What are the essential features of resilience for informal caregivers of people living with dementia? A Delphi consensus examination

Abstract

The essential elements of resilience selected from multiple stakeholder perspectives can be used to select appropriate outcomes for intervention studies and give guidance to policy to support caregivers more effectively and better tailored to their needs.

Cognitive dysfunction in patients with brain metastases: influences on caregiver resilience and coping

“…In addition, the observation that caregivers tend to fall back on emotion and avoidance-style coping strategies as cognitive problems increase should be further studied. Resilient caregivers of patients with dementia were found to have a better outlook; higher quality relationship with the care recipient; and well-informed, adequately supported, and appropriate users of healthcare resources [53].…”

The influence of day care centres for people with dementia on family caregivers: an integrative review of the literature

“…The actual concept of resilience has evolved as the scientific knowledge about it has increased, but there is still no consensus on an operational definition (Herrman et al, 2011). experiencing positive aspects of caregiving, and a good quality of life of caregivers were also included in the term (Joling et al, 2017). This shows that the resilience concept is not a standardized concept, but is constantly evolving.…”

Coping but not allowing the coping to be everything: Resilience in informal dementia care

“…A study which sought to obtain a carer‐derived definition of resilience found participants had such difficulty with the question it was dropped from the interview schedule and a definition was supplied by the researcher (O'Dwyer, Moyle, Taylor, Creese, & Zimmer‐Gembeck, ). An earlier study aiming to define resilience used a Delphi process (Joling et al, ) and included family carers but the statements which informed the process were again derived by the research team. The current study enables carers to share their own insights.…”