What do children need to know about dementia? The perspectives of children and people with personal experience of dementia

Baker, Jess R.; Jeon, Yun‐Hee; Goodenough, Belinda; Low, Lee Fay; Bryden, Christine; Hutchinson, Karen; Richards, Laura

doi:10.1017/s1041610217002022

Cited by 18 publications

(22 citation statements)

References 23 publications

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“…A larger initiative, involving nineteen schools found a number of positive outcomes, including children's increased dementia awareness, knowledge of how to help people living with dementia, reduced stigma and fear and increased awareness and appreciation of unpaid carers (Atkinson & Bray, 2013). A larger scale scheme to educate children about dementia in Australia is being implemented, but has not yet finished its evaluation (Baker et al, 2017). However, none of these schemes has focussed on providing immediate benefit for people living with dementia.…”

Section: Intergenerational Initiativesmentioning

confidence: 99%

Adopt a Care Home: An intergenerational initiative bringing children into care homes

2017

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Dementia friendly communities, in which people living with dementia actively participate and those around them are educated about dementia, may improve the wellbeing of those living with dementia and reduce the associated stigma. The Adopt a Care Home scheme aims to contribute towards this by teaching schoolchildren about dementia and linking them with people living with dementia in a local care home. Forty-one children, 10 people living with dementia and 8 school/care home staff participated in a mixed methods (questionnaires, observations, interviews and focus groups) evaluation to assess the scheme's feasibility and impact. Data were analysed statistically and thematically. The scheme was successfully implemented, increased children's dementia awareness and appeared enjoyable for most participants. Findings, therefore, demonstrate the scheme's potential to contribute towards dementia friendly communities by increasing children's knowledge and understanding of dementia and engaging people living with dementia in an enjoyable activity, increasing their social inclusion.

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Section: Intergenerational Initiativesmentioning

confidence: 99%

Adopt a Care Home: An intergenerational initiative bringing children into care homes

2017

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“…2 Ninety percent of Organisation for Economic Co-operation and Development (OECD) countries support DFC initiatives. [5][6][7][8][9][10][11] Fundamental to DFCs is the involvement of people living with dementia in all aspects of their organisation and operations. In the United Kingdom, 5 it was the Prime Minister's Challenge in 2012 that put DFCs on the agenda.…”

Section: Introductionmentioning

confidence: 99%

“…England is one of the few countries that has incorporated the creation of DFCs into policy, with targets for the creation of DFCs and a system of recognition linked to standards. [5][6][7][8][9][10][11] Fundamental to DFCs is the involvement of people living with dementia in all aspects of their organisation and operations. 10,11 A more contested aspect is the term "dementia friendly" itself.…”

Section: Introductionmentioning

confidence: 99%

Dementia Friendly Communities in England: A scoping study

Buckner

Darlington

Woodward

et al. 2019

Int J Geriat Psychiatry

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Objectives To describe the characteristics of Dementia Friendly Communities (DFCs) across England in order to inform a national evaluation of their impact on the lives of those affected by dementia. Methods DFCs in England were identified through online searches and Alzheimer's Society records. A subsample (n = 100) were purposively selected for in‐depth study based on online searches and, where necessary, follow‐up telephone calls. Data collection and analysis were guided by a pilot evaluation tool for DFCs that addressed how DFCs are organised and resourced and how their impact is assessed. The evidence was predominantly qualitative, in addition to some descriptive quantitative information. Results Of 284 DFCs identified, 251 were defined by geographical location, while 33 were communities of interest. Among 100 sampled DFCs, 89 had been set up or started activities following policy endorsement of DFCs in 2012. In the resourcing of DFCs, statutory agencies and charities played an important role. Among DFC activities, awareness raising was cited most commonly. There was some evidence of involvement of people living with dementia in organisational and operational aspects of DFCs. Approaches to evaluation varied, with little evidence of findings having effected change. Conclusions DFCs are characterised by variation in type, resourcing, and activities. England has policy endorsement and a recognition system for DFCs. These can be important catalysts for initiation and growth. A systematic approach to evaluation is lacking. This would enable DFCs to be consistent in how they demonstrate progress and how they enable people living with dementia to live well.

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“…Other literature has offered diverse definitions of dementiafriendly communities, drawing on both the personhood (i.e. psycho-social) approach and the rights-based approach to dementia and arguing for an empowering social environment (Lin & Lewis, 2015;Odzakovic & Kullberg, 2016;Swaffer, 2014;Ward et al, 2018;Wiersma & Denton, 2016), awareness-raising interventions (Alden, Wigfield, Krispeter, & Karania, 2019;Baker et al, 2018;Cashin, Daley, Hebditch, Hughes, & Banerjee, 2019;Ebert, Kulibert, & McFadden, 2019;Innes, Page, & Cutler, 2015;Phillipson et al, 2018), promoting independence (Bartlett, 2016;Rahman & Swaffer, 2018) and human rights (Charras, Eynard, & Viatour, 2016;Rahman & Swaffer, 2018;Swaffer, 2015). Along with this knowledge, the existing literature argues that the implementation of dementiafriendly communities could support recognition of dementia as a public health matter in a widespread societal acknowledgement corresponding to the wishes and assets of people living with dementia (Alzheimer´s Disease International, 2016; Courtney-Pratt, Mathison, Doherty, 2018).…”

Section: Dementia-friendly Communitiesmentioning

confidence: 99%

Neighbourhood nursing : connection, place and meaning in the everyday experience of dementia

Odzakovic

2020

Linköping University Medical Dissertations

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What do children need to know about dementia? The perspectives of children and people with personal experience of dementia

Abstract: Children are our future citizens. Developing an education program for children with this message content may be fundamental to de-stigmatizing dementia and laying the foundation to dementia-friendly communities.

Cited by 18 publications

References 23 publications

Adopt a Care Home: An intergenerational initiative bringing children into care homes

Adopt a Care Home: An intergenerational initiative bringing children into care homes

Dementia Friendly Communities in England: A scoping study

Neighbourhood nursing : connection, place and meaning in the everyday experience of dementia

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