Well-being in mothers of children with congenital heart defects: a 3-year follow-up

Dale, Maria Teresa Grønning; Solberg, Øivind; Holmstrøm, Henrik; Landolt, Markus A.; Eskedal, Leif; Vollrath, Margarete E.

doi:10.1007/s11136-012-0326-0

Cited by 21 publications

(23 citation statements)

References 44 publications

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“…Close to 50% of families of children with special healthcare needs (CSHCN) experience some type of financial burden, but the magnitude of financial impact of CHD on families is not well documented. Increased risk of caregiver psychological distress, particularly around critical periods of illness such as diagnosis and surgery, persisting up to three years after the newborn period has been documented . Very little information exists, however, on the need for mental health services.…”

Section: Introductionmentioning

confidence: 99%

Financial burdens and mental health needs in families of children with congenital heart disease

McClung

Glidewell

Farr

2018

Congenital Heart Disease

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Section: Introductionmentioning

confidence: 99%

Financial burdens and mental health needs in families of children with congenital heart disease

McClung

Glidewell

Farr

2018

Congenital Heart Disease

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“…Investigating risk factors for maladjustment in children and parents, severity of CHD was mainly related to more negative consequences for psychological adjustment for both the child ( 5 , 11 ) and its mother ( 12 , 13 ). Investigating surgery-related factors, associations of child psychological maladjustment with age at surgery ( 7 ) and cardiopulmonary bypass duration ( 6 ) have been identified.…”

Section: Introductionmentioning

confidence: 99%

“…Moreover, former studies predominantly combined different defects resulting in a heterogeneous sample group [e.g., Ref. ( 11 , 12 , 21 , 22 )]. In order to better understand the long-term consequences of the surgery of an isolated VSD, the current study extends existing literature about child and parent psychological adjustment to physiological measures.…”

Section: Introductionmentioning

confidence: 99%

Long-term Associations of an Early Corrected Ventricular Septal Defect and Stress Systems of Child and Mother at Primary School Age

et al. 2018

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IntroductionVentricular septal defect (VSD) is the most common congenital heart defect, with larger VSDs typically being corrected with an open-heart surgery during infancy. Long-term consequences of a VSD-corrective surgery on stress systems of child and mother are still unknown. The aim of the present study is to investigate the associations of an early corrected VSD and diurnal cortisol release of child and mother.Methods26 children (12 boys) between 6 and 9 years old, who underwent surgery for an isolated VSD within the first 3 years of life, and their mothers participated in the study. Their diurnal cortisol profiles were compared to a sex-, age-, and socioeconomic status-matched healthy control group. Within the VSD group, associations between cortisol and characteristics of surgery and hospitalization were investigated. Child and mother psychopathological symptoms were considered as a possible interfering mechanism of altered cortisol profiles.ResultsDiurnal cortisol profiles of children with an early corrected VSD did not differ from those of controls. However, mothers of affected children exhibited higher cortisol levels in the morning (p < 0.001, normalηp2=0.36) and a steeper diurnal cortisol slope (p = 0.016, normalηp2=0.17) than mothers of healthy children.ConclusionResults indicate a favorable development of children with an early corrected VSD, in terms of comparable diurnal cortisol profiles with healthy controls, according to a comparable mother-rated psychopathology. Mothers of affected children reveal altered diurnal cortisol levels, without differences in self-rated psychopathology. This divergence should be clarified in future research.

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“…Similar studies have shown that providing care to children with neurological problems reduces maternal health levels (29)(30)(31)(32)(33)(34) . The loss of self-care is associated with the fact that they are solely responsible for the demands of the family, the socioeconomic status of these women was also a limiting factor for the establishment of healthy behaviors, such as minimally adequate food and intervals of sleep and rest.…”

Section: Discussionmentioning

confidence: 82%

Adaptive problems arising out of the progenitor’s abandonment after Zika Congenital Syndrome

et al. 2020

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Objective: to reveal the adaptive problems of the woman abandoned by the child’s parent after Congenital Zika Syndrome, in the light of Roy’s Adaptation Model. Method: a qualitative, descriptive study, based on Roy’s Adaptation Model, developed with six women abandoned by their child’s parent after Zika Congenital Syndrome diagnosis, through interview and Content Analysis technique. Results: adaptive problems appeared in nutrition, activity, rest, and protection patterns, due to limitations in self-care; self-concept, related to dissatisfaction with body image and personal being; in the role of transition role, through difficulties in taking over new roles and in interdependence, related to changes in affective needs. Final considerations: the overload of care for children with Congenital Zika Syndrome, added to the challenges of the abandoned woman by her child’s parent, led to adaptive problems, showing their main difficulties of coping.

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Well-being in mothers of children with congenital heart defects: a 3-year follow-up

Abstract: The findings suggest a pattern in which all stressors concerning the severely ill child lead to significant deterioration of maternal well-being. Having a child with mild or moderate CHD, which is a less severe and shorter-term stressor, did not reduce mothers' well-being.

Cited by 21 publications

References 44 publications

Financial burdens and mental health needs in families of children with congenital heart disease

Financial burdens and mental health needs in families of children with congenital heart disease

Long-term Associations of an Early Corrected Ventricular Septal Defect and Stress Systems of Child and Mother at Primary School Age

Adaptive problems arising out of the progenitor’s abandonment after Zika Congenital Syndrome

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