual and intimate relationships in coping with cancer and maximizing survival and quality of life.…”

Section: Discussionsupporting

confidence: 56%

Sexual morbidity in very long term survivors of vaginal and cervical cancer: A comparison to national norms

Lindau¹,

Gavrilova²,

Anderson³

2007

Gynecologic Oncology

158

106

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Objectives-To compare sexuality among very long-term survivors of vaginal and cervical cancer to national norms and assess quality of care for sexual problems.Methods-A survey of survivors in a cancer registry (n=221) provided data comparable to the 1992 National Health and Social Life Survey (NHSLS). The NHSLS sample was individually matched on age and race to survivors at a 2:1 ratio. Responses were compared using conditional logistic regression and 2-sample t-tests. Correlates of sexual problems among survivors were analyzed using multivariate logistic regression.

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Section: Discussionsupporting

confidence: 56%

Sexual morbidity in very long term survivors of vaginal and cervical cancer: A comparison to national norms

Lindau¹,

Gavrilova²,

Anderson³

2007

Gynecologic Oncology

158

106

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“…In contrast, one average study [28] found no relationship between age and depressive symptoms in ovarian cancer survivors, and one good study [25] found lower levels of distress in women under 45 years old. The weight of the evidence therefore strongly suggests that younger patients experience more anxiety/depression.…”

Section: Resultsmentioning

confidence: 91%

“…However, it is important to note that studies involving patients who were at varying stages of their cancer journey found that approximately 25% of participants scored above the clinical cut-off, suggesting that depressive symptoms may remain a significant problem for some patients. Studies that looked at ovarian cancer survivors found that 6% of ovarian cancer survivors, defined as those who had been 2 years or more without evidence of active disease, scored above the clinical cut-off for depression [29], which is comparable to the general population and survivors scored higher on the Mental Health Inventory than population norms, indicating better mental health than the general population [28].…”

Section: Resultsmentioning

confidence: 96%

Psychological distress and its correlates in ovarian cancer: a systematic review

2008

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Objective: Ovarian cancer is often diagnosed at an advanced stage, and consequently high levels of distress are often experienced. It is necessary to understand the factors associated with psychological distress in order to guide interventions to target those factors. The purpose of this systematic review was therefore to identify correlates of psychological distress in ovarian cancer.Methods: Included studies had to be quantitative and empirical, with standardized measures of psychological distress (anxiety or depression), and to present results for ovarian cancer patients specifically. Standard systematic search methods were used. Information about design, ovarian cancer sample size, disease stage, time since diagnosis, measures of distress used and findings was extracted from each study. The studies were quality assessed using experimenterdefined criteria as good, average and poor quality. Strength of the evidence (strong, some, inconclusive) was based on the quality and consistency of findings.Results: Eighteen studies meeting the inclusion criteria were identified. There was strong evidence for a relationship between younger age, being diagnosed with more advanced disease, more physical symptoms and shorter time since diagnosis with increased levels of anxiety and/ or depression. Additional factors (e.g. immune) tested in a few studies also emerged as correlates of distress.Conclusions: Demographic, disease and quality of life factors correlated with distress. However, too few studies assessed possible psychological and immunological correlates, which could be potentially modified and should be assessed in future studies.

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“…Previous research, both quantitative and qualitative, has investigated distress and mental health disorders in gynaecological cancer patients (Reuter, Raugust, Marschner, & Haertner, 2007; Stewart, Wong, Duff, Melancon, & Cheung, 2001), as well as support (Beesley et al, 2008; Ussher, Kirsten, Butow, & Sandoval, 2006; Walton et al, 2010), informational (Booth, Beaver, Kitchener, O’Neill, & Farrell, 2005) and psychosocial needs (Miller, Pittman, & Strong, 2003; Warren, Melrose, Brooker, & Burney, 2016). Additionally, qualitative research has expanded to explore the experience of cancer, particularly in relation to topics such as hope (Hammer et al, 2013; Reb, 2007), meaning (Akyüz, Güvenç, Üstünsöz, & Kaya, 2008; Roberts & Clarke, 2009; Sekse et al, 2010), the impact of childlessness or loss of fertility for younger women (Molassiotis et al, 2002; Roberts & Clarke, 2009) and changing family roles (Akyüz et al, 2008).…”

Section: Introductionmentioning

confidence: 99%

“A peculiar time in my life”: making sense of illness and recovery with gynaecological cancer

Phillips

Montague

Archer

2017

International Journal of Qualitative Studies on Health and Well

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Purpose: Worldwide there are nearly 1.1 million new cases of gynaecological cancer annually. In England, uterine, ovarian and cervical cancers comprize the third most common type of new cancer in women. Research with gynaecological cancer patients within 6 months of diagnosis is rare, as is data collection that is roughly contemporaneous with treatment. Our aim was to explore the experiences of women who were, at study entry, within 6 weeks of surgery or were undergoing chemotherapy or radiotherapy. Methods: An interpretative phenomenological analysis (IPA) of data from 16 women in five focus groups was conducted in the UK, exploring women’s experiences of being diagnosed with and treated for gynaecological cancer. Results: Participants conceptualized their experiences temporally, from the shock of diagnosis, through their cancer treatment, to thinking about recovery. They tried to make sense of diagnosis, even with treatment being complete. In the context of the Self-Regulation Model, these women were struggling to interpret a changing and multi-faceted illness identity, and attempting to return to pre-illness levels of health. Conclusions: This study adds to this under-studied time period in cancer survivorship. The results suggest that survivors’ goals may change from returning to pre-illness status to reformulating goals as survival time increases.

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“What Doesn't Kill You Makes You Stronger”: An Ovarian Cancer Survivor Survey

Cited by 138 publications

References 22 publications

Sexual morbidity in very long term survivors of vaginal and cervical cancer: A comparison to national norms

Sexual morbidity in very long term survivors of vaginal and cervical cancer: A comparison to national norms

Psychological distress and its correlates in ovarian cancer: a systematic review

“A peculiar time in my life”: making sense of illness and recovery with gynaecological cancer

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